Gluten Reactions

[bobbdvm]

Hello i am new to this group, but have been diagnosed for about three years now. I have a question about reactions or "getting glutened" because I wanted to see if anyone shares my situation.

It is somewhat predicatble, and of course always accidental.

Generally starts 3 hours after meal, I get very hot and start sweating. I usually have profound vomiting for about 30 minutes and then pass out for 10-15 minutes. When I regain consciousness, I usually vomit a couple of more times, then develop profound diarrhea for about 30 minutes and then pass out for a few hours. On one occasion I had a gran mal seizure instead of passing out that required a trip to the E.R. The next day I' usually tired, but no further GI signs and 24 hours later I am fine.

Does anyone else have reactions like this?

Bob

[Cheryl-C]

Wow Bob, that sounds really awful. REALLY awful. I feel really bad for you. My response to a glutening is not like yours, so I can't be of much help. I will add though that my cousin vomits loads after coming into contact with gluten, and they told her that was more of an "anaphylactic-style" response than the typical GI-response. What does your GP say? Throwing up and passing out, with seizures, sounds extremely serious - are you sure there's nothing underlying?

[bobbdvm]

That is a concern of mine; I was diagnosed in my 40's and had been misdiagnosed for about 8 years with food allergy, IBS, liver disease, even cancer was offered as a differential before they finally figured it out. At the time of diagnosis I was 6 foot 1 inch and weighed 140 pounds! Now up to 180 pounds and doing well except for these severe reactions. The doc at the ER said it was a "remarkable" presentation, and the GI doc said it was atypical and to do my best to avoid exposure to gluten...well duh.

It's a little scary for me to go through these because I don't know if I'm going to seizure, or just pass out; and I don't always remember exactly what happens. It is really hard on my wife when I go through these as she is never sure if she is going to have to call 911 or just wait it out.