Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

50 Days Gluten-Free, But Problems Remain


aly25

Recommended Posts

aly25 Newbie

Hi, I am IgA deficient and exhibit symptoms of diarehha, fatigue, tension headaches, and mental fog. I have gone on a gluten-free diet prior to a biopsy and consultation with a GI and am now on day 50. Although I have noticed that my scent has changed (improved somewhat), and that my ability to breath through my nasal passage has ameloriated: I have not experienced the shock and awe of getting well. My bowel movements are still unsatisfactory, etc. I should note that my blood tests are normal, except that I am IgA deficient and have a high IgG count. A colonoscopy was negative for Crohn's, and I do not have blood in my stools. I am planning to continue the gluten-free diet for months to come, yet I am wondering what timeline folks had prior to getting better, or at least when was significant improvement noticed. I recognize that recovery proceeds on a case by case basis, but is there an average time? For example, did folks go two months without noticing much of a change and then improvement was noted by months three and four?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Have you eliminated dairy? We often need to until we heal. What are you eating? It is best to go with whole naturally gluten free foods at first. It can take some time to heal but gut issues should be improving at least a bit by now. Have you made sure your home is as gluten safe as possible? New toaster, replacing colander, not sharing condiments etc? Have you checked all OTC drugs, scripts and supplements? If not check those with the maker. Also since you are still symptomatic be sure to check your shampoos, toiletries, makeup etc.

starrytrekchic Apprentice

I had some immediate relief in symptoms--then it was back and forth for several months, gradually trending for better. New symptoms cropped up, though--around the 2-3 months mark I was exhausted for several weeks. I'd say it took about 4 months for things to really straighten out--but things were noticeably better from the very beginning.

Everyone's healing rate is different though. If I were you, I'd keep at it for six months, at least.

aly25 Newbie

Hi, thanks for the responses. Raven I will make a thorough checking of everything. Starry, I shall certain pursue gluten-free for six months or more, but was hoping to find inspiration here regarding the timeline thus far. I guess I shall require patience.

ravenwoodglass Mentor

Hi, thanks for the responses. Raven I will make a thorough checking of everything. Starry, I shall certain pursue gluten-free for six months or more, but was hoping to find inspiration here regarding the timeline thus far. I guess I shall require patience.

The timeline can vary from person to person. It can also vary system by system. Some will see gut relief fairly soon but take longer to have neuro or bone and joint issues resolve. My migraines were gone within a week and gut symptoms soon after but the other issues took much longer to resolve. Some have gut issues stop almost immediately and with others it can take a month or two. Be as strict as you can and try to avoid the most common cointolerances like the dairy and soy if you are not already.

Hope you heal soon.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,048
    • Most Online (within 30 mins)
      7,748

    Dianak
    Newest Member
    Dianak
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.