Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do I Do If Want To Give One Individual My Home Email Address?


Loey

Recommended Posts

Loey Rising Star

I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in case she's not online. Is this allowed? If so, how do I go about it. Would emailing her on her page be private enough?

Thanks for everything you are doing here. Finding this forum couldn't have come at a better time. I'm in the midst of a flare and I've already learned so much and gotten so much support from the other members.

Loey

P.S. Why do some threads list me a a new community member and others as an advanced one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in case she's not online. Is this allowed? If so, how do I go about it. Would emailing her on her page be private enough?

Thanks for everything you are doing here. Finding this forum couldn't have come at a better time. I'm in the midst of a flare and I've already learned so much and gotten so much support from the other members.

Loey

P.S. Why do some threads list me a a new community member and others as an advanced one?

Loey:

You can click on that person's name and it will take you to their profile. There you will see options to send a personal message that is private between the two of you.

Members status is based on the number of posts that are made.

sa1937 Community Regular

I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in case she's not online. Is this allowed? If so, how do I go about it. Would emailing her on her page be private enough?

Loey

Personally I've given my email addy to a couple of forum members. You can get a feel from the posts they've made. Life is full of taking chances...heck, as celiacs every time we put something in our mouths, we take chances. If I found someone who lived closed to me with shared interests, I'd go for it...that does not mean that I indiscriminately give out personal info.

Rowena Rising Star

Another thing you can do is set up an email for solely people from this site, (or any other site you join) and that can be listed for people to send you things. This is what I do for this and another forum I am a part of.

But personally, I like Private Messaging people, quick and easy, and I can do it while I am signed on and I don't have to look at two different screens while doin so.

Loey Rising Star

Personally I've given my email addy to a couple of forum members. You can get a feel from the posts they've made. Life is full of taking chances...heck, as celiacs every time we put something in our mouths, we take chances. If I found someone who lived closed to me with shared interests, I'd go for it...that does not mean that I indiscriminately give out personal info.

Thank you for the helpful advice. I wasn't sure how you went about setting it up. I've made contact and am looking forward to meeting someone who lives here. She's offered to take me to the Support Group when it resumes it's meetings.

I agree with you that we take a chance every time we put something into our mouths. As a newcomer to this disease I'm still trying to find my triggers and I think I'm going to just stick to rice, protein and fresh vegetables and see how that goes. I'm in the middle of a terrible flare and am in pain constantly. I'm waiting to hear if my insurance company approved my capsule endoscopy for Monday. Before I moved my GI made all of my testing a priority because I was bedridden for 6 weeks and needed to have results to bring with me. Initially I was feeling better but feel like I'm back at square one. My new GI says that I must be eating something that has gluten in it but I've been extremely careful. I'm planning on eliminating dairy for now as well. I just want to feel better.

You've answered my posts before and I really appreciate the support I've gotten from you and everyone else here. Hopefully I'll be able to help others.

Loey

Lisa Mentor

Dairy yes...it can mimic the gluten effect. And try to keep a food diary. It can help you pinpoint an issue.

sa1937 Community Regular

Thank you for the helpful advice. I wasn't sure how you went about setting it up. I've made contact and am looking forward to meeting someone who lives here. She's offered to take me to the Support Group when it resumes it's meetings.

I agree with you that we take a chance every time we put something into our mouths. As a newcomer to this disease I'm still trying to find my triggers and I think I'm going to just stick to rice, protein and fresh vegetables and see how that goes. I'm in the middle of a terrible flare and am in pain constantly. I'm waiting to hear if my insurance company approved my capsule endoscopy for Monday. Before I moved my GI made all of my testing a priority because I was bedridden for 6 weeks and needed to have results to bring with me. Initially I was feeling better but feel like I'm back at square one. My new GI says that I must be eating something that has gluten in it but I've been extremely careful. I'm planning on eliminating dairy for now as well. I just want to feel better.

You've answered my posts before and I really appreciate the support I've gotten from you and everyone else here. Hopefully I'll be able to help others.

Loey

You're welcome, Loey! That's what makes this forum so great! Very helpful people here, some of whom have been gluten free for years and they know a whole lot more than I do. I don't know of any local support groups around here...I'm sure you'll meet a lot of nice people and learn a lot.

I think Lisa has a great idea...keep a food diary. I never did and sometimes it's really hard to pinpoint what's bothering us. If you were bedridden for six weeks at diagnosis, no doubt in my mind that you were terribly ill and dairy should be given up and eat really clean by eliminating processed foods. Also, in my mind you might want to pretty well give up eating out for awhile as the risk of cross contamination is so great. You might also have other intolerances that you don't even know about yet.

We have to remember that we didn't get this way over night and it's just going to take time to heal. Easier said than done as we all want instant results. I hope your insurance company approves the capsule endoscopy for you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,923
    • Most Online (within 30 mins)
      7,748

    Amber Gumm
    Newest Member
    Amber Gumm
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.