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- Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Knowing what to do when feeling unwell.
It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back u... -
- Scott Adams replied to Jillian83's topic in Coping with Celiac Disease4
Celiac and dermatitis herpetiformis has taken Me from Me
I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear... -
- Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications13Ibuprofen
Thank you.. Christina My anxiety is through the roof. I think it was from eggs. I really don't know because my eyes feel sore. Like I'm allergic to them. I was defient in B12. My heart is pounding and it won't stop. Not sure what to do. I don't have much support other than this forum. Colleen -
- nanny marley replied to nanny marley's topic in Related Issues & Disorders16Manitol and mri
Thanks rmj when I first rang up it was we can't do it without , but I talked to a lovely lady and she sorted it all out for me, so it pays to be persistent , I would have had to decline if I hadn't been given the water option too , so yes I'm glad too 😌 -
- RMJ replied to nanny marley's topic in Related Issues & Disorders16Manitol and mri
I’m so glad they listened to your concerns! I hope you get some answers from the MRI.
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By Scott Adams · Posted
Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/ -
By Scott Adams · Posted
It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful: -
By Scott Adams · Posted
I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found. -
Thank you.. Christina My anxiety is through the roof. I think it was from eggs. I really don't know because my eyes feel sore. Like I'm allergic to them. I was defient in B12. My heart is pounding and it won't stop. Not sure what to do. I don't have much support other than this forum. Colleen
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By nanny marley · Posted
Thanks rmj when I first rang up it was we can't do it without , but I talked to a lovely lady and she sorted it all out for me, so it pays to be persistent , I would have had to decline if I hadn't been given the water option too , so yes I'm glad too 😌
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