Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying A Gluten Challenge


momof4gf

Recommended Posts

momof4gf Rookie

I put two of my children on a gluten, dairy and egg-free diet after they showed IgG antibodies for those items via fingerstick at a Naturopath's office. My son, who had neurological symptoms showed remarkable improvement with significantly increased balance, coordination and strength along with cessation of his daily headaches. My daughter also showed improvement with cessation of her stomaches, sore throat, tingling in her feet and headaches. I have 2 other children who had the antibodies but really have no symptoms, therefore I would really like a more definitive diagnosis for all 4. So on Nov.1st I made an appt with a ped gastro for December 7th and restarted the kids on a regular diet, restricting nothing. They were so excited they have been eating LOTS of gluten and have really had no recurring symptoms. I am perplexed because a couple weeks after going gluten free they were accidentally glutened with a small amount and my son developed a severe migraine and my daughter cried all day saying she "didn't feel good all over". Could this not be related to gluten? Or could they have healed enough that the symptoms aren't as severe? (they were gluten free for 3 months). I know I'll get an answer from the gastro but I'm concerned that if the tests come back negative my husband and/or the kids will not want to restart the gluten free diet for the 2 who had symptoms. But they improved so dramatically from their symptoms they had since they were 1-2 years old (they are now 11 and 8) that I cannot believe they were not related to gluten. Any thoughts????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

It could take a few days for the gluten to build up in their bodies before they start showing symptoms again.

momof4gf Rookie

It's was 2 weeks yesterday that they have been gluten free. They both did have strep last week - my son was in bed for 3 days with it and had headache for a few days after. Going to GI doc in 3 weeks. Do you think 5 weeks is long enough to be back on gluten? The doctor's nurse said they prefer 6 but since we already had the appt to just keep it.

Kay DH Apprentice

I went on the gluten challenge in May. I was surprised that my reactions to gluten were fairly mild compared to when they started in September (after the flu), and to my reactions from cc. My best guess is that my immune system was a bit overwhelmed by the gluten, with lower level responses than random glutening. Once I went back to gluten-free, there was the old GI and other responses to gluten. Make sure the GI takes multiple pictures and endoscopy biopsy samples, the damage can be quite spotty and not clearly visible. My GI only had me on the gluten challenge for a week and only took 1 biopsy, so it was negative.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,798
    • Most Online (within 30 mins)
      7,748

    Gracie B
    Newest Member
    Gracie B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.