Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Crummy


anerissara

Recommended Posts

anerissara Enthusiast

After over 5 months gluten-free I had gotten used to feeling constantly better (but not great) than I had been feeling right before getting rid of wheat. I had forgotten how miserable it felt! I managed to really gluten myself in the last week or so, first by eating out several days in one week. I was working on a photo shoot w/ my hubby, and we didn't have time to eat at home, we went places where we knew we could order things w/o obvious wheat, but of course every time you eat out you risk contamination. So I was feeling bad already and then Sunday I caved in and ate a communion wafer at church. Ugh! I have felt sooooo crummy all week. Not only that but some of the symptoms that had totally gone away are back...dizzy, pain in my side and bad lower back pain, bloating for 4 days straight, exhaustion that won't go away no matter how much I sleep. It's awful! I have new resolve (once again) to avoid all wheat like the plauge. I'd have been better off not eating at all than risking feeling like this again.

Is it possible that I got enough gluten to damage my villi in that short a time? I'm wondering if the symptoms I'm having could have come just from getting the gluten in my system or if it has caused a bigger setback that will take longer to recover from. This is miserable!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

The amount of gluten you would have consumed probably didn't damage your intestines too much. Although I'm not a doctor. You will probably start feeling better soon. My last gluten reaction lasted about 2 weeks. I think a lot of people take about 2 weeks to feel better after having gluten. I hope you feel better soon.

anerissara Enthusiast

Thanks! I hope I haven't set myself back, I've had accidents before but none that resulted in this much discomfort. The reactions I've had before lasted maybe 4 or 5 days, so far it will be a week on this one tomorrow and i'm guessing that I won't be better for at least another few days after that. It's good to hear that 2 weeks isn't unusual, hopefully I'll be doing better soon!

tarnalberry Community Regular

It probably did some damage, but not a lot of damage, and hopefully you'll start feeling better soon.

I know the feeling of being out and about and worrying about what you can eat, so I thought I'd share some of the stuff I make/bring that's non-perishable that I can have on-hand, besides fruit, of course.

*beef jerky (homemade, but I had Tillamook's nuggets once and they were good)

*flax crackers (homemade, but I know some health food stores sell them... thing is, the cost of the premade crackers is SO much more than the raw ingredients...)

*bars (I like Larabars and Organic Food Bars, other people hate 'em, but I'm dairy free as well, so there are a bunch of normally gluten-free ones that I can't have - others will know which ones)

*nuts! (mostly almonds for me, just 'cause I like 'em)

*dried fruit (but something interesting, like dried mango or cherries - from Trader Joe's)

*chocolate! ('cause ya gotta have dessert)

For some friends' wedding next weekend, I'm also going to make veggie chips in my dehydrator, and some "bar food" of my own (that's better than the stuff I've found in the stores... a combination of lemon juice, hemp seeds, dried cranberries, and walnuts is very tasty, and has the protein I need). Thai Kitchen's stuff is good too, if you can get access to hot water. (And if you can, there are a lot of options in the camping food realm - lots of dehydrated stuff you can get.)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,050
    • Most Online (within 30 mins)
      7,748

    Rima
    Newest Member
    Rima
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.