Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At Least They're Making The Effort


srfjeld

Recommended Posts

srfjeld Apprentice

It seems that each time I go out to eat I find out more and more people are making the effort to please their gluten-free customers, however, they're just not quite getting the whole picture.

A couple weeks ago I went out to breakfast and when I told the server I am a Celiac he said they had gluten-free toast now. I was so excited and actually thought about ordering eggs Benedict when my loving boyfriend pointed out they may not have a dedicated toaster. Sure enough, upon asking, they didn't.... so, it's not exactly gluten-free toast. I suggested they purchase a cheap toaster to keep separate. We'll see.

Then, I went out to a little coffee shop with a friend and she learned they had gluten-free bagels, Udi's no less! She was so excited, though she's not a Celiac, that she ordered one with cream cheese and split it with me... about halfway through my half the toaster thing popped in my head... so, I asked the mgr and he said, nope... they only have one toaster. So, again, I had to tell him as nicely as possible that it's not 100% gluten-free when toasted in a contaminated toaster.

So, here I am with a Dermatitis Herpetiformis flare up a few days later and extreme exhaustion. Not exactly how I planned on spending my T-day break. Funny how we see gluten-free on the menu and assume they've got the rest covered for us. But, at least they are making the steps! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cheryl-C Enthusiast

Oh no! Sorry to hear about the DH - hopefully you're feeling better soon. I agree, it seems a lot of restaurants/bakeries/cafes are making the effort now, they just haven't got the idea 100%. They provide the food, without realizing the food needs the correct environment. I'm glad you pointed it out - hopefully they will take it to heart.

4celiacs Newbie

Yes, I agree that many food establishments are trying to serve gluten free and we just have to educate them.

Salax Contributor

That sucks. But at least they are trying. I see this alot with Fries. Then when you ask if it's a dedicated fryer, you get the deer in head lights look.

I also have experienced this in a pizza place. They have the gluten-free pizze crust, but when I asked about the toppings, sauce, etc...I got a blank stare. They they proceeded to explain that the toppings were kept safely. :blink: So I asked if they were gluten-free, still no answer.... :o I got up to leave; then he proceeded to tell me that no-one had ever complained or gotten sick that he was aware of. *sigh* I left. I will not eat there. To bad, I wanted to try it. Had a pizza craving. O-well.

People just don't get it. And it's hard to explain to many, because they don't want to get it or they just can't understand it. I think the "peanut allergy" is the better way to explain it, at least with my experience. Even then it may not work! I even had like a 30 minute conversation with a co-worker on gluten-free and celiac disease. And the next day or so she was telling people I couldn't eat glucose. :blink: LOL.

Oh the joy of celeac disease......*sigh* some days I just want to order a freaking pizza. *cry* hehe. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    2. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    3. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      18

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,755
    • Most Online (within 30 mins)
      7,748

    vickie343
    Newest Member
    vickie343
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.