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ravenwoodglass

Never Thought I Would Be Able To Do This

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In 2002 I had given up all hope of ever being able to do anything but live in pain and continue slowing dieing. Even after diagnosis I still had little hope of ever being able to accomplish much as my brain and body were so very damaged. Everything was so hard from thinking to walking to even talking to my children. I felt trapped in my own body.

I had to quit college one semester short of my degree in 1996 due to being so very sick from undiagnosed celiac. In 2008 I tried to go back to school and finish my last semester but my brain was still not back enough and my memory was still so poor and movement was still so difficult at times that I went back for a little over a month and gave up. It was just too hard physically and mentally. To say that was demoralizing is an understatement. But I continued with physical therapy for my motion issues and never gave up on the idea that I could heal fully.

Last summer I decided to give it one last shot. I sit here now with tears in my eyes still not quite believing that I took my last exam today. I did it. I finished my duel degrees. Even if I don't ever find a job with them at least my children can say now that their Mom at least finished college. Something no one else in my family (other than my children) ever did. It was hard and I spent many many hours studying to get my brain to be able retain what I was reading but I did it. I even had a 100% average in 2 of my classes going into the exams.

For those of you who are still struggling with neuro damage keep the faith. We can recover even from severe brain damage. I wish it hadn't taken so long but I am so glad I never gave up. You shouldn't either.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You are frickin' AWESOME!!!!

College alone is hard, going back is harder, and going back after you've been ill is almost unheard of.

You are an amazing woman and you make the world a better place just by being you.


"But then, in all honesty, if scientists don't play god, who will?"

- James Watson

My sources are unreliable, but their information is fascinating.

- Ashleigh Brilliant

Leap, and the net will appear.

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Congrats Ravenwood--you should be so proud! That's an amazing accomplishment :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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Congratulations! That is terrific! The world always needs more educated people.


"My mother always told me, it's okay to play with a man's mind

as long as you put it back where you got it when you're done with it."

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Congrats, now go celebrate...buy yourself something special and make an awesome dinner!!!

Rock on!!! B)


Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
(='.'=)
(")_(") Eat your vegetables!

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What an inspiring example you are to us all. Absolutely amazing. Congratulations on your grit and determination.


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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Thanks guys. Yea I am proud of myself and I did treat myself by going to the new Harry Potter movie. I went to the matinee and had the whole place to myself so I even got to put my feet up on the chairs in front of me. I am sooo glad I took that quote in my signature to heart and didn't give up. The hardest class was the sign language because my right side still has a 'lag time' between deciding to move and actually moving and I am right handed. Luckily the tests are receptive though. LOL.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Congratulation, Raven! As someone who got a late degree myself because of celiac health problems, I know exactly how wonderful you feel. :D

We need the little cheerleader smiley some BBs have!

thcheerleader3.gifCheer-1.gif

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Way to go!!!!

Thank you so much for sharing your story Raven. I still have a lot of memory issues myself. I was just getting depressed about this today that my memory is not quite good enough to go back to school yet. I also have some motility issues, but not nearly as bad as yours were/are. Your post gives me so much hope that I might continue to improve and go back.


A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

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"...I'll try again tomorrow". What an inspiration you are. I know that you have had some difficult years. I am very happy that you have rose above it all and you can look behind you with a smile. You should be VERY proud! I am. :)


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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What a wonderful post. I know your children must be so proud of your accomplishment. I know from my own experience how difficult it can be to go back to college and take care of a family, but I can't imagine battling such major health issues as well. Congrats on finishing that last exam. Just so you know I think this board is just as proud of you, you were already so very wise in our eyes. Happy holidays ravenwoodglass.

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Congrats! Awesome! Excellent! way to go!!


Becky (me)-35yo; hypothyroid 8yrs (symptoms at least 1 yr prior); Plantar Fasciitis (PF) (tendonitis in foot) 4 yrs; ovary & softball size cyst removed Feb 2008; Sleep Apnea 3yrs; Dec 2008- realized wheat affects hormones-- went semi- gluten-free (aka, gluten lite!). Interstitial Cystitis (IC, aka painful bladder syndrome) (self dx. controlled by diet- can't have acidic foods/ drinks). July 2010-- realized there was more going on, was going to do the sensitivity/ Celiac testing, decided it wasn't worth it! Am now truely learning to live the gluten- free lifestyle!

My DH-38 yo; born w/ Spastic cerebral palsy. legally blind, uses wheelchair. back surgery Aug 2007, has continued back troubles.

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Congrats! Go you. :D I'm currently one of those putting off college because I couldn't handle it (I never went in the first place), and this is inspiring to hear. I want to go one day, that's for sure. But that's fantastic!


Docs said it was depression, which was in my case code for, "It's all in your head."

I replied (in my head, alas) with expletives that I don't think are allowed on here. xD

Self-dx'd Celiac just beginning my very bumpy gluten-free journey. My healing process is looking a lot like my deterioration was (rather non-linear)...

Praise be unto the (gluten-free, vegan) Flying Spaghetti Monster for the folks who worked so hard to raise awareness (and Internet to access it)! Y'all saved me decades of suffering most likely. :D

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I just got chills up and down my spine after reading your post, ravenwoodglass. You are such an inspiration and that is often needed here. You should put your achievement in your signature, too, to encourage others to follow you or to achieve goals of their own.

I teach at a community college and also at the graduate school level (online classes only) and it's part of my life's mission to help students achieve their goals. Online classes are a good option for some (and helpful to celiacs/others with health issues), so if anyone has questions about adult degree completion please send me a PM.


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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Congrats Ravenwoood! Quite an accomplishment for anyone really. But extra cool for you! :)


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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You rock! Congrats! Being on this board for so long, I've always been so impressed by how much you help others, and I've learned so much from you. Come to find out you've been doing it in tandem with your recovery and school!? Remarkable.

You deserve the best...cheers to you!


2010- Gluten, Soy, Corn, Dairy, Eggs, Nut free. Sugar, non-gluten grains lite(Yes, still plenty to eat!)

2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life

2009

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Congratulations!! Good job!! I went back to school as an adult and that was before my gluten symptoms really started and still found it difficult. So I can't imagine doing it how you did. Woot! (wish I knew how to do that little cheer emoticon...)

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What a great story! Major congrats to you!! Pat yourself on the back!!!


luvs2eat

Living in the beautiful Ozark mountains in Arkansas

positive blood tests and later, positive biopsy

diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day

Dairy free since July 2010 and NOT happy about it!!

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Congratulations! That is fantastic. I'm very happy for you. You're an inspiration. I stopped one class short of graduation and when I returned they told me my catalog year had ended and I'd have to take two semesters of new classes. As difficult a time as I was having in (and paying for) the one class I gave up, but you are giving me hope. Thank you. :)


If you over-salt a dish while you are cooking, that's too bad. Please recite with me the real woman's motto: 'I made it, you will eat it and I don't care how bad it tastes!'-unknown

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Thanks so much guys. Your well wishes and congratulations mean more to me than you can imagine. We are such a wonderful and supportive group of people. I am so happy to be a part of this 'family'. :)


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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