Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just A Quick Question?


Countrygal

Recommended Posts

Countrygal Newbie

Hi everyone,I'm brand new here,But I did'nt know where else to go...I have Crohn's Disease and Diabetes,But I have been fighting this for a while :( I ahve researched on my own and have to ask...Do any of you feel like your starving always,no matter how much you eat or how often?????It is absolutely awful.When I tell anyone,they act like is that all...Its painful...And hard to sleep...Any help would be great...COUNTRYGAL


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



judy05 Apprentice

Hi Countrygal,

Welcome to the board! I have gluten and dairy intolerance and was diagnosed last fall with Diabetes. I don't take any meds, trying to control it with meds and exercise. I have a relative with Chron's and I know how she suffers with it. I also have spells when I get really hungry. my solution has been to eat protein along with my carbs, such as peanut butter(lo carb) with an apple or rice cake. Always try to have a protein with each meal along with veggies. Do you follow a gluten-free diet?

Hope this helps.

Countrygal Newbie

Hi Judy...I also use diet for my diabetes,except when chrohns flares...Then prednisone makes me have to take glucatrol...anyways...lately the hunger is constant no matter how much or how often I eat :( Its hard to sleep or consentrate...when you feel like you havent eaten in days...I am just starting the gluten free diet on my on...Of course between the chrohns diet and the diabetes diet...that leaves water..I just hope eventualy the diet will take effect and the hunger pains will diappear...Thanks...COUNTRYGAL :)

skbird Contributor

I have been having bouts of hunger again, a burning kind, lately. I have noticed it happens more when I have fruit or grains (like rice). I have been trying to stick with more protein snacks, like nuts and cheese, but sometimes it's hard to avoid. Frustrating, isn't it? I'm also hypoglycemic and most of the time I'm in good control but there are those moments...

I do find that drinking a glass of goat milk is pretty helpful - good combo of fat, protein, and sugar. But if you can't have milk then something else would have to do. Making smoothies is pretty easy and tasty - I like peanut butter smoothies (weird, huh?) and will add a spoon of unsweetened cocoa and a frozen banana (doesn't have to be frozen) and just enough coconut milk to get it the right consistency. If that's not quite sweet enough, I add some stevia. It's a good treat and very filling.

Stephanie

tarnalberry Community Regular

If I don't make sure to balance my carbs with fat and protein at *every* meal, yeah, I can feel that way. And during ... ahem... "certain times of the month"... my hormones make me constantly hungry (lasts about five to seven days).

LKelly8 Rookie

How long have you been on prednisone? When I took it for my rheumatoid arthritis it gave me crazy hunger, no matter how much I ate and I ate ALOT! In the middle of the night I'd wake up just STARVING and that would be after a day of eating everything I could get my hands on. I gained 50 lbs in six months. Other side effects were night sweats, mood swings and a lovely goatee. :o

It did nothing for my arthritis but as birth control it worked just fine. :lol:

Carriefaith Enthusiast

Yeah, I find I have to eat a lot in order to be full. Some days are worse than others. It's especially bad after I exercise.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



watkinson Apprentice

Hi countrygal,

Try drinking some green tea. It has wonderful antioxidant properties, and is a natural appetite supressant. Plus sipping somthing warm keeps your mind off eating other stuff.

Like skdbird said, drinking a glass of milk helps when you get craving. And definatley boost up your protien levels. A good snack when the munchies comes on is a piece

of cheese wrapped up in peice of lunchmeat like tukey, with a glass of milk.

Hope this works,

Wendy

lmtrenholm Newbie

Hi,

Eating more protein should help a lot, but if you're still having problems try Hoodia Gordonii. This is a natural food based supplement derived from a certain type of cactus - you may have seen the story 20/20 did on it last year.

I have used it myself and it really eliminates hunger. I have never experienced any side-effects from it and from what I understand it is completely safe since it's just a plant food extract that they put into capsules. If you have any trouble finding it in health food stores, just order it from the internet.

To read more about it just type Hoodia Gordonii into your favourite search engine. It's great for hunger control and really helps if you're trying to loose weight or going through a hard time giving up sugar/bad carbs.

tarnalberry Community Regular
from what I understand it is completely safe since it's just a plant food extract that they put into capsules.

Just a reminder that just because something is a plant extract - even from food - doesn't mean it's safe. Parts of rhubarb can be poisonous, while some flowers are edible some are poisonous, aspirin and anti-malarial medications are essentially plant extracts, etc. This one may be safe, but it's not a safe analogy to say that because it comes from food, it's alright. (As one interesting example, nutmeg - the stuff that is likely in your pantry right now - has dangerous hallucinogenic properties if you take too much of it. And too much at one time is - for most people - less that what's in a large bottle of it. A few kids have tried it out from time to time, mostly to end up in the hospital and realizing the experience wasn't worth much to begin with. :o

lmtrenholm Newbie

Sorry, didn't mean to confuse by using the word "food" without defining it.

What I meant by food was something that was widely recognized as an edible plant/animal, with nutritional value, not known to normally have toxic properties (excluding individual sensitivities and allergic reactions) at levels/dosages recognized as safe and usual.

Poisonous parts of rhubarb, all plant extracts, and nutmeg (when consumed in unusually large amounts) do not qualify as foods and most people know that just about anything in a large enough quantity can cause harm.

For those who disagree with my personal definition of food, the dictionary says: Material, usually of plant or animal origin, that contains essential nutrients, such as carbohydrates, fats, proteins, vitamins, or minerals, and is ingested and assimilated by an organism to produce energy, stimulate growth, and maintain life.

Most of us would agree that poisonous plants and extracts, drugs, and substances taken in large enough quantities to cause harm do not meet the definition of producing energy, stimulating growth, and maintaining life.

Perhaps I should have gone on to explain the long history of eating this cactus in parts of Africa but I assume people can look into it further if they're interested.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.