Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To The Board


boysmom8

Recommended Posts

boysmom8 Newbie

Hi. I have 8 children and two(so far) have Celiac(one also has type 1 diabetes). They have been on the gluten-free diet for going on 5 years now. I find myself getting so bogged down lately since the oldest of the two is going into the teen years very shortly(b-day in Oct). The diet wasn't as much of a challenge when we homeschooled but for a year and a half now they have been in school and with school starting in just a little over a month I have the dilemma again of sending lunches. With such a large family, it is getting so costly to do a good variety of gluten-free lunches so I would appreciate some ideas to get me outta my rut. What works for you all and keeps well until lunch time???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
With such a large family, it is getting so costly to do a good variety of gluten-free lunches so I would appreciate some ideas to get me outta my rut. What works for you all and keeps well until lunch time???

Welcome!

Wow big family! How do you do it! I have a few ideas for lunches:

EnviroKiz bars or dry cereal

Open Original Shared Link

Plain rice cakes or gluten-free bread with peanut butter

Tuna or chicken salad with gluten-free bread (Just put a small ice pack in with the lunch to keep from spoiling). My Recipe: 1 can tuna or chicken equilvalent, about 1/4 cup green onions, about 1/2 cup celery, and 2 tablespoons of Kraft Mayo or more if needed (Kraft will not hide gluten on their ingredients).

Fruit like Apples, Bananas, and oranges.

Tinkyada spiral pasta with Ragu sauce (This may keep well in a thermus)

If they have access to a microwave:

Amy's gluten-free microwavable dinners Open Original Shared Link

Thai Kitchen gluten-free instant dinners (they are like Mr. Noodles, but better). I recommend the gluten-free rice bowls and noodle carts for lunches. Pad Thai, Spring Onion, and Thai Ginger are my favorites

Open Original Shared Link

Open Original Shared Link

boysmom8 Newbie

Thank you for the ideas. I'm looking for more!!!

I have another son who is constantly having celiac symptoms but tested negative. doesn't make sense.....I thought for sure he had it too.

I know a few folks who put their whole family on a gluten free diet since it was easier. I just don't know how they afford it! My 4 year old has never been tested and neither has the baby(10 months). I need to get them in.

Anyone have a negative test that came out postive later????

Thanks again.

Carriefaith Enthusiast

I have a few more ideas:

Cold gluten-free pizza (or heated up in a microwave if they have access to one)

Boost nutritional shakes (all are gluten-free I believe except chocolate malt)

Veggy salads with gluten-free Kraft dressings (Kraft will clearly put gluten on the ingredient list so you don't have to worry)

Fruit Salad

I have another son who is constantly having celiac symptoms but tested negative. doesn't make sense.....I thought for sure he had it too.

Which tests did he have?

boysmom8 Newbie

the blood test and biopsy. Both were negative.

Carriefaith Enthusiast

I don't know a whole lot about this, but it is possible that he is sensitive or intolerant to gluten and maybe get celiac in the future if he has the gene. You can get a gene test done to see if he has the gene for celiac, then you would know for sure. If present, the celiac gene is usually triggered "on" after a stressful event.

stef-the-kicking-cuty Enthusiast

Hello there,

Welcome to the board!!! :D

I'm a german, but a resident of the United States. In germany there were already several cases of people (also kids) all ages, that tested negative and a couple of years later suddenly they were positive :o . One thing that might be the reason, is the fact, that you can be a celiac, but the damage of the villi in your small intestines is pretty much the last stage of celiac disease and might not be present yet at an earlier stage. That's why the damage of the small intestines is aka the tip of the ice-berg. That means, your son can be a celiac and to find this out you would have to go on with feeding him gluten and damage his intestines on purpose. If you don't want to wait for this to happen and you are pretty sure, that he has this despite the negative tests, then give him glutenfree food. And I think, with two celiac kids already, you have pretty much experience in this. And my doctor said, if you improve on a glutenfree diet, even if your tests were negative, then this is proove enough.

A little bit more costly, but pretty good are tests done by EnteroLab. They also do family screening, which is for more people and then a little bit cheaper (if they still offer this special). You can also find out about other food intolerances/allergies with them.

Here is one idea for your kids for school. I had that as a kid all the time and still eat it now as an adult. It's terrific and glutenfree! It's called Nutella and a breadspread from Europe. It's not a butter like my mother-in-law calles it all the time. She compares it with peanut butter. And it just is no butter. In fact you put real butter or margarine on the bread first and then you put Nutella on it. It's a hazelnut-chocolate breadspread. Awesome! Kids in general love this and it has a lot of calcium and iron!

Oh, and Carrie is right. But not only stress can trigger celiac. The two already known trigger are stress or a surgery. With me it was triggered by a tooth surgery.

Whatever you decide to do, just go for it and good luck ;) !

Keep us posted how you made out.

Hugs, Stephanie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Gluten free pantry also has some instant bowl meals, like pasta/beans, stroganoff. I usually eat a salad with some lunch meat and an apple or gluten-free chips. I put all kinds of things on my salads to make them more filling too--nuts, meat, beans, quinoa. But not sure if kids would like that. Does your grocery store have fruit leathers? I get them at wild oats and trader joes. They are like a fruit roll-up in a way, but made of pure fruit. I eat them instead of fruit snacks now. You could also add some dried fruit or trail mix with yogurt. Lays stacks chips are gluten-free and cheetos are too. Cut up veggies w/dressing or hummus. I make gluten-free banana nut muffins, brownies, flat bread and cookies and take those too. I like to make those in bulk too and freeze. Ever make johnny marzetti with gluten-free pasta, that would work too cold if you couldn't heat it up. Or cold "fried chicken." I also ditto Carrie on gluten-free bread sandwiches. I like miracle whip on mine. And I actually make them in the night before, and don't have a problem with them getting soggy. How about a wrap sandwich with a rice or corn tortilla and mean or just veggies and a dressing spread inside? In addition to apples I like to pack applesauce or fruit cups. Hope some of our ideas help--good luck!

I don't know if you're interested in asking, but since your kids have special diets, perhaps they would be allowed to access a microwave that other kids wouldn't be able to ?

Guest taweavmo3

Welcome to the board! I haven't had to tackle the school years yet, but it's coming up soon for us. My daughter will hopefully be starting pre-school this fall. Here's some of her favorite snacks that I'll most likely send along with her.....

Kinnikinnick pizza...the crust has a sweet taste, it's terrific. But, a bit pricey.

Rice cakes w/ peanut butter & honey

Quesadillas made with corn tortillas, you can fill them with a ton of different things, then fry them in olive oil or heat up in the microwave. For fillings I usually use either hummus & cheese or pizza sauce and mozzarella for an economical mini pizza. My kids LOVE the pizza quesadillas, and since I can get a huge package for under $1.....I've been using them alot!

Corn tortillas also work well for roll up sandwiches......my son likes them with pb/honey or ham and cheese. They keep really well too.

Cool Ranch Doritos, my one splurge of junk food for my little ones

Tinkyada pasta w/sauce keeps well too, if your kids could heat it up somewhere.

Tuna w/ Miracle whip and relish on rice crackers

Make your own rice bowls. We go through a ton of rice, and by adding different sauces/meat/veggies you can change the taste. Throw it all together in a plastic container, and just heat it up. This is usually what we bring for my daughter when we go out to eat.

Gluten free cereal for snacks. I just found Health Valley Rice & Corn Crunch'ems. They are gluten free, and much cheaper than the Envirokidz cereal. I mix the cereal with nuts, raisins and marshmallows for a trail mix sort of snack.

Kinnikinnick donuts are good too, and very filling.

Homeade soups would be good to take to school, if you children are into soup (mine aren't)

That's all I can think of at the moment! I know everyone else will have some good ideas. We have finally gotten to the point where we aren't spending a fortune on the diet anymore. I used to get frustrated when the more experienced celiacs would say going gluten free doesn't have to be expensive. But, I have to say, that now I totally see what they mean. We do buy gluten free pasta, and stocking up on my dry baking goods gets pricey.......but if we stick to more naturally gluten free foods and the basics, I can keep the extra cost to a minimum. Good luck!

Guest Lucy

my son also has type 1 diabetes and celiac. He just turned 3. It is definately harder with diabetes. Is your son on pump? I would love to ask you some questions about it.

I too am worried about school. My kids are going to go to a private Christian school that does not have a full time nurse. I am worried about insulin shots and so forth. I know that my friend whose son has celiac just heats up supper from the night before and throws it in a thermos every day.

Fresh fruit, yogurt, pudding cups, hotdogs, carrots and celery with dip. Make a huge batch of muffins and freeze them. That can take place of sandwiches. Just grab them in the morning, and should be thawed by noon. Same with banana bread. (Maybe they can bring in a toaster oven just for their use at school? Might not always be the healthiest lunches, but maybe you can have extra healthy at breakfast and supper to make up for it.?.?

boysmom8 Newbie

Thank you so much for the ideas. I have written a whole bunch down and NO I hadn't heard of the Chebe bread before. I was trying to make my own and it just doesn't taste that great.

Lucy, my son who is diabetic is 10 and has had diabetes since he was 2years3months. Of course they don't know what triggered it but they think stress and/or a virus was to blame. We had just had another child and I thought Seth was just being bratty because of the new baby. He was drinking alot but since I was so preoccupied with a newborn I just didn't think of the symptoms at first. I felt really bad since I myself was suffering from gestational diabetes and checking my sugars!! I really felt stupid when I went to put on an outfit that was getting tight on him and it was hanging off him! It finally clicked and I bought some glucose test strips at the pharmacy(we were also in the middle of a major move across the country) and tested him and it was high glucose. We went to the hospital and learned how to do shots and all that. He isn't on a pump yet. I am going next week to see the diabetes educator and I am going to plead my case for a pump.

I am going to have the two kiddos tested that haven't been tested and also have John(the one with symptoms) tested again.

Thanks again,

Lori

  • 2 weeks later...
SmittySlick Newbie

I am also new to the board. I have a five year old son who has severe food allergies to wheat, gluten, whey and casein (previous one to peanuts) and I have a hard time finding things, that a picky five year old, will eat. Are there any gluten-free hotdogs? He also tested negative, for Celiac, to a biopsy when he was 18 months old and to a blood test at the beginning of the year.

SmittySlick

Canadian Karen Community Regular

Corn tortilla chips with salsa (check the delphi list to see which ones are gluten free), and cheddar cheese graded to sprinkle on top. The other kids in the class will be drooling!!!!

Karen

  • 3 weeks later...
robbiesmom Rookie

Hi! Check out Oscar Mayer hotdogs-the ones we bbuy are gluten-free.

Sara

tarnalberry Community Regular

I'm always a fan of sticking to naturally gluten-free things that don't cost an arm and a leg. For the purposes of this exercise, I'm going to assume that there is no place to *heat* items, but an small insulated lunch bag with an ice pack can be put inside somewhere so that it will stay cool for half a day. The following suggestions are based on things I take to lunch at work (that don't require reheating, and don't include dairy since I can't have it, and with an attempt at balancing fat/protein/carbs since I can get hypoglycemic symptoms).

Ususally, my lunch will include three or four of the first set of "snack" items, and one of the "main course" items.

* raw veggies (carrots, bell peppers, zucchini, celery, tomatoes, cauliflower)

* whole fruits (peaches, pears, apples, bananas, berries, cherries)

* nuts (walnuts, almonds, pecans)

* "raw" brownies (pureed dates, almonds, water, cocoa powder)

* cold bean salad (canned beans, chopped onion, chopped sweet pepper, shredded zucchini, diced avocado, diced tomato, salt, garlic powder, cayanne pepper, cumin)

* chicken salad (chopped spinach, diced leftover chicken (breast or thigh), sliced red onion, sliced tomato, dressing of mashed avocado and lemon juice)

* corn tortillas and tuna salad (canned tuna, mashed avocado, tomato salsa, lemon juice, chopped red onion, chopped spinach)

* flax crackers (flax seeds, braggs or water, spices - dehydrated in a dehydrator (you can buy them, but they're much more expensive store bought than home-made)

* chili (yep, it's fine cold) (canned black beans, canned kidney beans, canned stewed tomatoes, canned tomato paste, chopped onion, crushed garlic, ground turkey, chili powder, cayanne pepper, cumin)

* pumpkin bread (regular banana bread recipe converted to gluten-free and using canned pumpkin instead - making use of high protein flours, including soy flour)

* lettuce leaves, deli meat, tomato and avocado slices (a slice of tomato and avocado in the center of a slice of deli meat, rolled up in the lettuce)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.