Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Withdrawls


blockisland

Recommended Posts

blockisland Rookie

We are a family of 6 who have recently discovered we are gluten intolerant through an elimination diet. I am very overwhelmed at tring to prepare meals for all of us and deal with all of us experiencing withdrawl symptoms at the same time, Help!! Should I try to wean us off gradually like a mother weans a nursing child? It is taking time to completely change the diet of 6 people all at once while struggling and not feeling well myself.The hardest part is the excessive hunger and hypoglycemia related to it all.Also worry about the kids at school getting enough to eat all day long. I have 2 teenagers who are bucky me on this and refuse to pack extra snacks. Any suggestions would be helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FarmCat Newbie

I am hypoglycemic and gluten intolerant myself. There should not be hypoglycemia or hunger issues on the gluten-free diet! There are plenty of other sources of carbohydrates besides wheat, even for picky eaters. Potatoes, rice, corn, dairy (milk is a good source of sugar), fruit (will your family eat bananas, apples, oranges?). I have not found a really great-tasting gluten-free bread, but the Tinkyada rice pasta is excellent, if your family likes spaghetti. If they're hot cereal fans, try some of the other grains--buckwheat, quinoa, there are others. If they were used to cold cereal for breakfast, Corn Chex and Rice Chex are gluten-free. I will briefly say that if you truly have hypoglycemia issues, you should phase out a lot of the 'simple' carbs--the sugars, and the highly-starchy things like corn, rice and potatoes, out of your diet, because they make the blood sugar swings worse. But that is a whole other topic, and you want to tackle one major change at a time! So, for the hypoglycemia, start with one basic rule--whenever you (or they) eat, you should include some protein, even if it's just a handful of nuts along with a snack. That will help smooth their blood sugar out.

As for withdrawal symptoms, some people have them and some don't. I did, with a vengeance. 48 hours after I went gluten-free, I woke up and discovered I was so exhausted I couldn't walk more than about 30 feet without stopping to rest and catch my breath. I finally decided to taper off. I ate half a slice of bread every time the symptoms came back, which turned out to be about every 36 hours. I did that maybe three times, and then I was fine.

So, genuine withdrawal symptoms do occur, and I don't see anything wrong with doing a gluten taper to deal with them. But if you are thinking of the hypoglycemia as a withdrawal symptom, it is not. It just means you need to replace the missing gluten with some other sources of carbs.

As for getting your kids on the bandwagon, that's tough. How old are they? You are not going to be able to control what the kids eat who are in school. They are going to have to understand why they need to eat differently and what the health consequences are; if they are not willing to change, they can always get other food from their friends or from the vending machines or the cafeteria.

WW340 Rookie

It is not unusual to feel hungry on the gluten-free diet initially. To counter act that and any hypoglycemia you need to add more protein to the diet. The hunger will go away once your body adjusts. In the meantime you need loads more protein for the body to feel satisfied.

Eat more frequently throughout the day and add which ever of the following you and your family can tolerate - eggs, cheese, peanut or other nut butter, nuts, tuna, meat for between meal snacks.

I would concentrate first on what you and the kids are eating at home, and get the gluten-free routine at home down, then work on the kids diet outside the home. It will all get easier as time goes on. You need to be feeling better before you take on too much.

Happyw5 Explorer

I just wanted to say, I think the udis bread is very good. I always grill or toast it, but it tastes good enough for my children to like it (and they only like wonder bread)... Also I have had really good luck with bobs red mill all purpose flour...When I make choc chip cookies(I follow the recipe on the back of toll house), I just sub that flour and add a teaspoon of xanthum gum, and I throw in a cup of chex (corn or rice) in and they taste better then gluten cookies. Good Luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.