Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thryoid Question


nuttmegs17

Recommended Posts

nuttmegs17 Apprentice

Royal Jelly huh? Haven't heard of that - what does it do? What is it exactly? I'm definitely interested

I'm eager to be gluten-free and am counting down the days until that produre is over. eating that way in addition to the supplements (Trying antioxidant/mutli from DR. Weil and a Krill Oil with Evening Primose from Dr. Mercola, in addition to Emergen C and, for now, an Iron supplement....when I can go to eating lean proteins veggies, and not worrying about Gluten, I have a feeling my energy will sky rocket.

I hope you find relief with the thryoid dosage. I wish it wasn't a battle for you to be treated. Based on what Im reading, I'm feeling very grateful that I've found at least one doc who seems to "get it". I believe integrated mds are def the way to go.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 52
  • Created
  • Last Reply
cassP Contributor

Royal Jelly huh? Haven't heard of that - what does it do? What is it exactly? I'm definitely interested

I'm eager to be gluten-free and am counting down the days until that produre is over. eating that way in addition to the supplements (Trying antioxidant/mutli from DR. Weil and a Krill Oil with Evening Primose from Dr. Mercola, in addition to Emergen C and, for now, an Iron supplement....when I can go to eating lean proteins veggies, and not worrying about Gluten, I have a feeling my energy will sky rocket.

I hope you find relief with the thryoid dosage. I wish it wasn't a battle for you to be treated. Based on what Im reading, I'm feeling very grateful that I've found at least one doc who seems to "get it". I believe integrated mds are def the way to go.

Royal Jelly- i think is from the Queen Bee... it is supposed to calm the Grave's antibodies. **if u have an allergy to bees- suggested to avoid it.

and Selenium helps both abs..

i got this info from the guys at:

www.greenmedinfo.com

they compile hundreds of medical articles- so u can search for a disease or supplement and come up with a bunch of studies relating to it.

i also read somewhere about a mushroom supplement that's supposed to calm an overactive immune system- but i cant find the link, and am kind of already overwhelmed with the $$$ of stuff i take already.

nuttmegs17 Apprentice

I know! The price of all these supplements are crazy! I will look into the royal jelly.

Looking forward to wed. ugh. I feel like crap and just want to get this over with. Cannot wait to go gluten-free at this point!

The cloudy/headedness is crazy. it's odd b/c I didn't really notice it as a symptom at first, and then went gluten-free... and now that I'm glutening up, I'm lightheaded/foggy/dizzy every day (thinking the hashi's plays a part but still)....again, cannot wait to be done with this

Whether it comes out positive or not, I think it's clear to me that I feel better without it

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,236
    • Most Online (within 30 mins)
      7,748

    Elaine Brostrom
    Newest Member
    Elaine Brostrom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      I just got my test results after a less than 2-week gluten challenge consuming about 5 g of gluten per day on average.  Anti tTG-IgA: <0.2 AU/ml (<8 is negative) IgA: 180 mg/dl (Reference range is 70-400) I previously had been on a gluten-free diet for around 3 years or so, with occasional cheating and not being strict about cross-contamination. I am however still suffering from the effects of the gluten challenge (food sensitivities, slight brain fog, weird stool, fatigue, swollen thyroid, bodyaches). Is this likely to be NCGS rather than celiac disease given the test results and my history? Note: I have one copy of HLA-DQ8.
    • trents
      How long have you been strictly gluten free? Certainly, it would be good to look into vitamin and mineral deficiencies and supplementation. The B vitamins, magnesium and D3 are all very important to neurological health. Unfortunately, it can be difficult to reverse gluten-induced neurological damage damage if it has gone on for a long time. 
    • nataliallano
      Thanks Trents I'm strict with my gluten-free diet now. I just don't feel any better. I'm going to get tested for vitamins and minerals to see if I need some supplements. For sure I got some damage that doctors call Menier's and the only way they treat it is with medicine that does damage my body more than it helps.   
    • Zuma888
      Thank you Scott for your helpful response! Based on this, would you say someone who is on a gluten-free diet - but not strict about cross-contamination and occasional cheating - and tests negative for tTg-IgA while having normal total IgA is not likely to have celiac, even if they have been 'gluten-free' for years?
    • Scott Adams
      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
×
×
  • Create New...