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On The New Diet


Pokerpro

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Pokerpro Rookie

Hello, I just have a couple question that hopefully some of you can help me with, I recently had a few trips to the ER, but think i got my head on str8 now and lucky for me one of the docs at the ER was nice enough to tell me I may have Celiac disease... I been having strange stool movements since 2007, and the weight loss finally got to me... So I went to trader joes and since the 22nd of march i been (hopefully) gluten free, and the last like 5-6 days in a row ive had morning bowel movements for the first time in like 3 1/2 years... It feels wonderful mentally i must say... at the begining i still was consuming lactaid which is loctose free milk and had some think thin bars witch contained milk etc, and have removed all dairy as well, and symptoms seem to be even better...

Is there even more of a strict diet i should follow? like i bought some corn tortilla's from Trader Joes says gluten free on them, and i ate some of the larabars, but i noticed my stools to have like lots of nut particles or possibly the corn tortilla particles in it, does that mean i should avoid those items also.. Just wondering if my body can heal better with just eating meats veggies fruits.. I do get more or less gas and bloating, but i been dealing with this for years so its tough for me to gauge how strict to make my diet because im immune to the pain i guess...

Lastly ive noticed an occasional string like substance in toilet, its transparent and looks more like a string of fat then any parasite and it floats to the top, anyone know if its in fact fat? Could also be why i lose weight i dunno, im sure i also have calcium and mag deficiency, but just curious if that means i need to avoid fatty meats also, i hope not, i think i need red meat :)


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mushroom Proficient

Hello, and welcome to the forum, Pokerpro.

Yes, it certainly sounds like your ER doc was on the right track, even if he didn't think to run the test for you. Your symptoms are pretty classic gluten intolerance. I can tell you have been doing a bit of reading up :D since you are almost sounding like a Celiacpro already.

Firstly, the lactose. Yes, the gluten destroys the villi which make the lactose to digest the milk sugar lactase. So until your villi heal you should avoid lactose. You may be able to tolerate some cultured dairy product like yogurt or hard cheese where the enzymes used in production have predigested most of the lactose for you. Eliminating lactose was a good move.

Secondly, undigested food in stool. This just means that your digestive system is not working properly because you have been starved of nutrients for three years due to lack of absorption. Your pancreas is probably not working too well and not putting out the digestive enzymes (that's where most of them come from) which will allow you to complete the digestive process. Most of us need to take a digestive enzyme supplement initially (and sometimes for quite a while) to help the pancreas out.

Thirdly, string-like substance in stool. This could possibly be fat or mucous, and is related to No.2, poor digestion of food. Fatty things always float. Once you get the digestive system working properly this should go away. Now in order to heal your small intestine and get the digestive process back to normal, you will probably need probiotics. Yogurt is a good probiotic if you tolerate it. If not,or even if you do, you will want to buy a supplement. These can be bought in capsule form (make sure that this is gluten free, your digestive enzymes also). This does not mean that you should avoid meat or fat, but you should eat good fats (olive oil, avocado, nuts, and you will probably need the iron from red meat so don't give that up.

Yes, a diet of whole, unprocessed foods is the way to go to start off. Things that are easy to digest to start with, like chicken, fish, veggies, fruits, rice, nuts, seeds, maybe a little gluten free pasta (try Tinkyada - most seem to like it). Possibly some Udi's or Rudi's bread, but do not go overboard with the processed gluten free stuff. And avoid the junk food - you need as much good nutrition as you can get. Try some nut butters. I would not try too much raw food at first - cooked foods are easier on the stomach, raw = harder to digest.

I presume you have done some reading on here on gluten avoidance and deglutenizing your kitchen. If you need help with this, let us know.

Isn't it wonderful to be feeling better? Fire away with any questions you have. :)

Pokerpro Rookie

Mushroom, i am taking all your advice :P, although ive read about most of all this info its so nice of you to give me direct advice per my situation, its beyond helpful.. Yes i do feel so much better just to be on the right track..

Im going to do some more research for supplements for digestive enzymes, but do you have any particular one (brand name)in mind that I should just buy.. Do i need multiple bottles of enzymes for diff food types? (ill look into this also)..

I did just purchase a bottle of Sundown naturals calcium 600mg pills as well as magnesium 250mg, both bottles say gluten soy dairy free etc.. But i assume that these pills aren't to useful till i get the enzymes.. I need these pills since ive cut dairy out, but ill give yogurt a shot... i heard garlic was good also, ill prob rub down some steaks with it before cooking.

O i almost forgot, are eggs a bad idea? Or is that another thing where i test out my sensitivity similar to yogurt? I just bought a whole mess of cooking things :P gunna test em out..

mushroom Proficient

The main brand of enzymes I use is Ultlra-Zyme by Nature's Plus. It contains all the enzymes, plus Acidophilus and Bromelain. You don't need anything else - it has it all. :) I have also usedNutriVitamin Enzyme Complex, but I think that is marketed through naturopaths by Integrative Therapeutics. It is more of an all-round supplement.

Before you go buying a whole bunch of supplements you really need to find out what nutrients you are deficient in. Common deficiencies for celiacs are vitamins A, B12, D, E and K, also folate (B6), and minerals calcium, magnesium, zinc, iron/ferritin. Many of these need to be taken in combination for maximum effectiveness. Do you have a PCP who can order these tests for you?

Eggs are a very individual thing and yes, you should challenge and see how you react. Don't eat them for a few days and then have a couple for breakfast. That should do it.

Pokerpro Rookie

Awesome i will get some ultra-zyme it looks perfect. I dont have health insurance but i do see a free doctor in a little over a month for a follow up, its all free follow up from the ER, he ordered some blood test just for internals nothing else and on the 14th i go to get xray on my stomach.. But with the info i have now ill try my best to convince him to give a test for deficiencies, but the reality is they are unlikely to do it for me..

I bought calcium and mag, because i rarely eat cheese or dairy because of gas for past few years, but i just thought it was completely necessary to get these two to go with my balanced diet.. I take a multi vite along with those, do you think this will be ok with ultra-zyme in the mean time? Ill push the doc to help with testing and just hope for the best..

Pokerpro Rookie

Hey mushroom, if you get another chance to respond, I purchased acti-zyme instead of ultra-zyme got confused at the store and got this one cause it said gluten free on the bottle, this should be fine right?

Also just actually thought about toothpaste, im kind of amazed not too much info in gluten free toothpaste, yet its seems rather important.. I use crest, do you have any info on which is bad and good, otherwise i must get on emailing them... thanks for the help bud ;)

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    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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