Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

"but You Only Have 'borderline' Gluten Intolerance!"

Pamela B.

By Pamela B.
in Coping with Celiac Disease

Recommended Posts

Pamela B. Apprentice
Pamela B.
Posted

Well, I did it again.

I went to Chipotle and didn't want to embarrass myself by asking them to change gloves for me since it was busy, so I ordered a burrito bowl like normal. Everyone's been telling me I need to not worry about cross-contamination because my test results said I "only have a borderline gluten intolerance", even though my gut (pardon the pun, haha) feeling has always been to be just as strict as someone with celiac disease. You would have thought that I would have learned my lesson last time about being careless with my eating, but noooooooo.

Hello once again, chronic fatigue flareup times 10.

I was kind of thinking that the first time MIGHT have been just a fluke, but now I know without a shadow of a doubt that it wasn't. I always have fatigue issues, but never this severe, except for these two times where I had not been careful with my eating the day before.

I HATE THIS CRAP. Really, really hate it. I hate having to watch what I eat all the time and having to avoid everything containing a key staple of the American diet.

Hugs would be very welcome right about now. ._.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


krystynycole Contributor
krystynycole
Posted

If I knew where you were I would hug you! I definitely hear ya! I feel like if I had some sort of other food issue, such as peanuts, it would be better---like people would take me more serious and not be such a "burden" on them.

**HUGS**

ravenwoodglass Mentor
ravenwoodglass
Posted

Well, I did it again.

Everyone's been telling me I need to not worry about cross-contamination because my test results said I "only have a borderline gluten intolerance", even though my gut (pardon the pun, haha) feeling has always been to be just as strict as someone with celiac disease.

((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))

Being a 'borderline gluten intolerant' person is kinda like being a 'little bit pregnant'. Your gut instincts have turned out to be correct. Sorry you are feeling so badly and I hope it passes soon. Sometimes we have to let our body tell us how sensitive we are before we really know.

cahill Collaborator
cahill
Posted

(((HUGS))) to you :)

Judyin Philly Enthusiast
Judyin Philly
Posted

{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

I have gone from 5 years gluten-free and now told gluten intolerant also and this fatigue is reallying getting me

I know we should just listen to our bodies.

fatigue and depression seem to be my side effects now as the dx of MC treated with asacol took care of the digestive issues

good luck

cassP Contributor
cassP
Posted

oh u r not alone!! I feel the same as u- 1/2 the time i ask them to change their gloves, and then other times im too embarrased. Cant tell if ive ever had cc cause i also get similar symptoms w/ fructans and if i overdo the peppers and onions, im in trouble. Dont beat on urself *hugs*

T.H. Community Regular
T.H.
Posted

Hugs and a big chocolate chip gluten-free cookie!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Pamela B. Apprentice
Pamela B.
Posted
  • Author

If I knew where you were I would hug you! I definitely hear ya! I feel like if I had some sort of other food issue, such as peanuts, it would be better---like people would take me more serious and not be such a "burden" on them.

**HUGS**

I'm in the Kansas City area, but e-hugs are just as welcome! Thank you! *hugs back*

I have massive issues with being a burden on people. That, right there, is the biggest issue I am having with this diet. I'm high-functioning autistic and I was always made to feel like I was a burden on others while I was growing up. I tore myself to pieces trying to "learn how to be normal" to the point to where it's not that noticeable anymore, but it's really messing me up to think that I may have to deal with this all over again.

Pamela B. Apprentice
Pamela B.
Posted
  • Author

((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))

Being a 'borderline gluten intolerant' person is kinda like being a 'little bit pregnant'. Your gut instincts have turned out to be correct. Sorry you are feeling so badly and I hope it passes soon. Sometimes we have to let our body tell us how sensitive we are before we really know.

This is a very good analogy! Thank you! *hugs*

Pamela B. Apprentice
Pamela B.
Posted
  • Author

(((HUGS))) to you :)

Thank you! *hugs back!*

Pamela B. Apprentice
Pamela B.
Posted
  • Author

{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

I have gone from 5 years gluten-free and now told gluten intolerant also and this fatigue is reallying getting me

I know we should just listen to our bodies.

fatigue and depression seem to be my side effects now as the dx of MC treated with asacol took care of the digestive issues

good luck

*hugs* Glad you were at least able to get the digestive issues taken care of!

Pamela B. Apprentice
Pamela B.
Posted
  • Author

oh u r not alone!! I feel the same as u- 1/2 the time i ask them to change their gloves, and then other times im too embarrased. Cant tell if ive ever had cc cause i also get similar symptoms w/ fructans and if i overdo the peppers and onions, im in trouble. Dont beat on urself *hugs*

I'm glad I'm not alone, but I'm sorry you have to deal with this, too. It sucks. *hugs*

Pamela B. Apprentice
Pamela B.
Posted
  • Author

Hugs and a big chocolate chip gluten-free cookie!

Yum! Thank you very much! *hugs back*

kareng Grand Master
kareng
Posted

I'm in the Kansas City area, but e-hugs are just as welcome! Thank you! *hugs back*

I have massive issues with being a burden on people. That, right there, is the biggest issue I am having with this diet. I'm high-functioning autistic and I was always made to feel like I was a burden on others while I was growing up. I tore myself to pieces trying to "learn how to be normal" to the point to where it's not that noticeable anymore, but it's really messing me up to think that I may have to deal with this all over again.

Hug from Leawood!

I hate to be a burden on people but I'm finding that lots of people don't mind being a burden on me! I think in the end it evens out.

srall Contributor
srall
Posted

Hug from Leawood!

I hate to be a burden on people but I'm finding that lots of people don't mind being a burden on me! I think in the end it evens out.

True that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,075
    • Most Online (within 30 mins)
      10,442
    Nan7472
    Newest Member
    Nan7472
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
    • Aretaeus Cappadocia
      Terrible Neurological Symptoms

      By Aretaeus Cappadocia · Posted

      You have an odd story there. To me, the mechanical trigger suggests a mechanical problem and lower leg pain is a classic sciatica symptom. The fact that the clear mechanical linkage is no longer there does not take away from the fact that it was - maybe something shifted and the simple alignment is no longer there. There's also a good chance I am wrong and it's something else entirely. @Scott Adams's mention of shingles is interesting. It seems possible but unlikely to me, but who knows. However, I am writing here to reinforce the idea of getting the shingles vaccine. Ask anyone who has ever had shingles and they will bend your ear telling you how bad it is. I watched my wife go through it and it scared the bejeebers out of me. Even if you had the chicken pox vaccine, you really want to get the shingles vaccine.
    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Oddly this effect has gone now, just happened yesterday evening, the nerve pain is now back to its usual "unpredictable" random self again - but that was the only time I ever had some mechanical trigger for it, don't know why! There's no (or wasn't) actual pain in my neck - it was inside the leg, but when I looked down, now though, the leg pain just comes and goes randomly as before again.
×
×
  • Create New...