Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Got Glutened For The First Time...


Pamela B.

Recommended Posts

Pamela B. Apprentice

I think I know what it feels like to be glutened now, after 3 weeks on the gluten free diet.

I went to Jose Peppers (Mexican restaurant) Friday night for a coworker meetup. First time at a restaurant since going gluten free. I had called ahead of time, they told me they had a gluten free menu, I requested it when I got there, and I ordered off that menu. So far, so good. When I got my food, there was some sort of "cornmeal ball" on the side. I have no idea if there was flour in it or not. I just had one of my coworkers transfer it to her plate and then ate around it. Then I noticed it was all over the bottom of my enchilada. I ate it anyway.

I was ok on Saturday. Went to an organic food expo that morning and met up with some friends while there. They wanted to go eat at a Mediterranean buffet.

Big mistake.

Against my good judgment, I went. I took the buffet and stuck to the plain rice, the rice pudding, and some curry dish.

Yesterday morning, I had what felt like a fatigue flareup times 10. I could barely function. I managed to fight through it and get some stuff done, but it was REALLY bad and I think I'm still feeling the effects of it today.

At least now I know that I'm on the right track with this diet. Ugh.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zus888 Contributor

As you know, I just had the EXACT same thing happen to me. It lasted about 4 days. I noticed the effects the evening after my lunch glutening. The following 3 days were horrible. So horrible, I sought help from my PCP and considered seeing a therapist for my depression. Then, on day 5 I woke up feeling normal again.

I still don't know if it was for sure a glutening or just the ups and downs of the diet, but my gut is telling me it was from gluten. I've had issues with fatigue before, but this was a whole other animal. I'd say just a couple steps shy of how fatigued I felt when I had mono, which was the King of Fatigue.

Mack the Knife Explorer

Yep. I get that kind of reaction a lot to a minor glutening. Fatigue, kind of achey, slightly nauseous, can't concentrate, really dysfunctional, etc.

Buffets are kind of dangerous. There is lots of potential for cross contamination. People use the serving utensils from the pasta salad for the plain rice or they drop bits of tabbouleh into other dishes as they serve themselves.

The curry might not have been gluten free. Traditionally most curries should be gluten free and if you were eating at a decent Indian restaurant it probably would have been. However, some cheap brands of spice mixtures (ie garam masala, curry powder, panch phoram, etc) use wheat as a cheap filler. I think a curry in a buffet would be quite likely to be guilty of this. It is also possible that the rice pudding may have used a flavour or sweetener that had barley in it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.