Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Achiness/fatigue


tammy

Recommended Posts

tammy Community Regular

Does anyone else experience fatigue and achiness in the morning? The achiness is inconsistent but the fatigue is more frequent. Each day I keep a journal and make mental notes of how I can feel better. The fatigue is getting much better now. :lol: Yet sometimes I am achy in the morning, and I am just not sure why. Although I am not allergie to nuts, I did eat a very generous portion of nuts before bed the other night. The next morning I felt so achy. So I am on yet another mission. I will rotate my diet and exclude nuts for a few days. My menu options are limited, but there is only so much one can do with their vegetables :P I make a point to eat fresh green salads, cucumbers and peppers. I eat low carb and so nuts are my treats.

Can anyone relate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest dlf1021

tammy-

i can relate to both of those, though i'm still searching for answers. i often wake up in the morning with a terrible back ache, but i haven't determined whether it's a problem related to celiac or just a too-firm mattress.

as far as fatigue, it seems as though i'm just always tired. the morning is generally worse, as are times when i ingest gluten. i can always tell almost immediately whether i've contaminated my system because within an hour i'll more or less fall asleep where i stand. i doubt your fatigue is due to gluten ingestion though.

Lily Rookie

I get the achiness and tiredness. My joints will inflame something terrible along with muscle aches at times. For me, this is my signal that I've picked up gluten somewhere. After I've accidentally ingested, I'll start the aches a few days later and it will last 2-3 weeks. My doc says these are classic celiac symptoms, because when we ingest that poison, it attacks our joints. I eat nuts too, but make sure I get them from the health food store. I haven't found one I can tolerate that has been processed/canned. What about salad dressing? You say you have a lot of salads. I use Annie's Naturals, but I have found I also feel better when I make everything myself.

Good luck Tammy!

Lily

seeking-wholeness Explorer

tammy,

What brand of nuts did you eat? I (and my baby) have reacted to Planter's dry-roasted unsalted peanuts, so I am having a hard time trusting nuts right now.

I also tend to wake up fatigued with an achy torso, especially if I have recently had an "accident." I have noticed that the aches are much worse if I roll onto my back as I sleep, so I try to stay on my side as much as possible.

The morning fatigue has been improving fairly steadily since I went gluten-free, most likely assisted by the porcine thyroid supplement my naturopath put me on. I was on it before I went gluten-free, too, but it didn't work at all until my antibody levels started going down (at least, I'm assuming that they have gone down :) ). Do you track (or even spot-check) your basal temperature? If it's low (below 97.8, if I'm remembering correctly), you might want to look into some form of thyroid supplementation. (Or are you already being treated for hypothyroidism? I can't remember....)

I hope you can track down the reason for your troubles, so you can start feeling better. Good luck!

gf4life Enthusiast

Hi Sarah,

Do you know if the low basal temp. is the same for children? Could it be a thyroid problem in a child (age 7)? I chart my son's temp. daily at least 3 times and he is often below 97.8, and after a high fever episode (he has a recurrent fever syndrome of some sort) his temp drops down to 96 and sometimes as low as 94.9. Scares me a lot. The doctors don't seem to pay much attention to it when I show them the chart, but he is now seeing a rheumatologist/infectious disease specialist that is running a bunch more tests on him. He also has joint pains and often is very achy and tired in the mornings and doesn't want to get up for school. When I do get him up he is very grumpy.

Do you think it might be thyroid related? I am hoping that it will get better as soon as I can get him feeling good on the gluten-free/casein-free diet. His fat malabsorbtion was 272, which is borderline normal(normal is less than 300), but seems a lot for a child so young. He does not eat a super high fat diet, so I don't know why it would be so high. Mine was 54, my 9 year old was 55, and my 4 year old was 148 (which I also think is high). Anyhow, let me know what you think. I know you like to do research like I do, but I am at a loss with him, (at least until the test results come back and point me in a new direction!)

God bless,

Mariann

seeking-wholeness Explorer

Mariann,

I would look into thyroid testing, if he were my child. I seem to remember reading that celiac disease-related antibodies can cross-react with thyroid tissue, leading to decreased thyroid function. I'm sure most doctors would assume that there hasn't been enough time for significant damage to occur in your son, but given that he seems to have TWO potentially serious/lifelong conditions, I wouldn't rule out the possibility. His body must certainly be under an astonishing amount of stress just dealing with daily functioning, and as we humans are finally learning, stress can compound ANY health problem!

OK, I just searched for the article I read, and my memory was a little bit off (the article I was remembering pertained to the PARAthyroid gland). I DID find this article abstract here on the site, though, which you may find interesting.

I hope the gluten-free/CF diet works its magic for your son and that his doctors can actually figure out what exactly is causing his fever disorder. Good luck to you both!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.