Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

An American Celiac In Germany?


Mara10

Recommended Posts

Mara10 Newbie

After two separate tests done on myself, I'm pretty sure I'm gluten intolerant, if not Celiac. I've spent my teenage through now years searching for the Holy Grail of Energy. My young alcohol and drug free life was ruined by a constant drugged out and exhausted feeling. I have been painfully thin my entire life, and eating massive amounts of calories never did a thing (trust me, my grandmother tried to fatten me up). I am also constantly anemic.

Last summer, aged 22, I went into the clinic for some bloodwork because my condition was baaad. I was sitting on the couch barely conscious every day and felt like death. The results came back with nothing wrong with me except massively high levels of white blood cells and low platelets. "You have an allergy" she said. "Its either that or cancer. Doubt it." She told me to come back if I was still feeling bad. I didn't because visits to her are expensive.

So recently I left for Germany in order to find a job in my field. I started to feel really exhausted at work every day, and didn't want to be making a bad impression on them. Germany happens to have been feeding me a lot of pretzels, beer, bread coated meats, and great pastries. So in my searches for things that cause exhaustion and brain fog, I found gluten intolerance. I tried the diet for one week, and felt a little better, but not enough to convince me, so I had pasta for dinner.

I was a bag of migraine, groaning stomach, confusion, brain fog, and weakness for the rest of the day. This all started within an hour of eating the pasta. So I went another week and a half on the diet, adding vitamins to help me heal. Still was not feeling great, and then was feeling worse. So I tried to retest myself by eating a handful of cereal. The previous test's results did not happen again, but for the next three days after the handful of cereal my insides turned to painful mush. I also now get headaches within minutes of drinking or eating lactose.

I realized my vitamins had gluten in them, so I've switched to gluten free ones. I mean glutenfrei, which I scoured the stores for. My job here pays almost nothing, so I stick to fresh produce from produce markets, which is really cheap here. (5 Euros for a week's worth of fruits and veggies is great!) I've also cut out coffee, which is said to inhibit iron absorption.

I'm incredibly new to this. Basically my life has flipped upside down within a month. On top of that, I'm in a foreign country working for the first time, and I'm completely alone. Most of my coworkers have heard of gluten intoleranz, and all of the stores carry glutenfrei products, but they are expensive.

I suppose it doesn't quite seem worth it to test for Celiac, obviously eating gluten affects me violently enough that I'm not going to touch it anymore. I'm not going to suffer for (two months?!) on gluten just to get positive blood results for a condition who's "cure" I'm already following. For now I'll call myself gluten intolerant, but its possible I'm Celiac.

I'm infinitely grateful that this forum exists, and that everyone here is supportive and willing to offer their stories. Much love.

-Mara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

I'm sorry you're not feeling well and that you're in a new country without a support system.

I use these dining cards in foreign restaurants in the US. They're free and they have cards in German. Open Original Shared Link

This board has an International forum with a search function. I found this advice: I recommend you to get in contact with the "Deutsche Z

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.