Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me To Understand My Symptoms


jorge0464

Recommended Posts

jorge0464 Rookie

Hi all,

Thanks for your time and help. I am desperado and it is the reason because I am posting. I have what I believe is a severe malabsorption because I can see undigested food in my stool, have non-stopping loud bowel sounds after eating, abdominal cramps, dry skin, lines on my nails, random muscle tics around my body and large amount of stool. I was tested for Celiac in blood and had intestinal biopsy that were negative but the visual report in my endoscopy suggested Celiac because they could see damage. I have been totally gluten free at least there are gluten sources that I don't know. The fact is I don't see any turn over yet. I have been more strict with my diet since only one month, before, I ate outside sometimes and I really don't know if CC could happen. Anyway, my question for you is if my symptoms are familiar with you, specially large amount of feces and bowel noises. I know the villi will take time to regrowth. How long does it was for you to feel normal again ??

Thanks for any help.

Jorge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knivhoj Newbie

Hello,

I fully understand if you are getting desperate, apparently the digestive tract is a complicated thing, and doctors seems to know very little about it. Your story sounds very much like mine, so let me tell you my experience, and then you can see, if there is something that sounds familiar to your situation.

Four years ago, I was treated with antibiotics (Amoxicillin and Cipro). My diverticulitis went away and the treatment was considered a success by my doctor. To me, it was a disaster. I developed intolerance to gluten and six months later, I was unable to digest all types of starch, and I had several food allergies. Like you, I saw undigested food in the stool, dry skin, loud bowel sounds, gas, bloating, lines on my fingernails and large amount of stool. I had candida infection in my mouth and several other places on the skin, so my doctor suggested a treatment (Diflucan and Nystatin). It helped in the mouth and on the skin, but had no effect in the guts. Syclovir and ThreeLac had no effect either. My stool turned yellow and contained a lot of fat.

After two years of being gluten free, my doctor did the blood tests for celiac and also did a biopsy. Both were of course negative, but an apirate taken from the small intestine showed a bacterial overgrowth. It's all friendly bacteria, but they should not be in the small intestine. The cure is more antibiotics, and trust me, I was really scared of candida, when I started the treatment. I bought lots of probiotics to take during and after treatment. The treatment worked wonders, and the new candida infection on my skin was treatable.

Many doctors are using a simple Hydrogen Breath Test to diagnose a bacterial overgrowth, but beware, celiac or gluten intolerance may give a false positive result in this test.

I just recently did a gluten tolerance test for a blood test for celiac. The result was negative, but the effect of gluten in my body was very strong, so I have an official diagnosis of non celiac gluten intolerance. The interesting thing is, after ingesting gluten for four weeks, I again see the signs of a bacterial overgrowth in my small intestine, and antibiotics have once again become necessary. I hope this will be of some kind of help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,993
    • Most Online (within 30 mins)
      7,748

    Tchudi
    Newest Member
    Tchudi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.