Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me To Understand My Symptoms


jorge0464

Recommended Posts

jorge0464 Rookie

Hi all,

Thanks for your time and help. I am desperado and it is the reason because I am posting. I have what I believe is a severe malabsorption because I can see undigested food in my stool, have non-stopping loud bowel sounds after eating, abdominal cramps, dry skin, lines on my nails, random muscle tics around my body and large amount of stool. I was tested for Celiac in blood and had intestinal biopsy that were negative but the visual report in my endoscopy suggested Celiac because they could see damage. I have been totally gluten free at least there are gluten sources that I don't know. The fact is I don't see any turn over yet. I have been more strict with my diet since only one month, before, I ate outside sometimes and I really don't know if CC could happen. Anyway, my question for you is if my symptoms are familiar with you, specially large amount of feces and bowel noises. I know the villi will take time to regrowth. How long does it was for you to feel normal again ??

Thanks for any help.

Jorge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knivhoj Newbie

Hello,

I fully understand if you are getting desperate, apparently the digestive tract is a complicated thing, and doctors seems to know very little about it. Your story sounds very much like mine, so let me tell you my experience, and then you can see, if there is something that sounds familiar to your situation.

Four years ago, I was treated with antibiotics (Amoxicillin and Cipro). My diverticulitis went away and the treatment was considered a success by my doctor. To me, it was a disaster. I developed intolerance to gluten and six months later, I was unable to digest all types of starch, and I had several food allergies. Like you, I saw undigested food in the stool, dry skin, loud bowel sounds, gas, bloating, lines on my fingernails and large amount of stool. I had candida infection in my mouth and several other places on the skin, so my doctor suggested a treatment (Diflucan and Nystatin). It helped in the mouth and on the skin, but had no effect in the guts. Syclovir and ThreeLac had no effect either. My stool turned yellow and contained a lot of fat.

After two years of being gluten free, my doctor did the blood tests for celiac and also did a biopsy. Both were of course negative, but an apirate taken from the small intestine showed a bacterial overgrowth. It's all friendly bacteria, but they should not be in the small intestine. The cure is more antibiotics, and trust me, I was really scared of candida, when I started the treatment. I bought lots of probiotics to take during and after treatment. The treatment worked wonders, and the new candida infection on my skin was treatable.

Many doctors are using a simple Hydrogen Breath Test to diagnose a bacterial overgrowth, but beware, celiac or gluten intolerance may give a false positive result in this test.

I just recently did a gluten tolerance test for a blood test for celiac. The result was negative, but the effect of gluten in my body was very strong, so I have an official diagnosis of non celiac gluten intolerance. The interesting thing is, after ingesting gluten for four weeks, I again see the signs of a bacterial overgrowth in my small intestine, and antibiotics have once again become necessary. I hope this will be of some kind of help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    2. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    4. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,460
    • Most Online (within 30 mins)
      7,748

    Jujuzinha
    Newest Member
    Jujuzinha
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.