Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me To Understand My Symptoms


jorge0464

Recommended Posts

jorge0464 Rookie

Hi all,

Thanks for your time and help. I am desperado and it is the reason because I am posting. I have what I believe is a severe malabsorption because I can see undigested food in my stool, have non-stopping loud bowel sounds after eating, abdominal cramps, dry skin, lines on my nails, random muscle tics around my body and large amount of stool. I was tested for Celiac in blood and had intestinal biopsy that were negative but the visual report in my endoscopy suggested Celiac because they could see damage. I have been totally gluten free at least there are gluten sources that I don't know. The fact is I don't see any turn over yet. I have been more strict with my diet since only one month, before, I ate outside sometimes and I really don't know if CC could happen. Anyway, my question for you is if my symptoms are familiar with you, specially large amount of feces and bowel noises. I know the villi will take time to regrowth. How long does it was for you to feel normal again ??

Thanks for any help.

Jorge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knivhoj Newbie

Hello,

I fully understand if you are getting desperate, apparently the digestive tract is a complicated thing, and doctors seems to know very little about it. Your story sounds very much like mine, so let me tell you my experience, and then you can see, if there is something that sounds familiar to your situation.

Four years ago, I was treated with antibiotics (Amoxicillin and Cipro). My diverticulitis went away and the treatment was considered a success by my doctor. To me, it was a disaster. I developed intolerance to gluten and six months later, I was unable to digest all types of starch, and I had several food allergies. Like you, I saw undigested food in the stool, dry skin, loud bowel sounds, gas, bloating, lines on my fingernails and large amount of stool. I had candida infection in my mouth and several other places on the skin, so my doctor suggested a treatment (Diflucan and Nystatin). It helped in the mouth and on the skin, but had no effect in the guts. Syclovir and ThreeLac had no effect either. My stool turned yellow and contained a lot of fat.

After two years of being gluten free, my doctor did the blood tests for celiac and also did a biopsy. Both were of course negative, but an apirate taken from the small intestine showed a bacterial overgrowth. It's all friendly bacteria, but they should not be in the small intestine. The cure is more antibiotics, and trust me, I was really scared of candida, when I started the treatment. I bought lots of probiotics to take during and after treatment. The treatment worked wonders, and the new candida infection on my skin was treatable.

Many doctors are using a simple Hydrogen Breath Test to diagnose a bacterial overgrowth, but beware, celiac or gluten intolerance may give a false positive result in this test.

I just recently did a gluten tolerance test for a blood test for celiac. The result was negative, but the effect of gluten in my body was very strong, so I have an official diagnosis of non celiac gluten intolerance. The interesting thing is, after ingesting gluten for four weeks, I again see the signs of a bacterial overgrowth in my small intestine, and antibiotics have once again become necessary. I hope this will be of some kind of help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    2. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

    3. - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

    4. - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,185
    • Most Online (within 30 mins)
      7,748

    JudahS
    Newest Member
    JudahS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
    • RMJ
      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
    • FannyRD
      Thanks for the resource! I will check it out!
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.