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On The Road To Being Misdiagnosed And Frustrated.

Jaymes805

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Jaymes805 Newbie
Jaymes805
Posted

So I've had a lifetime of stomach issues after eating such as bloating, cramps, acid reflux, diarrhea, constipation as well as migraines, bronchitus all the time, strep throat every few months, a stuffy nose, sore joints, vertigo, the inability to gain weight growing up, the inability to lose weight now, I'm tired all of the time, moody, the list goes on and on. I was told by some friends who have Celiac that I NEED to get tested. After this suggestion, I started researching. A lot. And every time I saw a symptom, I thought 'THAT'S ME!' I had gotten to the point where I started thinking all of this was normal and that I just had a low immune system but after researching, I figured maybe not. So I got tested.

...and my blood tests came back negative. I did have some vitamin deficiencies and my WBC was low but in the long run, no sign of celiac or gluten allergy. I have read that blood tests aren't always accurate so when I had my appointment with my doctor today, I figued after my extensive list of symptoms that he would order a small intestinal biopsy. But nope. He talked to me about my issues and apparently the only thing he heard was 'acid reflux'. He referred me to a specialist for an esophagus endoscopy and gave me a prescription for an antacid..which I take when needed anyway.

Should I go to the specialist and see if he does any tests other than an acid reflux test or should I go get a 2nd opinion from a doctor? Not sure where to go from here, I just feel like I'm on the road to being misdiagnosed.. or just diagnosed for a symptom that I already know I have that may be related to a gluten allergy.

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kareng Grand Master
kareng
Posted

Go to the GI. Tell him/her your issues. If they are going to do an endo they might as well biopsy while they are in there.

Jaymes805 Newbie
Jaymes805
Posted
  • Author

Thank you for the quick reply. I was thinking the same thing, just wanted opinions. :)

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