Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain/swelling - Elimination Diet


PBJMD

Recommended Posts

PBJMD Newbie

Hi everyone,

I am 31 and have been experiencing worsening joint pain, swelling, and stiffness in both hands, knees, feet, and TMJs for about 2 years. I was diagnosed with celiac in November and have been gluten-free ever since. Since my symptoms have persisted, I gave up dairy in April with no improvement. I then gave up nightshades, corn, egg, caffeine, and chocolate in May and still have noticed no improvement. Desperate to feel better, I started an elimination diet on July 1. I'm now on Day 8 and my symptoms - if anything - have gotten a little worse. Does anyone else have experience with arthritis and/or elimination diets? I know it's common to feel worse before you feel better on the elimination diet, but when should I start to feel better? Also, the diet wants me to start adding back potentially reactive foods (starting with lemons and limes) around Day 10. Should I do that even if I feel no better? I would be so grateful if anyone can offer any help as this has truly been crippling my life and I am very desperate to feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you on any medications or supplements? If so have you checked with the maker to be sure they are gluten free? If not you should do so. Note that some supplements can have wheat and barley grass and still be labeled gluten free so do read all ingredients on them.

It may not be the case for you but for me eliminating soy helped a great deal with joint pain and swelling.

You mention you are on an elimination diet, what form are you on? With my allergist guided elimination he started me off with only five different foods, nothing other than water as a beverage and designed my starting point to ensure that I had adaquate calories and nutrition. My starting point included only foods I very rarely ate as he said I would be less likely to react to them.

Also if you joint pain is related to celiac it can take some time to ease. In my case it was at least 2 or 3 months before I had any noticeable relief but others might notice relief sooner or even later than that.

Do be sure to take the precautions you need to at home, new toaster, strainer, replacing scratched non-stick pans and wooden cutting boards and utensils. Don't bake with wheat flour for others as it will be airborn and can CC you that way. It would also be a good idea to make sure that all toiletries are gluten free.

Hawthorn Rookie

Have you looked into the anti inflammatory benefits of certain foods? I find oily fish very good for helping with joint aches and pains. If you google anti inflammatory diet there is a ton of information out there.

Good luck with the elimination diet :)

Beth C from MA Newbie

I had Rheumatoid Arthritis for two decades before my very recent Celiac diagnosis. From what I've researched and from other folks I know it seems that some people with arthritis and celiac do see some relief of their joint pain/swelling after going gluten-free. Others truly do have both conditions, which would not be unusual, since Celiac is an autoimmune disorder and so is arthritis. One person I know was diagnosed with Rheumatoid Arthritis and was fully symptomatic and taking several common R.A. medications. It took several months but after a while her R.A. symptoms subsided and she's now off all her medications. In other cases, though, the two conditions co-exist and the person truly does have both. Personally, I've only been gluten-free since 6/20/11 - much too early to tell but we shall see if there ends up being any connection for me or not.

Good luck in your efforts! Wishing you (and all of us) all the best on our journey to be as healthy as we can be.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.