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Just Startiing Out, Sort Of


Cpl.Klinger

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Cpl.Klinger Newbie

So, I've been feeling crappy for a long time now, and finally have been fed up enough about it to do something about it. About 4 years ago, I started having issues with hemorrhoids. I had an Upper GI/Colonoscopy to rule anything else out, and both were negative, save for a few polyps they took out that were all very small. That problem has continued, but it changed shortly after that. I have since had:

  • Horrifically bad gas, in volume and smell
  • Consistent stomach aches
  • Thin, pasty stools that explode to a cloud when flushing
  • Intermittent constipation (from going every day to 6 days between movements)
  • Headaches on a daily basis
  • Fatigue no matter how many hours I sleep
  • Irritability and mood swings
  • Generally haven't felt like myself
  • And the brain fog everyone mentions

I have also had hypothyroidism since 2004. I started on 75 mcg levothyroxine, but got moved up to 100 mcg on my last set of blood work.

So, I went for my normal yearly checkup two weeks ago, and gathered the courage to talk to my doctor seriously about what's going on. She was the one I saw originally over the hemorrhoids, and since things changed since then and I didn't really do any research on my own, I just went along with what she thought should be done. A year ago when I brought it up, she had me do stool samples and a full hepatic profile, but of course that didn't really show a whole lot. This year though, I came armed with research and info, and to my surprise, she was totally willing to listen and go along with what I thought should be done. No arguments. I could have died at how easy it was, based on some stories I've read lurking here.

So last week I had a whole lot of blood work done, including the tTG-IgA and the EMA-IgA. I think there was another one but can't for the life of me recall what it was. I also have a Gastro appointment Tuesday. I'm pretty much committed to doing the diet regardless of the results, as I tried it on my wife's suggestion about three months ago for a few weeks and noticed a difference within days on pretty much every symptom. My wife is going to do it with me (for support and to help her diet).

I'm grateful to have found this forum as I've been able to convince myself that this is more than just nothing, and it gives me hope to know that pretty soon, I'll be on the way to feeling a lot better. Once I have lab results, I'll definitely be back to post them.


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beachbirdie Contributor

I'm grateful to have found this forum as I've been able to convince myself that this is more than just nothing, and it gives me hope to know that pretty soon, I'll be on the way to feeling a lot better. Once I have lab results, I'll definitely be back to post them.

Hi, Cpl. Klinger (big M*A*S*H fan here!),

Welcome!

I do hope you will be feeling great soon, and that you get things sorted out okay. I can only say what many have said on this forum, if the diet is contributing to improved well-being, keep at it, it's worth it!

beachbirdie

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    • knitty kitty
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    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
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    • catnapt
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