Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going In For Child's Gi Appointment


Dave-KC

Recommended Posts

Dave-KC Newbie

We'll be going to a pediatric gastroenterologist in about a month for our (then) 15 month old. She's had a blood test that may indicate celiac.

We're preparing questions, but are interested in ideas to be prepared to ask the doctor. Any ideas?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

How many patients have you diagnosed with Celiac? How many biopsies of the small intestine will you take? Even if it looks good in there? Answer should be at least 6 and even if it looks good because it's hard to see with a scope.

Dave-KC Newbie

It's a Dr. at Children's Mercy, referred to us by our regular pediatrician. Just doing some quick research on the web indicates that he may be fairly new to the Kansas City area. I read a review with him in Omaha.

We'll be making a list to take along with us, as it's never fun to get to the Doctor, and then forget the questions you wanted to ask... :(

  • 1 month later...
Dave-KC Newbie

Well, we had our appointment yesterday with Dr. Seth Septer at Children's Mercy in KC. He was excellent, listened to us, asked lots of questions probing our daughter and her condition.

Her blood tests included three things, and my apologies for not remembering all of the test names. She was abnormal on one, and normal on two. The one she was abnormal on the Doctor said is the one that gives the most false positives. That and combined with her normal growth pattern, and lack of symptoms after the 8 day bought of diarrhea (and it's been 1 1/2 months since that bout) leads him to believe she does not have celiac. He said it's 90% likelihood that she doesn't have celiac.

Going forward, he wants us to watch for symptoms (diarrhea, vomiting), and then do her blood work again when she's two (she's 15 months now). And unless other symptoms or the blood work show a problem, we assume she doesn't have it.

Also, he thinks that likely the 8 day bought was a virus.

We were very, very impressed with Dr. Septer, and would definitely recommend him for anyone in western Missouri or Kansas that needs a pediatric GI doctor.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    2. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.