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Hey, I Need Your Help


shaunaforce

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shaunaforce Newbie

To: ALL (1 of 1)

46721.1

Hey everyone:

Once again, I want to thank you all for your questions and posts. Reading these messages has made me healthier. Easy as that. I'm still learning, but I feel quite able to deal with this now, after only four months. And that wouldn't happen if I didn't have this resource.

I have an open request for everyone in the community. I've been keeping a blog about my experiences of eating gluten free (Open Original Shared Link) It's chock full of recipes and insights, and I have about fifty important links to celiac centers, gluten-free products sites, as well as good cooking websites for interesting recipes. I'm keeping it because I want to tell my story, but mostly because I want to help other people. And people are reading it. Lately, I've been receiving emails from people in Sweden and Brazil, Canada and Texas. People have been saying they learn a lot by reading it, and they're also leaving comments and recipes. It's becoming exciting.

I need your help. I'm turning this into a book, the gluten-free guide to Seattle. I'm a writer by trade, so this will be easy for me to write. Places to eat, places to shop. Where to go to be healed. Where to have picnics. Shop for cooking items. And profiles of people with celiac disease. All to show that we are vibrant and alive. This is about abundance. I'm also talking with about twenty restaurants right now, teaching them how to make their kitchens safe for those of us who can't eat gluten. If they do, I'll feature them in the book. Hopefully, we'll have about twenty more restaurants at our disposal soon!

And I plan on doing this in other cities, eventually.

So here's where I need your help. I'm shopping for an agent right now. And if I send an agent to the website, and it's obviously receiving a lot of traffic, with people leaving comments, it will be easier for me to sell the book. And that's going to help us all, in the end.

So, if you are interested, please come to my website: Open Original Shared Link

Come by and read. Share some thoughts. And come again. I want to help make this all much more mainstream, so that we can eat in more and more places.

Thanks for your help,

shauna

Open Original Shared Link


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
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    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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