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Misdiagnoised Possibly?

Debzo

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Debzo Newbie
Debzo
Posted

My entire life when I went to a beauty salon the stylist would tell me my scalp had psorisis. In 1987 I began having migraine auras and panic attacks. In 2003 I had a swollen knuckle and had not hit it or anything so I made an appointment with the doctor. The first doctor said he thought it was Wilson's Disease and sent to me a hand specialist. The hand specialist said my RA factor was high and I had Rheumatoid Arthritis. I chose to not take the medicines and changed the way I ate. I felt better. I fell off te wagon and started eating whatever I wanted after about a year. Within the past 10 years my joints have hurt and in 2005 I developed psorisis on my knees, elbows, and fingers. Panic attacks became worse a few years ago. I don't smoke, drink, or do any kind of medication but I do drink a lot of Diet Mt. Dew and I love junk food. I began reading a lot of articles about gluten and I seemed to have many symptoms of this. I also read where Rheumatoid Arthritis patients have a higher risk of having Celiac Disease. Anyone else know about this? All of my symptoms have gotten worse over the past few years but over the past few year I have tried to eat healthy as the experts say to do and began eating wheat cereal and Triskets and such. Before when I changed my diet and felt good I did not eat much wheat. I respect all doctors but these days they seem to have a little trouble diagnoising. I have so many symtpoms of this and wanted to share my story and possibly see if anyone else has these experiences?

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you are still eating a gluten full diet then it wouldn't hurt to ask for a celiac panel. You need tobe actively consuming gluten for celiac testing and if you have been gluten light or gluten free you need to go back on gluten for at least 3 months for testing. When all your testing is finished then give the diet a good strict try and see if it helps.

Debzo Newbie
Debzo
Posted
  • Author

If you are still eating a gluten full diet then it wouldn't hurt to ask for a celiac panel. You need tobe actively consuming gluten for celiac testing and if you have been gluten light or gluten free you need to go back on gluten for at least 3 months for testing. When all your testing is finished then give the diet a good strict try and see if it helps.

Thank you so much! You are exactly right. I do need to make sure to eat it so it would show up in testing.

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      Gluten related ??

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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