Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Gluten Intolerance Please Help


azlynn23

Recommended Posts

azlynn23 Rookie

I have always had bad eating habits, when I was in my early teens I had a mild case of anorexia which lasted almost 2 years. Well about 6 months ago I woke up in the middle of the night and couldn't stop puking, to the point that I had my room mate drive me to the urgent care, they did some tests and suggested I see a GI doctor to check for ulcers, I ended up seeing the GI and getting an Upper Endoscopy that came back clear, and have had blood drawn multiple times however I've never had blood drawn within a few days of eating gluten, its always a week or two after.

Well it went away after I took some potassium, started eating a little healthier, and exercising. Then a month ago I got it again so I thought maybe it could have been the birth control I was taking, so I switched that and noticed no help with my moods or nausea. I hadn't even fully recovered when yesterday morning I was in the bathroom puking for hours. I had had 3 beers the night before but have drank beer for years without too many problems until recently, lately 3 puts me into puking fits and if I haven't eaten a large meal even one can cause that effect. Well it seems to happen the first day of my period everytime it does happen and last for about two and a half weeks after the first day.

I do eat out a lot and only really eat one main meal a day and a few smaller ones throughout so I'm sure that I'm not getting my necessary vitamins but for the last few weeks I've been eating healthier, it wasn't until about a week ago that i decided to drink a beer every night for a few nights and then had pizza and a sandwhich over the weekend.

Whenever this happens I spend the first few days with a dull pain in my stomach, bloating, nausea, I wake up in the middle of the night sweating/shaking and vomit whatever water I've drunk. After the first day I start getting horribly depressed, I can barely function at work and almost hate to be around anyone. All I want to do is smoke cigeretts and sit in the sun since i can't get any sleep, I'm too jittery anytime I lay down. I thought that it could have been birth control but my current pill has me taking it everyday, so even though I should have started my menses I'm not going to yet am still getting these feelings. I do smoke marijuana regularly and after the first few days I'm usually able to smoke and eat a bit more substantially but otherwise I have to force myself to eat a handful of baby carrots a day.

I'm sorry this has been long I'm just at my wits end about this and am really debating just giving up. Does this sound like it could be celiac disease or a gluten thing? I'm really at my wits end and none of the doctors I've seen can really help, nor can I really afford to take anymore time off work with this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Di2011 Enthusiast

Firstly it may well be gluten intolerance. If I was a gambler I'd put money on it.

Second try and get copies of all your test results. There are member on here who are excellent at interpreting them and they will come in handy for any future medical visits. Were you tested for celiac? If so what were these results?

Third, do you want or need a diagnosis? If you do then you will need to keep up the gluten intake until tests/biopsy are completed. If you don't then I would suggest you take out the gluten today. It's hard but if/when you start to see an improvement in symptoms (some you didn't realize you even had) you will adapt.

I quit gluten because I had a head to ankle blow out of dermatitis herpetiformis (DH). It was mind-blowing insanity but now consider myself lucky because I have a list of about twenty other symptoms and issues which have improved or resolved. And 90% DH healed or healing.

Give gluten free a go but keep it up for at least a month or two (MINIMUM) and you'll know for sure whether you are gluten intolerant.

Make sure you come back to the forum for any advice! The members here have been my sanity saviours.

azlynn23 Rookie

Firstly it may well be gluten intolerance. If I was a gambler I'd put money on it.

Second try and get copies of all your test results. There are member on here who are excellent at interpreting them and they will come in handy for any future medical visits. Were you tested for celiac? If so what were these results?

Third, do you want or need a diagnosis? If you do then you will need to keep up the gluten intake until tests/biopsy are completed. If you don't then I would suggest you take out the gluten today. It's hard but if/when you start to see an improvement in symptoms (some you didn't realize you even had) you will adapt.

I quit gluten because I had a head to ankle blow out of dermatitis herpetiformis (DH). It was mind-blowing insanity but now consider myself lucky because I have a list of about twenty other symptoms and issues which have improved or resolved. And 90% DH healed or healing.

Give gluten free a go but keep it up for at least a month or two (MINIMUM) and you'll know for sure whether you are gluten intolerant.

Make sure you come back to the forum for any advice! The members here have been my sanity saviours.

I feel like all I've done for months is surf forumns like these, it was this forumn in fact last month that made me think it might be gluten. The most frustrating part is that I am hungry but it feel liks my throat constricts everytime I try and eat anything.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.