Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Here

Kitagrl28

Recommended Posts

Kitagrl28 Newbie
Kitagrl28
Posted

Hi all! I found this board tonight while doing a Google search.

I've had something like IBS ever since I was in college (am 36 now). It comes and goes, sometimes worse, sometimes better. I also have lactose intolerace to a greater or less degree (sometimes I can handle it, sometimes not). Stress also plays a part.

Well for the past 4 months or so I've had worsening symptoms PLUS actual stomach pain (ulcer?) which I never had before. Also way too much bloating and gas and discomfort. Its difficult to even want to eat in public or at somebody's house for fear I'll feel sick, or else be too bloated and no where safe to go, if you know what I mean. haha.

I have been slowly losing weight over the past 3 years or so and am down to a healthy weight, although I'd like to lose about 15 more pounds. I've had four kids. One reason that even got me to the dr is that lately I've lost a few more pounds but my bloating is such that I cannot feel the weight loss in my waistbands like I used to.... So, anyhow...

Went to a GI doctor this past week for the first time ever. He was very very nice and will be checking several things over the next month or so. I gave about five tubes of blood the other day. I'll be getting a gall bladder ultrasound this week (gall bladder removal runs in my family). Then next month I'm getting a stomach scope done (as well as something else checked, but probably not really related.)

He did give me an IBS diet which includes gluten free, and did tell me that its *possible* my "IBS" all this time could actually be a form of Celiac, so my blood testing did include some sort of tests for that. He also said whatever he's doing in my stomach will be able to tell as well. I don't remember being sick as a child though, although I was extremely skinny and very picky. *shrug* As a teen, though, I don't remember being sick too much having to do with eating, and ate plenty of junk of course.

I'm reading now on the forum, though, that if I go gluten free NOW, my tests will come back inconclusive. Now, I did try to reduce my gluten like the day before my blood test, I guess probably like 24 hours before...that probably would not have affected the blood test much, right, since I've been totally on gluten all my life?

Should I also stay on gluten until my stomach scope? I have a baking business (haha ironic!) and make a lot of gluten-full stuff for my family so it would be easy to eat it. On the other hand, the past two days I've been somewhat "gluten free" and also bought Lactaid milk for cooking with. I did have small amounts of gluten but any bread or pasta I ate was gluten free. Tonight I was like, eh what the hey, and ate pizza with my family. Now about 3 hours later my gut is really cramping up and VERY gassy and bloated, and my stomach kind of burns.

Is two days gluten free enough to see a difference or is it all in my head? How much gluten should I eat each day in order to have good test results for my scope? And the blood test I had done will probably be accurate, correct...? Since I'd never even tried gluten free until the evening/morning before my bloodwork was done?

Thanks!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Welcome to the board.

Yes, you should keep eating gluten until after your endo, the equivalent of 3-4 slices of bread a day. The 24 hrs of gluten free prior to your blood testing would have no effect, however.

In your baking business do you wear a mask to avoid inhaling the flour? You will need to do this if you go gluten free, and also wash your hands obsessively :D Or else convert to a gluten free bakery????

Kitagrl28 Newbie
Kitagrl28
Posted
  • Author

Welcome to the board.

Yes, you should keep eating gluten until after your endo, the equivalent of 3-4 slices of bread a day. The 24 hrs of gluten free prior to your blood testing would have no effect, however.

In your baking business do you wear a mask to avoid inhaling the flour? You will need to do this if you go gluten free, and also wash your hands obsessively :D Or else convert to a gluten free bakery????

The ironic thing was that I was filling an order (as a favor, its not my usual thing) for a past customer for whom I did her wedding cake...but she is now gluten free and she wanted me to try to replicate her wedding cake in a small version, gluten free. So I did...and the day the cake was picked up is the day I went to the dr and found out I would be tested for Celiac, among other things. Whoa. haha. Its just myself, not really a bakery...maybe I won't actually have *celiac* and I won't be so sensitive that I can't breathe it in or something like that. Anyway I'm not sure I can afford to go gluten free for a family of 6..so flour will have to be around somehow! One day at a time. haha.

maramelia Newbie
maramelia
Posted

kitagrl28, if there is some chance in your case to be celiac, you must do, in the future, what mushroom said, to wear some sort of mask and individual protection, when your dealing with flour...

In the case of doing a gluten free diet in your house, keep in mind it is common that someone of your family (some of your children) to have what you have. If this is Celiac disease.

What mushroom said is true, the celiacs do not tolerate even very small amounts of gluten. so, even little crackles of biscuits or bread, that contaminate a pack of cream cheese in your house, for example, simply starts all the imune response of your body to the gluten.

That's why the recommendation of have - for example, in my house, the creamcheese of the celiacs (my son and husband) and the cream cheese for me and my other child (non-celiacs) - to avoid this " cross-contamination".

Do not use the same spoon, for example, doing a gluten food and a gluten free one...

its hard to do, but we take the way for this with the time...

good luck with your tests...

mara

Kitagrl28 Newbie
Kitagrl28
Posted
  • Author

kitagrl28, if there is some chance in your case to be celiac, you must do, in the future, what mushroom said, to wear some sort of mask and individual protection, when your dealing with flour...

In the case of doing a gluten free diet in your house, keep in mind it is common that someone of your family (some of your children) to have what you have. If this is Celiac disease.

What mushroom said is true, the celiacs do not tolerate even very small amounts of gluten. so, even little crackles of biscuits or bread, that contaminate a pack of cream cheese in your house, for example, simply starts all the imune response of your body to the gluten.

That's why the recommendation of have - for example, in my house, the creamcheese of the celiacs (my son and husband) and the cream cheese for me and my other child (non-celiacs) - to avoid this " cross-contamination".

Do not use the same spoon, for example, doing a gluten food and a gluten free one...

its hard to do, but we take the way for this with the time...

good luck with your tests...

mara

Wow, really? My reactions don't seem THAT bad....I doubt I have true Celiac. Maybe a mild intolerance???? I can't see needing facial protection against flour..... I don't feel sick enough to need THAT...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    3. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
    4. SilkieFairy
      - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

      It could be a fructan intolerance? How do you do with dates? https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    5. Lkg5
      - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

      Thank’s for addressing the issue of mushrooms. I was under the impression that only wild mushrooms were gluten-free. Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative. In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken. Major mistake!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By SilkieFairy · Posted

      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.