Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sugar Malabsorption In Toddler

anna34

Recommended Posts

anna34 Enthusiast
anna34
Posted

Well, it has almost been a year since DD was diagnosed and I went gluten-free with borderline blood results. (Update: One of my parents has just been diagnosed through biopsy, so with that plus my daughter being confirmed, I feel very confident about my self-diagnosis.) What a difference a year makes! We're all feeling better. I want to thank everyone on this board who has helped me over the last year. While our hospital offered some assistance with the transition, it was on this board that I learned the "whole" truth. ;)

Now I have a question about sugar malabsorption. I've suspected our DS has celiac since we learned about our daughter a year ago. He had the blood test at age 2 and it was negative. We were told that at that age the test is inaccurate at that age and to keep him on gluten and test him again in a year, which is coming up soon. His symptoms are as follows: never had a solid BM, frequent dirty diapers (up to 6 a day), will have full dirty diapers back to back, foul smelling, often see undigested food in diaper, mucous too, dark circles under eyes.

His regular blood tests did not show any deficiencies. His doctor said that since his iron is fine and his skin is not sagging that she doesn't think he has celiac (I know better). He has been referred to a GI and has that appointment soon. So, while his symptoms point to celiac, I'm wondering what else could cause malabsorption of sugar? Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gary'sgirl Explorer
gary'sgirl
Posted

I may have missed something, but I can't figure out why you think he has malabsorption of sugar from what you wrote.

Did your son have a test that suggested that he is not absorbing or digesting sugars?

One thing that is somewhat common in people with celiac is to have fructose malabsorption. Could this be what you are asking about?

Fructose is one type of sugar.

anna34 Enthusiast
anna34
Posted
  • Author

Oops. I forgot to mention that it was his stool samples that showed malabsorption of sugar.

gary'sgirl Explorer
gary'sgirl
Posted

What type of sugar was the problem, or was it all types?

I know that some people have problems with cane sugar. I'm not sure if it's and intolerance or if it's an allergic reaction that people usually get with that.

Two of my kids and I have fructose malabsorption, which is like an intolerance (kind of anyway). We went on the FODMAP diet (along with a gluten free diet - we all have celiac too). Both of my kids seem to be better after being on the diet and the issue seems to have resolved after about 6 months on the diet, so I think it was directly related to their gut needing to heal from the Celiac. I am not better yet, but my damage was much much worse and will probably take a lot longer to heal.

I'm not sure if any of that helps you out at all, but if you have any questions I would be happy to try and answer them.

Hope you figure it all out. :)

nocornhouse Newbie
nocornhouse
Posted

ah, another peice of the puzzle...this could explain why we can't handle more than a teeny bit of honey around here....hummmmm

thanks, I will keep fructose malabsorption in mind while I plan meals while our guts heal

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748
    Sarahmegan
    Newest Member
    Sarahmegan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.