Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do You Think? Yes Or No?


Katie1979

Recommended Posts

Katie1979 Newbie

Hi guys,

I'm new to this forum and I've done enough research I guess to know the answer... but I wanted other's opinions before the testing. I will begin with my symptoms:

excessive hair fallout

extreme fatigue

excessively dehydrated

numbness/tingling - arms/hands/legs and feet

ITCHING

dizzy spells

the shakes

watery eyes

excessively irritable and emotional, leading to episodes of depression

skin discolouration (white patches on the top left and right corners and a white strip across the top of face)

black under eyes (had for years, since 13 that i can remember, but recently darker than usual)

blurry eyesight at times (i have bad eyesight anyway)

extreme weakness at times

chest pain under my left rib... had for a while but more chronic and more often over the last 6 months (doc says strain from feeding baby)

GDM in 2 pg's requiring insulin injections 4 x daily)

Cholestasis of pregnancy twice over (extreme itching from problem with bile acids in blood)

1 x abnormal TSH reading during pregnancy, but then next test was fine (apparently a lab error)

palpatations and abnormal heart rhythm (more prominent 2nd pg)

some constipation, other times the runs

on waking feels like every bond is ACHING

struggle to make it through the day with a 3 yr old and 9 month old to entertain ...

unreasonable sweating

Recent bloods showed the following:

GGT 52 (normal to 30)

ALT 43 (normal to 30)

both liver panels were normal post pg (bloods checked when in emergency for tummy pains so severe and turned out to be constipation. barely able to walk, i left the hospital being discharged...) no other abnormal liver panels and i don't drink much.

cholesterol: 5.5 (upper limit 5.4)

vitamin d 45 (was in 20's during pg)(limits 50-200)

vitamin b12 434 (range 180-740)

Red Cell Folate 1478 (<630, i believe i'm under the upper limit but no upper limit quoted here)

negative for current infection EBV or CMV

2 hour glucose: fasting 4.4, 1 hour: 5.6, 2 hour: 6.0 comment to say "please note the highest glucose result occurred at 2 hours. This suggests that glucose absorption may have been delayed" (I don't know what this means)

IRON Studies:

Serum Iron: 9 (10-30)

Transferrin: 33 (27-53)

Tras Sat: 14% (12-45)

Ferritin: 13 (15-165)

So I have an iron deficiency. However, WHY is my transferrin low????? From everything I've read it should be high in this situation ... :S

Current meds:

NEW (just started): Ferrograd C x 1 pday, Milk thistle x3pday, metamucil x2perday, fish oil x2pday, ostilin(VITD) (had stopped post pg when ran out) x3pday.

OLD: vitamin c x 3-6000mg perday (depends on how much i can tolerate eating them they are so gross), vitamin B megacomplex, stinging nettle tea (as often as i can drink it varying from 1 cup per day to 5)

History:

I know I've been sensitive to carbs for a long time, I thrived on the Atkins diet and felt FANTASTIC but my hubs does the cooking so we eat his food now ..... high carb/glucose. I feel like crap.

1st pregnancy I began to itch the same time I took the glucose test and got the anti-d shot. I attributed itching to the anti-d shot. 4 weeks later i was diagnosed (this time i was yellow) with cholestasis of pregnancy. Delivered at 38 weeks and within a week was readmitted with bp of 170/110, my body was going NUTS. Turns out I got Glandular fever (and I found out at the same time i'd had it previously). The high bp went as quickly as it came. Treated myself for gluten-free and 18months-yrs later i felt ok again. (high qty's of vit c, gingko, vit B). i had massive hair loss then too post pregnancy.

Had second pg, began to itch without cholestasis at 12 weeks. Not diagnosed with Cholestasis until 28 weeks again, same time diagnosed with GDM again. This time my son born hypo. I suffered palpitations and irregular hb causing breathing problems. Vit D deficiency diagnosed. Felt great 3 months post partum, but gradually worse for the next 6 months until now with the above results and barely making it through each day and not leaving the house....

Previous history of chronic ear infections as a child, resulting in a cholesteatome being removed 3 yrs ago and a nasonectomy (sp?). Basically an ear rebuild due to a benign growth from an unrepaired hole in the ear and a repaired nose with complaint of sinusitis. Have sinusistis again now. :( Vulnerable for tonsilitis if not careful.

My kids: dd projectile vomiting for 12 months, suspected milk allergy undx. Chronic tonsilitis, grommets inserted at nearly 2 yrs age, but not tonsils removed due to growth rate slowing down. Now she is 3.5 and we've had a second set of grommets, adenoids shaved and tonsils removed, she is doing a whole lot better .. but has darkness under eyes now too (developed last 6 months).

DS: 9months old, eczema, allergy to ?? eczema cleared on moving away from mould and carpet. allergy tested for immediate reaction and all nil. delayed allergy confirmed to milk proteins. Constipation on prescribed milk and Pepti jnr so now on 100% organic milk that he tolerates better than the prescribed formulas.... :(

Just showing it might be flowing down. I know I've included alot here, but I'm thorough ... sorry for the novel. Appreciate any opinions and will answer any questions. Testing for celiac's and other problems will be Wednesday morning. I personally SUSPECT celiac and pancreatitis but yes, I would feel much better reading other's opinions too because DOCTORS ARE RUBBISH and i'm sick of knowing more than them!!!!!!!!!!!! THANKYOU IN ADVANCE.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.