Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Abd. Pain And Bloating; Am I Screwing Up?


musikate

Recommended Posts

musikate Apprentice

Hello, again,

:( I went gluten-free almost 3 wks ago. I felt better immediately, but now I seemed to have relapsed. My belly has swelled to 5-mo-pregnancy size again, and it hurts. Not much diarrhea, but it feels like I have to go constantly. I also slept about 15 hours today, and even when I got up (I had to teach a voice lesson), I couldn't stop yawning and my eyes drooped. I have vertigo as well, and the puffy, pasty face and neck that I had before I started the diet. For two weeks I was on a continual high :lol: because those symptoms were slipping away! But now it's as bad as ever.

I don't know if I messed up and got glutenized. I've been vigilant about reading labels. I shop in a Korean Market because they have so many types of noodles (bean threads, rice sticks, potato pasta,sweet potato vermicelli,etc), and they have good rice cakes and snacks as well. I'm avoiding dairy because I figure it's probably contributing to my digestive problems. I cook at home, so I feel pretty in control of my food.

I'm also looking into the possibility that I have lupus. I had a positive ANA test and an elevated ESR, which points to some type of connective tissue disorder. I read that untreated Celiacs can develop Lupus, and I wonder if that what's going on.

:unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



higgins Newbie

Hi Musicate. Are you a musician? I used to play and compose (in an earlier day, before electricity :) ) but I digress....

I was diagnosed about 2 years ago, and despite all efforts to go gluten-free, I kept getting contaminated - and still get it on occassion. It is almost impossible to avoid getting "glutenized" (I like that word).

The Asian stuff is a real pain. For a year and a half after my diagnosis I practically lived on these Japanese Rice crackers that had a HUGE "gluten free" label on the package. I later found out (through a related forum, and subsequent follow-up) that the damn things had gluten - despite the label! That explained why I had remained symptomatic despite all my efforts. You simply can't be careful enough. Stick to the walls in the grocery store; avoid the aisles.

Richard

misskris Apprentice

A lot of times, vermicelli is made from wheat. You may want to check that. However, there is also rice vermicelli (I just found out).

But yes, it does sound that you have been glutenized. I'd stay away from the Asian Mart - I don't trust ours anymore. Stick to simple things...plain rice, veggies, meat - watch the marinades and sauces. This board has plenty of food ideas and lists lots of products that are 100% gluten-free. Don't let this slip-up get you down though. You can rebound just as fast as soon as you get the rest of the gluten out of your diet.

And I do hope that your lupus tests come back negative. I have heard that it's a common disease among Celiacs. :(

elbar Apprentice
Hi Musicate.  Are you a musician?  I used to play and compose (in an earlier day, before electricity  :) )  but I digress....

I was diagnosed about 2 years ago, and despite all efforts to go gluten-free, I kept getting contaminated - and still get it on occassion.  It is almost impossible to avoid getting "glutenized" (I like that word). 

The Asian stuff is a real pain.  For a year and a half after my diagnosis I practically lived on these Japanese Rice crackers that had a HUGE "gluten free" label on the package.  I later found out (through a related forum, and subsequent follow-up) that the damn things had gluten - despite the label!  That explained why I had remained symptomatic despite all my efforts.  You simply can't be careful enough.  Stick to the walls in the grocery store; avoid the aisles.

Richard

<{POST_SNAPBACK}>

Do you remember the brand name of these Asian crackers because I had some for lunch and I'm now feeling like I've been glutened. The ones I had were made by the Asian Gourmet company. Thanks.

Elbar

Billygoat Apprentice

I've had some Asian bean mung threads yesterday for lunch and had a TERRIBLE gluten attack. One of the worst in years. Doubled over in pain, major gas, bloating. I've been miserable. I don't remember the brand name.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,498
    • Most Online (within 30 mins)
      7,748

    Rated H
    Newest Member
    Rated H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...