Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Ill


Rikki Tikki

Recommended Posts

Rikki Tikki Explorer

I have been really sick since eating a bag of wheat free cookies about two weeks ago. I forgot that wheat free does not mena gluten free. :( Any idea on how long this will last?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

I have been really sick since eating a bag of wheat free cookies about two weeks ago. I forgot that wheat free does not mean gluten free. :( Any idea on how long this will last?

lauradawn Explorer

ooo! ouch,! Im sorry to hear that. I think that the respsonse to it is different for everyone.

Sorry

hope you feel better soon

Guest Cher2

Hi!

Just curious as to what kind of cookies you ate. I too had a reaction last week that I think was do to some Midel cookies I ate.

Cheryl

mario Explorer

OMG I bought some midel, they look like oreos in a blue package, I haven't eaten them yet-- I guess I won't chance it..

Dwight Senne Rookie

I'm very skeptical that you would still have symptoms two weeks later! I suspect there is something else wrong. Please contact your doctor and let him/her know what is happening. Perhaps you have become lactose intolerant - it is not uncommon.

lauradawn Explorer

from my experience the Midel cookies are fine if you get the gluten-free. It looks like Granger got a bag of Wheat free which isn't the same thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Cher2

The cookies I bought were in the blue package and they were gluten free. I think that they might be high in fiber and that is why I had a reaction to them. I read the label and they have alot of different kinds of flour in them and I usually try to stick to rice flour, potato starch flour and tapioca flour. I think that Iam going to have to do some more baking and not rely on the prepacked foods.

Cheryl

Lily Rookie

I also had a reaction to Midel cookies. A single gluten ingestion can take up to 3 weeks to heal, so don't give up. You'll be feeling better soon. For me it takes 3-4 weeks to feel better.

Lily

gf4life Enthusiast

Granger279, I am also dealing with the after effects of gluten. I got sick after eating some chicken and rice noodles at my in-laws birthday party. :( I think they must have put soy sauce in something. I should have known better. Next party I am bringing a full meal for me and my kids to eat. My children are also suffering. For me the stomach issues lasted about 5 days, but the headaches, fatigue, brain-fog , tearfull-ness, bad mood and general ill feelings are not showing any signs of letting up. It has only been a week, so I am giving it more time. Just try to take it easy and let yourself rest anytime you need it (and it is physically possible!). I have been trying not to push myself too hard (or my kids either!) , just trying to remind myself everyday that I need to heal.

I hope you feel better soon.

God bless,

Mariann

lauradawn Explorer

So there seems to be a common thread, that some of had problems with the Midel cookies... what kind are you having problems with? Are they cross contaminated or something? I have some but don't eat them much.

Now Im wondering what's up?

Guest Cher2

Hi!

The problem I had with the Midel cookies was severe diarhea and nausea, at first I thought I had the flu but felt better soon after so I knew it wasn't the flu.

Everyone is so different when it comes to reactions so you have to experiement a little. I also had a reaction to some corn meal muffins I made last night from a package mix from the gluten free pantry. I beginning to feel like nothing is safe to eat anymore.

Cheryl

gf4life Enthusiast

Cheryl,

Could you possibly be intolerant to corn? I noticed the common thing in the two items you mentioned here is corn. Cornmeal muffins and the cookies that have corn flour, corn starch and corn syrup in them. It might be something to think about.

I can usually tell the difference in my reaction to milk and my reaction to gluten by the length of time it lasts. The milk reaction for me is more stomach pain, but it is gone in a day or two. A gluten reaction is a lot less stomach pain (and different feeling) and it lasts longer and I get a lot of other things like headaches and I'm extremely tired, moodiness, brain fog, etc. and also if it was a lot of gluten I get a rash on my hands. I hate to think that every time I feel bad that is was gluten, then I would never be able to eat anything, but I do know that people who are gluten intolerant are often intolerant to other foods as well. Dairy, soy, and corn are some of the most common. Eggs and yeast are also pretty common.

The gluten intolerance group I recently joined in a near by town has everyone label the foods they bring to their functions to say if they have dairy, soy or corn as those are the most common intolerances and allergies amoung all the members. I was so happy to find that out, since none of my family is eating dairy and I am allergic to soy! Finally a place to go eat where I will know exactly what is safe!!

Well anyhow, I would check into the corn thing.

God bless,

Mariann

Guest Cher2

HI!

Thanks for the suggestion about corn, I'm going to start keeping a food diary and see if I can pin something down.

Cheryl

Rikki Tikki Explorer

I guess I didn't explain it right. I was still sick two weeks after eating the bag of cookies. It has actually lasted 4 but the pain and other symptoms are finally slowing down.

They were not the brand you are talking about, all I remember is they were in a kind of tan package with green on it and they were fig cookies. I just didn't look, when I saw wheat free I thought I was safe. Guess I won't make that mistake again! :rolleyes:

gf4life Enthusiast

Granger 279, For some people, especially with a lot of gluten consumed in the "accident", the reaction can last that long. I had an accident two weeks ago, and still have occasional pain and headaches. My son is also having daily stomach and headaches since the accident and I know that we are 100% gluten-free right now. I read recently (but can't remember where) that it can take up to 4 weeks for some proteins to leave your system. So this may be why some reactions last longer for some people.

I'm glad you are feeling better. :)

God bless,

Mariann

ChrissyInNH Rookie

I notice that a lot of products that say wheat-free are made from barley flour, which is a no-no.

Hope you have a speedy recovery!

Christine

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.