Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Argh. Need To Vent.


BrianV

Recommended Posts

BrianV Newbie

I'm recently diagnosed with celiacs, and due to some financial set backs my wife and I live with her parents, and 2 of her siblings. It's very frustrating because they really don't seem to care that I need to stay gluten free. I've tried to keep my food separate but they get in to it, use my peanut butter, and they even managed to cross contaminate my bottle of squeeze mayo (by squeezing out too much, then removing the cap, and putting the excess back in. Any tips on not going insane? Despite how I try to explain to them Celiac disease, they just don't understand cross contamination, and just how sick I feel when I ingest gluten. Despite that, I've been very careful, and I don't eat anything I have the slightest doubt about, and I'm coming up on a month and feeling quite a bit better with only a few set backs here and there. I can say, when I do slip up I really do notice now. Now that I'm feeling better it makes me feel so much more ill when I do goof.

Any way, I'm loving these forums, and thanks to everybody who's contributed because it's definitely made starting out a lot easier.

-Brian


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I think you know you & the wife should get it together & move out. Doesn't sound like you really want to be there. :)

But until that gets straightened out -

How about a "dorm" refrigerator and a locking "camp" box for your room. Many of the small fridges have a way to put a lock on them. You could keep your PB & Mayo safe that way.

You are in thier house, so they really don't have to follow your rules. There may be some issue of old habits and forgetting. OR they may just not like you too much or not be nice people. Good luck.

One more thing: Remember this when you have kids.

hexon Rookie

If you put all of your items in a paper bag and put them in the fridge they will probably be too lazy to take the bag out and rummage through it to use things. In addition they'll use the stuff in plain sight before they think about checking out what's in the bag. Just write your name on it, or something fun like "stool specimen." I had an interesting time dealing with roommates in college eating my food, and I was almost to the point of putting laxatives in some stuff. I soon realized if I bought stuff like soy milk or other "weird" stuff they wouldn't mess with it.

sharilee Rookie

I am sorry your family is not being more understanding. Have you tried labeling your foods with your name? Also maybe give them some literature on cross contamination, if they are not listening to you but they will get it when they read it in writing. Hang in there in the mean time and we are here if you need to vent.

BrianV Newbie

Thanks guys, I just had a really stressful day. I do live in their house rent free, and I am working on getting things back on track. Wife and I both lost our jobs at the same time, found out she was pregnant, and BOTH of our cars broke down. We're on the fast track to getting out of here, which is nice, and I dream of a little gluten free cooking space of my own and we've been working hard towards it. This diagnosis is probably a good thing, because it's more motivation to get the *bleep* out of here!

Thanks for the ideas too! I'm going to work on a few of them, and today I decided to put in some shelving in our bedroom where I can safely store my stuff. I wouldn't be so angry with them eating so much of my stuff, but the gluten free stuff I get for "quick meals" for work are typically pretty expensive. Being a bit of a newbie Celiac I've not experimented as of yet with baking, but I am also working on making some meals, using a 'foodsaver' to vacuum seal so I can make a bunch of stuff, freeze it up and reduce my costs on that. I used to consider myself a bit of a foodie, and I thought this condition was going to be the end of my gluttonous lifestyle, but it's just kind of a start of my gluttonous but glutenless lifestyle.

kareng Grand Master

and I dream of a little gluten free cooking space of my own

That made me smile. The all- American Dream.....a house with a gluten free cooking space! :D

Takala Enthusiast

You can bake gluten free in the microwave B) and make yourselves some really nice baking soda/vinegar leavened mini loaves very quickly. Ceramic dishes work really well, such as mini casseroles or ramekins, mugs, soup/cereal bowls. I like to measure out ingredients for more than one at a time, and put the 2nd set of dry ingredients in a ziplock baggie or in a clean covered bowl in the refrigerator, ready for the liquids to be added.

Bun in a cup with Pamela's mix, see this thread

By using a 2 cup size microwavable bowl and 3/4 cup of any dry mix that is adapted, you can make 2 servings of gluten free bread. This style of baking, depending on what you use for flours, like nut meals, frequently does not need xanthan gum or other binders because the egg sets it up.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



llama3 Apprentice

I thought this condition was going to be the end of my gluttonous lifestyle, but it's just kind of a start of my gluttonous but glutenless lifestyle.

That made me smile. The all- American Dream.....a house with a gluten free cooking space! :D

You guys are funny. :)

surgtechkim Newbie

I just registered with this web site. Have read a few different posts. WOW!!! I'm really not alone. I found out last week that I had celiac disease. Not coping well at all. I had a 25lb weight loss since last May...22nd to be exact. I was working in the hospital when the EF5 tornado hit. I mentioned this because I really thought my weight loss was just stress and depression from that event. Eating habits are horrible. Never felt good after eating so I would have a few crackers tie me over for a couple of days. I've never been overweight so losing 25lbs puts me in a size 3 or 5 jeans. How do you get over that hurdle of depression when 1st diagnosed? Of course that was the icing on the cake for me. Still in that post traumatic phase from the tornado...and now this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.