Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Chance I Have Celiac's?


Comet

Recommended Posts

Comet Newbie

Hi,

My name is Cydney, and I just came across this board today after doing a search of Celiac's. I am 16 years old & am from Long Island, New York.

The last few months I've constantly have had stomachaches and a lot of reactions to food I normally wouldn't. Like, after eating my sandwhich at school, I would have horrible cramps and stomchaches. When I eat a bagel for breakfast, a few hours later I will feel terrible. Lately, it just seems like regardless of what I eat, will come out shortly after. Aside from these symptoms, some irritableness, and constantly being tired (But that could also have to do with having a 16-year old's schedule), there's not much else to say. I don't have the skin thing that I've seen that is a possible symptom for Celiac's.

Is there a possibility I could have Celiac's? Or what? I don't get why I can't keep any food inside of me. I haven't lost any weight, maybe I've even gained a few pounds (we had a terrible winter, LOL), and I am about average weight to begin with.

I hope someone can help me.

Thanks in advance!

-Cydney-


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Comet Newbie

Hi,

My name is Cydney, and I just came across this board today after doing a search of Celiac's. I am 16 years old & am from Long Island, New York.

The last few months I've constantly have had stomachaches and a lot of reactions to food I normally wouldn't. Like, after eating my sandwhich at school, I would have horrible cramps and stomchaches. When I eat a bagel for breakfast, a few hours later I will feel terrible. Lately, it just seems like regardless of what I eat, will come out shortly after. And my tummy always makes these miserable, and sometimes embarrasing, noises. Aside from these symptoms, some irritableness, and constantly being tired (But that could also have to do with having a 16-year old's schedule), there's not much else to say. I don't have the skin thing that I've seen that is a possible symptom for Celiac's.

Is there a possibility I could have Celiac's? Or what? I don't get why I can't keep any food inside of me. I haven't lost any weight, maybe I've even gained a few pounds (we had a terrible winter, LOL), and I am about average weight to begin with.

I hope someone can help me.

Thanks in advance!

-Cydney-

Guest jhmom

Hi Cydney! Welcome!!! :D

I am not a doctor I can only tell you that your symptoms were very similiar to mine before I was diagnosed with Celiac. I suffered for over a year with abdominal pain, diarrhea, weight loss, (but not all Celiac's loss weight) and a general unhealthy feeling.

You need to be seen by a doctor and get tested through blood-work to check for Celiac's. If you do not care about a doctors diagnosis then you could also try a gluten-free diet for a couple of weeks/months to see if you improve. Personally I could tell a difference within a couple of days.

Hang in there and read all you can on this website, it is very informative. Here are some links that were helpful to me:

gluten-free Product List

Safe and Forbidden Food and Ingredient List

celiac disease Symptoms

Open Original Shared Link

Take Care :D

Comet Newbie

I tried posting this a few days ago, but it never came up --

I am 16 years old & I have been having a lot of stomach "issues." As of late, it seems as if regardless of what I eat, it will come out a short time later, and will cause a lot of discomfort throughout the day. Last week, I had a lot of BMs when I got home from school, (though less in the last two days), but I still have had stomachaches & abdominal pains. Two days ago, though, after I ate lunch (a sandwich & peanut butter cookies), I had an immense pain, and felt very nauseous, and I felt light-headed & over-heated. Gas has been an issue, too, and when I'm in school, obviously I can't let it out whenever I want (LOL!)... Am I over-analyzing a stomach virus? Or could this be Celiac's??? I don't have any other non-gastrointestinal symptoms, like the skin, stuff (though my skin is so dry & rough, though I haven't heard of that as a symptom and I acknowledge that it could be due to the weather).

I'd appreciate if anyone could let me know if this could be Celiac's?

Thank you very much in advance!

Feel free to e-mail me.

--Comet

Comet Newbie

I tried posting this a few days ago, but it never came up --

I am 16 years old & I have been having a lot of stomach "issues." As of late, it seems as if regardless of what I eat, it will come out a short time later, and will cause a lot of discomfort throughout the day. Last week, I had a lot of BMs when I got home from school, (though less in the last two days), but I still have had stomachaches & abdominal pains. Two days ago, though, after I ate lunch (a sandwich & peanut butter cookies), I had an immense pain, and felt very nauseous, and I felt light-headed & over-heated. Gas has been an issue, too, and when I'm in school, obviously I can't let it out whenever I want (LOL!)... Am I over-analyzing a stomach virus? Or could this be Celiac's??? I don't have any other non-gastrointestinal symptoms, like the skin, stuff (though my skin is so dry & rough, though I haven't heard of that as a symptom and I acknowledge that it could be due to the weather).

I'd appreciate if anyone could let me know if this could be Celiac's?

Thank you very much in advance!

Feel free to e-mail me.

--Comet

Comet Newbie

Why is my topic the only one not "pinned"? I'd really like SOMEONE to see this post...

Wish Newbie

Hi Cydney,

You definitely have a lot of the classic Celiac disease symptoms. The lack of the skin problems (dermititis herpetiformis) does not necessarily mean anything. I didn't have the dermititis herpetiformis either, and my tests came back positive. There are many different ways Celiac disease can present itself, so it's really difficult to tell if you have Celiac disease based on symptoms alone.

What you should definitely do is go to your doctor and ask to be tested. Generally, testing first involves getting bloodwork done. If the bloodwork comes back suggestive of Celiac disease, the doctor will typically do an endoscopy to take samples from your small intestine so that the diagnosis can be confirmed (Celiac disease causes abnormalities such as flattened villi that can only be seen if tissue samples are taken). The endoscopy isn't the most pleasant procedure in the world, but it certainly isn't the worst either and the temporary discomfort is definitely better than years of pain due to untreated Celiac disease.

I wouldn't recommend trying to put yourself on a gluten free diet before you see a doctor because if you go for a long enough time without eating gluten, your bloodwork will come back negative and you will never get the official Celiac disease diagnosis. Some people argue that you don't need the official diagnosis as long as following the gluten free diet makes you feel better. It's true that feeling energetic and healthy is a key priority. However, if you have the official diagnosis, it tends to make gluten-free life easier. For example, I was only able to convince my university to allow me to keep a rice cooker in my dorm room by providing them with medical documentation of my Celiac disease diagnosis. There are a number of other situations where a doctor's verification of your medical needs is very helpful, and if you just put yourself on a gluten free diet without trying to get a diagnosis first, you're going to have a more difficult time trying to maintain a gluten free lifestyle. So basically my point is that you should tell your doctor about your symptoms and explain that you want to be tested for Celiac disease. Be prepared to speak up for yourself if the doctor seems unwilling to listen to you about this...there are a lot of good doctors out there, but there are also some bad ones that are not very informed about Celiac disease and do not like having patients suggest diagoses to them. There is nothing wrong with insisting that the doctor at least do the initial bloodwork...that part of the testing is pretty simple and routine, so if one doctor is not willing to order the bloodwork, I would recommend finding another one that will.

I have a bit more to say, but I gotta run to class right now. If you have any questions, though, please do not hesitate to e-mail me.

~wish


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Guest Doct.Giggles

Hey

I think you should really get checked. You could get checked by a simple blood draw. Just talk it over with your doctor. I got digonosed by me complaining all of the time my stomach hurts. So ask. Share the results. And check out my topics. Feel free to e-mail. :P

-Tiffany

tarnalberry Community Regular

It could be, but none of us can tell you for sure. You might want to consider asking for a full celiac panel to be done on a blood sample as a place to start.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.