Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Long Term Issues & Good Doctors In Montreal?


00Bryan00

Recommended Posts

00Bryan00 Newbie

Hello,

Thought I would sign up on this forum as I am really stuck currently with medical aliments. I have a history of food intolerances, chronic pain and chronic depression. I recently moved to Montreal and have been relatively ok. Currenlty I am on a month long flare up stuck in a vicious cycle of GI pain and debilitating anxiety. I have been on a Gluten free, Dairy free and corn free diet for many years now. I am beginning to be suspicious of cross contamination in my kitchen as I live with 4 roommates. I am in my mid 20s and very nearly stuck inside my home. Tried to purchase groceries today but had to drop the items I had selected and run home in a panick. Recently I had joint pain flare up so bad I was pretty sure I had lost the use of my arms. I purchased a very ergonomic mechanical keyboard, Dragon Speech software and invested in some good wrist braces. The pain was perfectly symmetrical and some days it would affect my ankles symmeterically as well. Sometimes just walking to school would induce a limp in under 5 blocks. This joint pain seemed to go away completely followed by what seems a giant flare in all my other symptoms. Currently in my mid 20s with lactose intolerance since I was 9 years old. Followed by Gluten, Caseine, corn and now what seems to be fructose malabsorption.

Do you think my doctors could have overlooked such a diagnosis as celiac disease?

Anyone know of a celiac disease aware doctor in Montreal?

Has anyone had luck with the home test kits? Did anyone find that these helped motivate a doctor to look into celiac disease more thoroughly?

Anyone get horrible Anxiety flare ups? If so do you take medication? I was prescribed Clonazepam but it contains 80mg of Lactose filler.... Doh

Anyone have issues with symmetrical joint pain?

Symptoms:

Gas/Bloating after fruit and/or fruit juice. (Fructose Malabsorbtion?)

Intense pain and cramping for hours from any amount of Lactose, Casine, Corn and Gluten

Joint Pain with a recent flare up in both my wrists that I couldn't use my hands.

Continuous flipping between what seems like IBSD and IBSC

Horrible fatigue, Fogginess

Mouth Ulcers on a Monthly if not weekly basis

Dry irritated eyes

Light sensativity

What seem to be never ending tension headaches

Chronic Depression 10+ Years Psychiatrists are baffled. No responsive to anti depressants

General Anxiety that flares up along with other symptoms


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Positive biopsy

    2. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Positive biopsy

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Positive biopsy

    4. - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Positive biopsy

    5. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,004
    • Most Online (within 30 mins)
      7,748

    Roxanne Mendoza
    Newest Member
    Roxanne Mendoza
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • pothosqueen
      Second update: the tTG just came through. Scale is 0-4.99flu. My result is 108.47. 
    • pothosqueen
      This is a good point. The primary things I’ve been able to tolerate are crackers and pretzels and bread slices (also rice and potatoes but ntp). I’ve been loading up on gluten based snacks so the testing should be valid as far as I understand. 
    • trents
      Just one thing I will add that you need to be aware of. If by some chance you had been avoiding gluten or eating less of it than what would be normal for most healthy people, the antibody results for celiac might still be negative. I understand that one of the symptoms of SMA syndrome is difficulty in eating because stuff isn't moving through like it should. Valid celiac antibody testing requires the consumption of normal/generous amounts of gluten for weeks/months ahead of the blood draw.
    • RMJ
      Your total IgA is normal.  This test is run because if you are deficient in IgA the celiac specific IgA tests might not be valid (might not detect celiac disease). Hopefully some of those other tubes of blood will include other tests for celiac antibodies which might include Tissue transglutaminase (TTG) IgA and IgG, Deamidated gliadin (DGP) IgA and IgG, and Endomysial antibody (EMA).  They don’t all have to be positive to indicate celiac disease. Please let us know the results when you get them.  We will probably then say “welcome to the club you never wanted to join.”
    • pothosqueen
      Hi all. Thank you for the responses. I hope I’m responding right, lots of new things this week. I also thought it was a long shot to get any real responses.  Clarifications — the positive biopsy was an accidental finding. I had an endoscopy as a precautionary measure. I was recently diagnosed with SMA syndrome and before surgery they wanted the upper endo to confirm no other problems were hiding.    I had the bloodwork drawn after the biopsy came back positive. Celiac came out of left field. The result I have of 114 is for total IgA on scale of 70-400 mg/ml. There is allegedly another pending lab (they took 4 tubes, only IgA has resulted and I cannot see pending tests until tests are confirmed). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.