Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Help!


RachL

Recommended Posts

RachL Newbie

Hi, I am new to this forum and discoevered it after doing some research on Celiac Disease. I've been expereinceing some strange symptoms for a while now and I really want some feedback from others who actually do have celiac disease. I have always had a sensitive stomach growing up. When I was in high school I completely changed my eating habits and began to exercise more frequently. I ended up loosing about 30 pounds all together. During my Junior year I had a terrible episode of severe stomach pain where I ended up staying overnight in the hospital. I vomited several times and the doctors never came up with a diagnoses for me. Ever since then, which now I am a newly college graduate, I get episodes of bad bloating and cramps. The odd thing is that I feel like I dont eat many gluten products to begin with. I tend to have a low card diet except for on the weekends when I splurge a little. However, I am a frequent beer drinker.

For the past 2-3 weeks I have been experiencing strange stomach cramps and abdominal pain. Sometimes I get splitting pains in different areas, like around my belly button or where my kidneys are. These different feelings in my stomach area are daily at this point. I have been having on and off constipation as well. Also, I have been having a lot of sleep paralysis at night. I have been under tons of stress from trying to graduate college the last month, but I find it hard to believe that stress could be doing this to my body. I am a vegetarian, so experiencing tingling in my feet and fingers has been normal for me. Over the last two months I was on anxiety medication and was very moody/emotional. I just feel like somethings not right with my body.

My last week at school I was freaked out and went to the health center at my school where they took a urine sample and gave me a pap smear. They didn't find anything and just said they figured I was having digestive problems from stress.

I would really appreciate some feedback about this. I'm going to go on a very blan diet and avoid drinking beer to see if I start to feel better.

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

Well, you have quite a few things going on there.

You could simply try a gluten-free diet and see if it helps you feel better.

And that means giving up your beer. Beer contains gluten. There are a few gluten-free beers out there; Redbridge and Bard's are probably the most easily available. Also one called New Grist but that one is pretty light and tasteless to a lot of people.

Some smaller breweries are getting into the act, you can Google gluten-free beer and find them.

Do you still have access to doctors? Ask them specifically for celiac testing. Be sure to ask them for a full panel, not just the "short list" which is only two items.

You should probably get your vitamin B12 levels checked. As a vegetarian, you are quite susceptible to B12 deficiency, which can cause the tingling in your hands and feet and other neurological issues.

If you are gluten-sensitive or celiac, it could take only small amounts, even on your low-carb diet to make you sick.

RachL Newbie

Well, you have quite a few things going on there.

You could simply try a gluten-free diet and see if it helps you feel better.

And that means giving up your beer. Beer contains gluten. There are a few gluten-free beers out there; Redbridge and Bard's are probably the most easily available. Also one called New Grist but that one is pretty light and tasteless to a lot of people.

Some smaller breweries are getting into the act, you can Google gluten-free beer and find them.

Do you still have access to doctors? Ask them specifically for celiac testing. Be sure to ask them for a full panel, not just the "short list" which is only two items.

You should probably get your vitamin B12 levels checked. As a vegetarian, you are quite susceptible to B12 deficiency, which can cause the tingling in your hands and feet and other neurological issues.

If you are gluten-sensitive or celiac, it could take only small amounts, even on your low-carb diet to make you sick.

Thanks so much for your response! I did some research on the B12 deficiency and many of the symptoms sound like me as well. I've just been feeling so many different things. I am going to cut gluten out of my diet for a while as well as taking B12 supplements. Hopefully by doing that I will start to get back to feeling the way I did before. Although I don't eat meat, I still do eat fish occasionally but I guess I'll try to incorporate more into my diet.

I just wish the terrible bloating and gas would go away.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.