Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Waiting For Results From Enterolab


KayJay

Recommended Posts

KayJay Enthusiast

I just did the stool test with Enterolab and I am waiting for my results tell me if I am the only one who has felt like this before....

--I am 24 years old and I have been sick for the last 10 years of my life, with the past two years being the worst. I have been to doctors and had tons of test run on me, They thought I had Lupus and so on....

--I just heard about celiac a few months ago and tried gluten-free to see if it would help me feel better and it did. Then I went off the diet for a few weeks to get tested my blood work came back negative. I then stayed on my gluten-free diet because it made a difference and now I am doing the enterolab.

--I am waiting for the results and part of me says yes please just say that this is what is wrong with me so I can get on with my life....

--The other part of me is saying please don't let this be what is wrong....

I guess I am scared that it will come back negative because all the other test that I have taken come back negative and after 10 years I almost expect it.

--I know someone has felt the way do, just wanting to know what is wrong with me.

thanks,

KayJay


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest aramgard

Kayjay, I hope you have better luck with Enterolab. If you had been gluten free before your blood tests and were only on gluten for 2 weeks before testing, the results would definitely be skewed. I takes several months to rebuild the antibodies in the blood. Enterolab should give you better results. Count yourself very lucky if Celiac is what you have, that it's not something a lot more serious. This diet may be difficult at times but much better than the alternative of many things that could be wrong with you. Good luck. Shirley

Guest jhmom

Hi Kayla, Shirley is right, if you do have Celiac be thankful, there are far more serious things out there that you could have! At first going gluten-free can be overwhelming but it does get better, just hang in there! Stick around here and you will find out what foods are gluten-free and wonderful gluten-free recipes!!!! :D

KayJay Enthusiast

Definitly I feel thankful if I only have Celiac I am 100% medicine free right now for the first time in years and I love it. I don't mind eating gluten-free I think it is healthier anyways. I just want to know what is wrong I self diagnoised myself and I am just nervous about if I was right. I want to be done with all the symptoms, testing and not knowing.

thanks, I love this website

tonight we are having Rice Pizza I have been craving pizza for weeks :)

thanks

Kayla

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,883
    • Most Online (within 30 mins)
      7,748

    Trevor smith 2
    Newest Member
    Trevor smith 2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      Damage with silent celiac exists. I am a silent celiac.  I was tested because I have the gene predisposing to celiac disease and migraines.  All of my antibodies were high (TTG IgA, TTG IgG, DGP IgA, DGP IGG, EMA). I had a biopsy which showed damage. After going gluten free I felt better overall and have more energy. Unfortunately it didn’t help the migraines. Sorry to be blunt and write this, but it sounds like you’re really in denial about the possibility of having celiac disease. Understandable, and not uncommon on this forum.
    • trents
      Welcome to the forum, @terrymouse! Your GI doc is correct. Going gluten free now will allow healing to occur in the villous lining of the small bowel such that the endoscopy/biopsy may not show the damage to the villous architecture that is characteristic of celiac disease. Since your celiac blood antibody tests results are on the low side and don't "scream" of celiac disease I think it is important to go forward with the endoscopy/biopsy while still consuming gluten to ensure it will not be a wasted effort. The last thing you want is to have two different test modalities that unnecessarily contradict one another. So, unless the continued consumption of gluten poses an immediate and significant threat to your health, my advice is to (excuse the pun) "gut it out" until the endoscopy/biopsy happens. There is also the option of temporarily going gluten free and then undertaking a "gluten challenge" in the weeks leading up to the appointment in September. Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (the amount found in about 4-6 slices of wheat bread) for at least 2 weeks leading up to the day of the procedure. But I would certainly give it longer than two weeks to be sure. And in view of the fact that it could happen sooner if there is a cancellation, I would encourage you to not go gluten free until after the procedure if your health permits. By the way, what are your symptoms? What led you to investigate celiac disease as the cause of your medical issues?
    • RMJ
      I had an endoscopy where there was no visible damage but biopsies showed damage. I even asked beforehand if the endoscope had good enough magnification to see the villi!  I hope you get a clear answer from the biopsies.
    • terrymouse
      I have an endoscopy booked for mid-September to test for Celiac. My gp seems convinced it is celiac and I should eliminate gluten right away, but the gastroenterologist I was referred to says if I'm totally gluten-free then they won't be able to detect celiac from the endoscopy, and I should load up on gluten 2 weeks before the test. So I guess I shouldn't eliminate gluten then? Or stop and start again closer to the appointment date. But I'm also on the wait list in case they can get me in sooner, because I'm losing weight. I don't want to have to go back and do it over again if I can help it. They also were unsure if there isn't something else wrong with my stomach, so that's a possibility. I don't have the details but from what I understood my blood tests results were positive but on the low end. So I'm getting mixed up here, do I go gluten-free or not? Would 2.5 months of being gluten-free make any noticable difference? 
    • knitty kitty
      Being low in B12, Folate B9, ferritin, zinc and copper sounds consistent with anemia which can often occur with Celiac.  What did your doctor recommend? What about your Vitamin D?  It helps regulate the immune system.  
×
×
  • Create New...