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Tingling In Back


rogue

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rogue Rookie

Hello! I'm not sure if this is the right board but I have a question about issues with my back. I have tingling that started in my neck and now it goes further down my spine. It seems to happen when I sit- but it only began a few months ago. There really isn't any pain associated with it, though i can press on or in between a few of my vertabrae and it feels like a small bruise. I've heard that there are a few bone/back problems associated with celiac disease, but I'm not very familiar with them or what I should do about it- if there's anything I can even do about it anyway. I also thought that several years prior to diagnosis that I had a decrease in my height- maybe about one inch. Could it be bone loss or problems with my cartilage? I am only 27 years old. Help anyone? Suggestions?

Oh- and this is my first thread but I've been on here quite frequently since I was diagnosed in May. I have to thank everyone who posts and whoever runs this site as I can't tell you how helpful it's been- especially with the new diet. This place is truly a support, so many thanks to all of you.


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rmmadden Contributor

Rogue,

I had the back-tingle. It was an almost everyday occurence and it drove me nuts trying to figure it out. All I know is that it went away after I went gluten-free (Not right away) and some healing took place. Now I only get it when I have a Gluten episode.

Best of Luck!

Cleveland Bob B)

  • 1 month later...
quantumsugar Apprentice

I had a tingling in my back (right under my shoulder blade) for years, and when my celiac disease got worst, it used to feel like a nerve was drawn too tight and might snap. Since it's a tingling, it could be something associated with nerve damage/issues... I'm not really sure. Mine healed after going gluten-free as well, so there is hope. Also, have you seen your doctor about it? It could be something that should get checked out, especially as the tingling is travelling. Good luck!

Guest BellyTimber

Quantumsugar, that's exactly what my mother had in recent years. She had had osteoporosis since a girl but I didn't tell her she should check whether to go on a gluten-free regime because I didn't want her to have more hassle with doctors than she did have - that's in the UK of course.

Rogue, there can be both bone & nerve complications and they don't all always seem to resolve very soon after adopting the gluten-free life. Hoping in your case they do so reasonably quickly and you get the support you need, :)

GC1 Rookie

Not in quite some time, but I had that for many years also.

Starvation seriously messes up your bones, joints, nerves, everything.

Hoping to heal my wrists, hips, and knees...

Been gluten-free for 9 weeks, and it's starting to get better... can even tell bone mass has increased. Being younger, you will do fine... you'll heal better than us 'old farts'.

GC

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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