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Please Help! Good Food To Have During The Gluten.casein Withdrawals?

lifenadlight

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lifenadlight Newbie
lifenadlight
Posted

I could really do with some help :) please...

I can't find anywhere on the internet where anyone suggests helpful foods during the gluten and casein withdrawals. my boyfriend is going through the casein withrawals at the moment, only 3 days in :( so at least 3 weeks to go.... just figured out that that has been the thing doing him in, as well as gluten and wheat of course (bit of a mine field) now i cant believe i didn't realise earlier. he's been glutened over and over by phony "gluten free" products and all of that, that apparently arent actually reliable, again only just found out. i feel like its an endless cycle of doom and no end in sight, its been almost a year since the first gluten withdrawals! he's horribly depressed as well as all the other physical symptoms and i'm so worried about giving him food that'll agravate the symptoms, any help would be really appreciated. thanks in advance :)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Go with fresh whole homecooked foods. Meat and potatoes, fish, chicken, fruit and veggies etc. I am curious what gluten free foods he having problems with? For some of us stuff like soy or bean flour can be a problem leading us to think we are reacting to gluten when we really aren't.

Tell us what his favorite foods are and maybe someone can be a bit more helpful on that end.

I noticed you are new to the board. Welcome and do read as much as you can here as there is much more to the gluten free lifestyle than just food. For example you need to make sure your lipsticks etc are gluten free and if you are a gluten eater you need to brush your teeth before you kiss. There are many things that the doctors don't tell us when we are first diagnosed which can keep us ill longer.

robertwilburn35 Newbie
robertwilburn35
Posted

I can't explain everything but I do know my body reacts more or less violently to different types of gluten. I am not sure of all of them but soy dosn't usually bother me too much. Wheat and barley will have me laid up for days.

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    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

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    • trents
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      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
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    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
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