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Imunovir

SLHW

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SLHW Newbie
SLHW
Posted

Hi, I was prescribed Imunovir from Canada because my Celiac disease has caused me to also have extreme chronic fatigue. After receiving it today I saw that it contained wheat starch. After contacting the company I was told that it is in such a small amount (wheat) that it is still considered gluten-free. Well, I don't think I trust that! Just wondered if anyone had any experience with the medication. For chronic fatigue, my Dr. considers it a "last resort" medication. I sure was hoping, but now I am severely depressed as my last resort may not be an option. I appreciate any help on the matter.

Thank you so much!

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FernW Rookie
FernW
Posted

I have never heard of that drug, I also have Chronic Fatigue to where I am no longer able to work. Also have depression, nothing works for that either. Even got a dog, thought it would help, and she does some but I still sleep all day. I sleep about 15-20 hours a day. Not much time for anything. Been going on 4 years now. The fatigue came before the depression. Anyway you said the drug has small amounts of wheat in it. Well I only need a small amount to set off my celiacs. I would not take any drug with wheat. Might make you feel even worse. I am very interested in this drug and if you decide to take it let me know if it works. I will keep track of this thread. Thanks. Good Luck.

VydorScope Proficient
VydorScope
Posted

Hi, I was prescribed Imunovir from Canada because my Celiac disease has caused me to also have extreme chronic fatigue. After receiving it today I saw that it contained wheat starch. After contacting the company I was told that it is in such a small amount (wheat) that it is still considered gluten-free. Well, I don't think I trust that! Just wondered if anyone had any experience with the medication. For chronic fatigue, my Dr. considers it a "last resort" medication. I sure was hoping, but now I am severely depressed as my last resort may not be an option. I appreciate any help on the matter.

Thank you so much!

How long have you been gluten-free for? If the chronic fatigue is due to Celiac, then just being gluten-free for a while should clear that up with out drugs. I am not in a position to tell you to not take a drug that your doctor prescribed, but I would at least tell you to call him and ask him about it. Perhaps he has a different one he could offer? I will say this, if that drug was prescribed for my son, I would say "No, thanks."

SLHW Newbie
SLHW
Posted
  • Author

Thanks to you both for replying. You echoed my thoughts. A tiny bit of wheat each day seems like a terrible idea. I have been gluten-free for over 5 years. The fatigue party comes from celiac but partly from other things like high levels of Epstein Barr and other viruses. I can't even think of all the things I have going on. I have been going to a fatigue and Fibromyalgia clinic/doctor for 2 years and she is the one who prescribed this medicine. It is from Canada and not FDA approved. A friend of mine with similar fatigue has had some improvement with the drug, so I was hopeful but not after I found out about the wheat.

Thanks again for your help and opinions. I will post again if I have anything else on the matter after I call my doctor tomorrow.

SLHW

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    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

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