Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Really Frustrated!


drewsant

Recommended Posts

drewsant Rookie

I've been doing really well this last month, and staying away from gluten to the best of my knowlege. I've been eating garden salads, and gluten-free dressing, with a plain grilled chicken breast. I've been eating dark chocolate for snacks. I even checked my hand soap and shampoo, even though I thought it was going a little overboard with paranoia since I don't ingest the soap or shampoo, but they are both fine, and gluten-free, and I don't wear makeup. So I'm at a loss as to why I've had diarrhea in the last 3 days.

I had to leave work a 1/2 hour into my shift on Thursday. Made it through Friday-still had diarrhea, just not as bad. Then today, I was in the grocery store, and it just hit me again. I had to leave everything there, and just leave. I haven't even had any dairy, which never bothers me anyway, but I'm getting to the point where I'm getting paranoid about eating anything again, just like I did when I first started this diet.

The whole point to this post I guess is to ask--has any one gone on an elimination diet, where you only eat one food for like a week, then another food for a week, etc, to see if it makes you sick? Is this something I should try?

Or could it be because I started taking prenatal vitamins (gluten-free) about a week and a half ago? But I would think I would have gotten sick before now if it were the vitamins.

I'm just really frustrated and don't know what to do. I don't want to live on salad for the rest of my life. Maybe I should have further testing, maybe it isn't Celiac, but another food allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yep, I've done an elimination diet. At a dozen foods (pork, rice, olive oil, rice, and eight others) for two weeks and then tried one of each of the common allergens every few days... Or at least, that was the plan. The mental/emotional effort of doing that diet did me in. It was far too restrictive and drove me crazy. But I did a variation to learn that I was casein intolerant.

It can be a valuable test to perform, but do plan out how you're going to go about doing it, and make sure to follow the basic rules of eliminating whole food families for at least two weeks before introducing, and not crossing something off the list (thinking it causes no problems) without having put it back in your diet - daily - for at least a week. Use Google to get a bunch of helpful sites to help you design an elimination diet for yourself if you decide to do one.

But I would also ask what other medical tests have been done to rule out a pathogenic or other organic cause?

drewsant Rookie

After about a month of having very severe diarrhea--I mean eating or drinking anything would set me off, and Immodium wouldn't help, I went to the Dr, and he had me tested for different things, because I had recently been on about 3 different antibiotics for a kidney infection until they found one tht worked. He thought maybe it caused another secondary infection in my intestinal tract. Testing ruled that out, and several other things. Every time I get tested, which is usually once a year, they don't find anything, which is why they have always just called it Irritable Bowel Syndrome.

That's why I was wondering if it may be another food I'm allergic or intolerant to, because it seems like an awful lot of people have other intolerances other than just gluten. My doctor wants me to go to an allergist to be tested for several different things, because even he mentioned I could have other allergies going on. I've just been doing really well though, except for the 2 times where I ate gluten and knew it, and got over those episodes within about 3 or 4 days.

Guest BellyTimber

Drewsant, I noticed you mentioned antibiotics, they don't affect everyone equally severely but you may be a person who needs probiotics.

Get a brand that has over 4 billion organisms per capsule. Your bowels will show you what is an adequate and not excessive dose.

Also some live yoghurts have a better dose in them than others - in the UK Rachels and Yeo Valley were reputed to be the strongest when I last read about them some years ago, I don't know which brands you get where you live. If live yoghurt has sugar or sweetener in, that will tend to negate the probiotic element in it.

Also I found that the migraines that I have had since at least 17 years ago when I had a serious infectious illness and which are possibly largely triggered by stress, have probably been causing lots of my upsets because a symptom of migraine is often a digestive shutdown.

Also don't forget to drink water like I've been doing!

HTH

drewsant Rookie
Drewsant, I noticed you mentioned antibiotics, they don't affect everyone equally severely but you may be a person who needs probiotics.

Get a brand that has over 4 billion organisms per capsule.  Your bowels will show you what is an adequate and not excessive dose.

Also some live yoghurts have a better dose in them than others - in the UK Rachels and Yeo Valley were reputed to be the strongest when I last read about them some years ago, I don't know which brands you get where you live.  If live yoghurt has sugar or sweetener in, that will tend to negate the probiotic element in it.

Also I found that the migraines that I have had since at least 17 years ago when I had a serious infectious illness and which are possibly largely triggered by stress,  have probably been causing lots of my upsets because a symptom of migraine is often a digestive shutdown.

Also don't forget to drink water like I've been doing!

HTH

<{POST_SNAPBACK}>

Thanks for the suggestion. At this point, I don't think I can eat dairy without it making me worse, so don't know if yogurt would help. I've tried it before, religiously, and it never made any difference. Once I get over the diarrhea, I'm fine with dairy.

I drink tons of water, because I'm high risk for getting kidney infections due to my disability, so already got that covered!

It's funny, I've only had migraines since I started the gluten-free diet. The Dr. thought it was probably due to the drastic change in diet so quickly.

bluefin Newbie

well

i have not been on a diet so far

but i have heard a lot about atkins diet

search on google and you will find a lot on atkins diet

thanks

drewsant Rookie

Don't think the Atkins Diet would help my situation, but thanks for the suggestion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PrincessLEah Rookie

maybe you should try allergy testing. I have tons of stuff that make me sick f I eat too much of it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.