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Please Tell Me About The Link Between Lisinopril And Celiac

WitsEnd

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WitsEnd Rookie
WitsEnd
Posted

Hi. I am new here. I've been struggling with an undiagnosed illness over the past year and a half and been to every specialist in town without a firm diagnosis. Actually, every time a see a new doctor I have a new diagnosis: migraines, high blood pressure, anxiety, IBS, severe Vit D deficiency, slight anemia, and so on, but nothing seems to really be the right diagnosis.

My symptoms: sharp headaches, migraines, diarrhea, chest pains, stomach pains after eating, dizziness, vertigo, swollen lymph nodes, blurry vision, tingling in jaw, foggy head, heavy chest, severe gas, tight/painful stomach when I wake, pain in sides/kidney area/sides, sore throat.

I recently heard of a connection between Lisinopril and Celiac, and it just occured to me I started taking that about the same time the symptoms started. I stopped taking it for about a month and still felt bad, but I was still eating gluten during that time. I am back on Lisinopril again but now I'm concerned that's the problem. I can't seem to find much information on the internet though linking the two.

I did have a celiac blood panel, but in reading other threads I think I may not have received the full test. My results:

Anti Endomysial, IgA Negative

Anti Gliadin, IgA 6

Anti Gliadin, IgG 3

Anti tTransglutaminase, IgA 5

Anti tTrasglutaminase, IgG Negative

I have not yet had an EGD. That was the plan but it has taken a while to have this done and in the meantime I decided to try eating gluten free. I have felt remarkably better and most of my symptoms have gone or at least been greatly reduced. I now realize being gluten free will affect the EGD, but I started it on a whim and it was so successful I'm not sure I want to go back on gluten to get an accurate test.

I would appreciate any help you could give me.

Thanks!

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mommida Enthusiast
mommida
Posted

By removing gluten from your diet, you may have eliminated your chances of being diagnosed Celiac or Eosinophilic Esophagitus. Your symptom list fits both disorders.

roxieb73 Contributor
roxieb73
Posted

As far as I know there is NO link to lisinopril and Celiac. (I work in pharmacy) Celiac is a genetic disease. However your symptoms do sound a lot like Celiac. How long have you been Gluten free? I might or might not have an impact. There are folks with much more experiecne that will chime in. Sorry still new here and figuring it out myself.

Roxie

WitsEnd Rookie
WitsEnd
Posted
  • Author

Unfortunately I have been gluten free for 6 Weeks. I had already had the blood test and I honestly didnt think the diet would be that successful in eliminating my symptoms so I thought it was ok to try. Now im not sure I want to try gluten again for the testing.

However, I would like to stop lisinopril if that's a problem.

roxieb73 Contributor
roxieb73
Posted

Unfortunately I have been gluten free for 6 Weeks. I had already had the blood test and I honestly didnt think the diet would be that successful in eliminating my symptoms so I thought it was ok to try. Now im not sure I want to try gluten again for the testing.

However, I would like to stop lisinopril if that's a problem.

Oh no you have a bit of a delima. :( You need to get your doctor to change your lisinopril to something else. As far as the Gluten free. It is not fun AT ALL to go back on it. How important is the testing to you?

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I was at the Mayo clinic in May. I talked with Dr. Murry the head of the GI/Celiac dept. He said they're looking into what medications Celiacs have been on in the past to see if they can find links to Celiac-certain meds.

I had been on Lisinopril but it made me cough and clear my throat a lot. I went off it because of that. My sister had even more severe reactions to it. He said a lot of people don't tolerate it well. It's one that they are looking at, but so far they are still researching it.

Another thing that could be a possibility for you with migraines,etc. is a small intestine bacterial overgrowth. (SIBO) I was tested and was told I had a severe overgrowth. When bacteria is where it shouldn't be it grabs the nutrients from your food and emits toxins that get into your blood stream. Dr. Murry suspected it when I didn't improve much on a very strict gluten-free diet. He said reacting to additional foods is a tip-off too.

If you've taken acid reducing drugs, or PPIs, it's a good idea to ask for hydrogen breath test for SIBO. Acid is one of the things that helps keep bacteria in check. Be sure to take probiotics if you aren't currently. They crowd out the bad guys and aid in digestion. Very important to a distressed gut.

WitsEnd Rookie
WitsEnd
Posted
  • Author

Thank you for the info. I am not sure how important the testing is to me. I think I accidentally ate gluten yesterday or today because I'm feeling really sick right now. All the symptoms are coming back very strong. And I was doing so well! Finally feeling good for the first time in months, I almost forgot how sick I was. There's no way I could go back to being sick every day...this is miserable!

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      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
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      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
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      Body dysmorphia experience

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      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
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