Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is The Severity Of Your Reaction To Gluten?


kaitlynrose

Recommended Posts

keeponsingin Newbie

I'm not diagnosed, but I am symptomatic. I get headaches, nausea and fatigue...and depending on how much gluten I have, the reaction can start within an hour and stay with me for up to a day.

  • 4 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BBrien Newbie

Hello, I'm new to this site smile.gif

I am 17 years old, and have been gluten-free for a little over 2 years (wow, I didn't realize it has been this long). I have a younger cousin, 3 years my junior, who has Celiac and Juvenile Insulin-Dependent Diabetes. She has been gluten-free for about 5 years now. When she eats gluten, she doesn't get sick at all (in fact, she cheats all the time. *jealousy* :/ ). However, when I slip up, I am ridden with crippling pain, and do not feel better for atleast 6 hours. My reaction has always seemed very severe, and I was wondering, how bad are your reactions?

Kaitlyn

 

Wow, you're lucky!!! 6 hours?! My reaction when I eat either gluten or dairy lasts for about a week, sometimes more! I've had it for a little over a year, and I'm also 17 years old. You're reaction is similar to my friend's. All her muscles cramp up and she CANNOT move. She lays there for however long. My reaction is quite different. I puff up like an oompa loompa. Every inch of my body bloats terribly and I become sick to my stomach. During these times, the bathroom becomes my best friend. Also, I get these horrid migraines. They've given me tylenol with codeine, but of course people with Celiac's have malabsorption and so it doesn't work all that well. Also, I lose all sensation in my feet, legs, hands, and arms. Lately, it feels as if someone is pushing quite hard on the instep of my feet. It's not painful, but I cannot walk. It's happened in my hands and arms too, and I have to stop whatever I'm doing, even if I'm in class at the time. My skin also breaks out in random rashes (not sure what that's really about). Oh, the list goes on and on. 

 

Hope that helped!!!

B

  • 7 months later...
mommamanuel5 Newbie

Hey I just tested positive for this reaction and it might also be something else.  After eating something with gluten i start with burps, then cramps, "bathroom symptoms" and then at night i get the shakes and cant relax. I try hard to be good, its been almost 3 weeks, but I just had about 5 days of a reaction where I drink so much Nyquil to sleep through the pain that I'm worried about waking up. I'm sick of burping all the time and having cramps. My doctor has me seeing a specialist soon to probably scope for more issues. I'm so bad at knowing what I can and can't eat and my reactions are getting worse and it takes longer to get over them. I only got tested for gluten because of having 3 reactions in 3 weeks due to work xmas parties. =(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    2. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
    • Jane02
      Thanks @Scott Adams. Do you know if Kirkland Signature supplements share facility and production lines with other products containing gluten?  I'm worried that I'll react to this brand just like I did with other gluten-free labelled supplement brands. 
    • Matthias
    • Scott Adams
      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.