Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Neuropathy

stephaniesherie

Recommended Posts

stephaniesherie Newbie
stephaniesherie
Posted

Having been tested I am not celiac, but I have a severe intolerance to wheat and a moderate reaction to gluten/glaiden

So I am having so much trouble finding ANYONE who can relate.

When I have wheat/gluten I get the oddest symptoms 24-36 hours later.

Please tell me someone can relate!!!! Please!

  • dizzy!!!!
  • left leg just gets numbish - I present as normal but it's so aggravating
  • back ache/stiff joints
  • fatigue/no get up and go

Side vent: I went to this other natural dr. who thought it was all bogus and gave me these supplment with other sensitivites I tested positive, INCLUDING a B complex with wheat germ. Needless to say, I don't take those anymore, but it just bugs me how people just stare at me like I'm making these symptom up. Some restaraunts are so cold hearted. I was left with nothing to eat but iceberg lettuce, broccoli & onions the other day. I was nearly in tears because I didn't bring any food w/me.

  • 2 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


katie-sbb Newbie
katie-sbb
Posted

Having been tested I am not celiac, but I have a severe intolerance to wheat and a moderate reaction to gluten/glaiden

So I am having so much trouble finding ANYONE who can relate.

When I have wheat/gluten I get the oddest symptoms 24-36 hours later.

Please tell me someone can relate!!!! Please!

  • dizzy!!!!
  • left leg just gets numbish - I present as normal but it's so aggravating
  • back ache/stiff joints
  • fatigue/no get up and go

Side vent: I went to this other natural dr. who thought it was all bogus and gave me these supplment with other sensitivites I tested positive, INCLUDING a B complex with wheat germ. Needless to say, I don't take those anymore, but it just bugs me how people just stare at me like I'm making these symptom up. Some restaraunts are so cold hearted. I was left with nothing to eat but iceberg lettuce, broccoli & onions the other day. I was nearly in tears because I didn't bring any food w/me.

One of my friends gave up gluten as she gets extremely achy and stiff from eating it, so you're not alone.

Side vent - always think with your own head about anything you ingest!

LJR Newbie
LJR
Posted

I'm with ya, my doctor tells me im not Celiac, and does not believe I have a gluten issue yet all of my problems whent away when I whent gluten-free, casin free. Anyhow if I hapen to get CC everything comes back for about three days, the joint pain, dizziness, confusion, weakness, depression , constipation, insomnia and yes the leg problems, it feels like worms are crawling thought my leg muscles. Migraines and neck stiffness also becomes a problem. I tell people it's like having the worst flu ever for about 3 days. The confusion and lack of ambition sucks its like losing 100pts of IQ for a few days, I get nothing done, I just stare off into space for long periods of time when I should be working. So Your not alone!

Framefunnyfarm Newbie
Framefunnyfarm
Posted

Celiac can be very hard to diagnose I had been sick for 5+ years. I didn't present with the usual symptoms so no one picked up on it. I have been scoped but the G.I. wasn't looking very hard and was looking for something SO out of the ordinary it didn't return any results. After being in and out of the hospital for much of last year I was desperate and went gluten free. It saved my life. My stomach symptoms are stomach pain and constipation. And those symptoms are the easiest ones to deal with. My doctor diagnosed me celiac because of my inability to maintain vitamin levels and off of symptoms. I get HORRIBLE brain fog, sadness, fast heart rate, and achey muscles when I have had any gluten or even have been cross contaminated. It doesn't matter what they call it, the diagnosis is the same. Have your vitamin levels been checked?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Tazfromoz
      - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      14

      Shingles - Could It Be Related to Gluten/ Celiac

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until...
    2. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    3. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    4. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    5. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,073
    • Most Online (within 30 mins)
      7,748
    amaryliss
    Newest Member
    amaryliss
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Tazfromoz
      Shingles - Could It Be Related to Gluten/ Celiac

      By Tazfromoz · Posted

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.