Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possible Fructose Malabsorption?


pinkpandapants

Recommended Posts

pinkpandapants Rookie

So I've been trying for what seems like forever to figure out my stomach problems. For the past few months I thought that it might be Celiac, just because of all of my symptoms/problems put together (depression/anxiety, thyroid disease, eczema, stomach cramps, bloating, diarrhea), but the blood tests came up negative and the biopsies from my endoscopy came up completely negative. So it's not that, which, to be honest, I'm relieved about. But it doesn't solve my digestive woes!

Before I thought it might be Celiac I had been doing some research on fructose malabsorption, and thought that it might fit me better, but then I kind of threw that idea away until recently. My main problem is fruits. ESPECIALLY apples, which have the highest fructose content of them all. I can't eat apples at all, because they give me the WORST stomach cramps, followed by awful gas. I also can't eat pears or any canned fruit packed in pear juice, honeydew melon, plums, mangoes, or too many grapes or cherries (a few is fine). Besides the fruit, I have a big problem with some foods that contain fructans, ESPECIALLY tomatoes, but also artichokes, garlic and onion. I think that wheat may also be a problem, as it contains fructans as well, except I have to eat a LOT. If I eat too many sweets I also have problems.

I've been tested for allergies with ALL of the foods that bother me and nothing's come up. As I already said, Celiac came up negative. I don't even know where to start for a fructose malabsorption test, though. My gastroenterologist didn't even have a lactose intolerance test for me, she just said I probably was if I felt better without dairy! I feel stupid asking about more tests when I've already had so many done already with negative results. I just feel like I'm being a hypochondriac now. I told her about my problems with apples and tomatoes, etc., but she didn't really take it seriously. She just diagnosed me with IBS, but I know that food has something to do with it! I just want my poor tummy to be fixed. :c


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

You could have non Celiac gluten intolerance..or the damage to your small intestine was mild or not found. You can have Celiac with negative blood tests. Around 20-30-% of us test negative but have Celiac.

There's a test that can be done for frutose intolerance. It's very similar to the one for lactose intolerance and SIBO. You breath into a device that measures the gases in your exhale, then drink a solution and redo the exhale measure several times over a span of about 2 hours. You could push for that.

I would recommend you go 100% gluten free and see if it helps? If your system is inflamed some foods may be bothering you that wouldn't be once everything has settled down.

It's infuriating that Dr.s don't take this stuff seriously! :angry:

GFinDC Veteran

Right, failing the tests doesn't mean you don't have celiac disease. It may just mean the tests aren't very good. There is also NCGI (non-celiac gluten intolerance) which there are no tests for right now. So you are on your own if you have that condition, doctors can't test for it.

Finally-45 Contributor

My gastro said that fructose intolerance can be different for each person.... I have the worst IBS reaction from corn, but it's mild for other fructose sources. I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.