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Steroid Use And Negative Blood Tests

PaulaK

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PaulaK Newbie
PaulaK
Posted

My son has been screened twice for celiac disease, and both times the results have come back as negative.

He has all the signs and symptoms of celiac:

Severe Fatigue ( iron levels tested low on blood testl)

Nauseous after eating

Severe abdominal cramping and bloating

Passing gas

Bruising (his pt levels blood test came back as high)

He is so small in comparison to his peers, and way smaller than his brother was at this age

Lactose Intolerance test are positive

Frequent infections every 4-6 weeks (mostly sinus)

Constipation (at times he has the opposite and can hardly make it to the washroom on time)

Funny rash on knees and now once at ankle (Red bumps and blisters - very itchy before new one comes out)

He has severe asthma and is taking a fairly high dose of corticosteroid for his age twice a day. He is also taking a steroid nasal spray.

I am wondering if the steroids can have anything to do with the negative blood results we are getting?

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kareng Grand Master
kareng
Posted

Maybe:

Open Original Shared Link

"Would taking steroids cause the blood tests to be inaccurate?

Yes, but only if you have been taking steroids for a prolonged period of time."

PaulaK Newbie
PaulaK
Posted
  • Author

Maybe:

Open Original Shared Link

"Would taking steroids cause the blood tests to be inaccurate?

Yes, but only if you have been taking steroids for a prolonged period of time."

He has been on steroids for 4 years now
kareng Grand Master
kareng
Posted

You might want to share that wth your doctor. Its from a Celiac Medical Center so its reputable. They also have a way to submit a question. You might try that. They will want you to attach a scan of the actual blood test results or electronic copy and want to know the medicine and dosage.

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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

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      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
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      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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      @GlorietaKaro, your respiratory reactions to gluten make me wonder if there might also be an allergic (anaphylaxis) component at work here.
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      Am I nuts?

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      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
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