Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sore Tongue, Thirst, Loss Of Bladder/bowel Functio


lorka150

Recommended Posts

lorka150 Collaborator

Hi everyone,

I've been gluten free since late August and noticed some significant changes (note: SOME... But enough to motivate me!).

I've noticed a few things. My tongue is raw on the sides (not the top... And it's not coated). Does anyone get that?

Also, I have extreme thirst, so I pee constantly... But when I have to go, I HAVE TO GO. I'll pee right in my pants, there is no stopping. All of a sudden it is there and needs to be done immediately.

As for bowel, I notice sometimes it just 'comes' out. Does that make sense to anyone?

Hopefully someone will read this and be like, "Yeah, I know what you're talking about!"

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Between the urinary and bowel urgency, I might suggest talking to your doctor about pelvic floor issues. Pelvic floor exercises help many women with bowel incontinence, as well as the urinary incontinence. (It's the same muscle that runs along the urethra and anus, but different sections of it can be weaker, so you don't always get both incontinences, but can.)

The extreme thirst also makes me ask if you've been tested for diabetes recently? That is a major warning sign.

Nantzie Collaborator

Nope, you're not the only one. I've had the bowel movements just coming out too. It's awful. I haven't had an accident in public yet. But I'm a SAHM, and my bathroom is like 6 feet away. But there are times when I have to practically push my kids out of the way to get there in time. When I do go out in public, I either go by myself after my dh comes home or go with a friend of mine, so I can run (!) to the bathroom when I need to.

I had heard that there are kegal type exercises for bowel problems too. I'm planning on asking my doctor about that at my next appt, but I'm first going to have to approach the celiac issue, and I have no idea how that's going to go. So I might not be able to ask until later on. I've also heard that that can happen from having an intestinal parasite called giardia (I think that's what it was called) so I'm going to ask about that too. I know they can run a test called ova and parasites to check for anything like that.

I got invited to go to Europe recently, and I turned it down. Mostly because my kids are too little to take and too little to leave behind. But in the back of my mind, I was like, there is no way I'm going to be able to even handle to plane ride. I'd be so worried about having an accident that I'd probably give myself an upset stomach just from the stress. And then there's the insanely long lines at the bathrooms in all the tourist places. I'm very lucky though because my husband's mom was born and raised in Germany and there is a family trip over there every couple of years where we stay with her brother and his family. So at least this chance to go to Europe wasn't my only chance to go.

Nancy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    2. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    3. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    4. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      High DGP-A with normal IGA

    5. - trents replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Finding gluten free ingredients


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.