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razzle51

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razzle51 Apprentice
razzle51
Posted

well after trail and error and 2 more test I do not have celiac ... yipppeeeeeeeeeeee

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GFreeMO Proficient
GFreeMO
Posted

Ya know...I may get in trouble here for this but that is one of the rudest comments that I have ever read on here. Glad that you don't have celiac but the rest of us here do. I am currently glutened and feeling like crap so nice way to rub it in.....good going!!

kareng Grand Master
kareng
Posted

You know, Mo....I sort of thought that at first, too.

But then I thought....We always want to know what the results are with the people we help on here....maybe he/she just thought we would like to know that. And, who among us wouldn't like to not have Celiac?

Of course, Celiac is a definitive answer for why someone feels ill. Now this poor person has no idea why he is having the issues he has. Maybe he is NCGI? Maybe he has a parasitic infection? Maybe cancer? Maybe Chrohn's? Worse things than Celiac.

So to Razzle51 - I'm sorry that the doctors have not found out what is causing your medical issues. I hope they continue to search for the problem and find a good solution for you and you return to good health soon.

nvsmom Community Regular
nvsmom
Posted

Congratulations! :) I hope you figure out soon, and consider non-celiac gluten sensitivity if you continue to have problems.

Adalaide Mentor
Adalaide
Posted

I'm not sure what to say exactly. There is nothing quite like being deathly ill and having all the tests say you are in perfect health. What tests did they do precisely?

GFreeMO Proficient
GFreeMO
Posted

True..true...So sorry, I hope that you feel better soon and get to the root of your health issues.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I am delighted for you. Be sure to hang around and ask questions if you think gluten-free might help. I have a diagnosis of NCGI and feel way better on a gluten-free diet. I hope you get to the bottom of things.

Good luck

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kristenloeh Community Regular
kristenloeh
Posted

Yeah, I was actually happy to be diagnosed with Celiac because I at least knew what the problem was FINALLY after 10+ years of suffering and could get on the track of feeling better. Sorry you don't have the answer yet.

IrishHeart Veteran
IrishHeart
Posted

well, I was going to say pretty much what Karen said, so I'll just say

"what karen said"

and since I went most of my life not knowing why I felt so bad, had horrible symptoms progress in the last 10 years and pretty much was ready to die, I am one of the few people who said :

"I have Celiac! Hot damn! whoohoo!"

because I knew I had an answer and I could get well.

And, I have to add this cautionary note: sometimes, despite the negative testing results, if it walks like a duck and acts like a duck.....

(my celiac blood panel was negative and that set me up for 2 more years of living hell)

It may not be celiac, but the gluten intolerance spectrum is pretty wide.

Adalaide Mentor
Adalaide
Posted

well, I was going to say pretty much what Karen said, so I'll just say

"what karen said"

and since I went most of my life not knowing why I felt so bad, had horrible symptoms progress in the last 10 years and pretty much was ready to die, I am one of the few people who said :

"I have Celiac! Hot damn! whoohoo!"

because I knew I had an answer and I could get well.

And, I have to add this cautionary note: sometimes, despite the negative testing results, if it walks like a duck and acts like a duck.....

(my celiac blood panel was negative and that set me up for 2 more years of living hell)

It may not be celiac, but the gluten intolerance spectrum is pretty wide.

That is sort of why I asked what tests were done. Sometimes a duck is a duck is a duck. I don't care if the tests tell you a duck isn't a duck, if a duck is staring you in the eyes, it doesn't matter what a piece of paper says. You would be a moron to say, hey, that ain't no duck!

ETA: Also, once I got my head out of my ever too ample backside, I was thrilled to have an answer. I was thrilled to not have to be on a half dozen drugs with 4 dozen side effects worse than how sick I already was. All I had to do was stop eating gluten. Simple. (Bwahahaha!)

1desperateladysaved Proficient
1desperateladysaved
Posted

I was relieved to find I had celiac. I liked having an explanation for 30 years of fatigue and a way out. Yeah, I would have been glad if I didn't have to follow the diet, but I would be back to square one of what to do next. I just hope that you Razzle51 will find the keys to your health struggle and be able to do something about it.

Diana

VeggieGal Contributor
VeggieGal
Posted

I think I was more scared of getting a negative/borderline diagnosis because theres nothing worse than not knowing for sure, especially with all these false negatives people get which I keep reading about. At least with a dx of celiac or if you've worked out you're a NCGI then you've got something you can deal with.

I'm still new to all this but hope you find out whats causing your symptoms Razzle...may even be worth going gluten free for a while to see if things improve or try an elimination diet (I'm sure you"ll find loads of info on here on how to go about it).

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