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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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Nikki2777 last won the day on June 3 2016

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About Nikki2777

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  1. In New Hampshire, I've had good experiences with the Common Man sandwiches at highway rest stops, believe it or not. Now, I'm not the most sensitive, but they seemed very aware of cross-contamination. It's very useful as most highway rest stops have me reduced to eating a bag of Fritos for lack of other choices. I use Find Me Gluten Free all the time and have made great local finds through it - I read the reviews carefully, and ask more questions when I get there to be sure I trust them. It's a great resource. I find a lot of Italian restaurants will do gluten-free pasta in its own pot, which I then ask them to add a little olive oil, parmesan and garlic, and then I don't have to worry about the sauce. Also a lot of colleges in New England, and college towns are pretty good for finding Celiac-Aware restaurants.
  2. I was told that, too, once (see my post from 2015). been eating them happily ever since as long as they don't add anything to them.
  3. Yes, only some of the Luvo meals are Gluten Free, but the ones that are taste pretty good. Ennis_TX, those miracle noodle meals seem like great options! I'm definitely going to try them. Thanks for the suggestions!
  4. I have had luck with some of the Luvo meals, and a company called Blakes makes some good ones, including a gluten-free Shepard's Pie. There are some frozen Indian meals that are good (TJ's has a Chicken Tikka Masala). Not frozen, but add water and microwave, are some of the Thai rice-noodle 'bowls". I'll post back with more when I remember them.
  5. Reporting back that i have had them several times now, with no problem. I dust off the bag with a napkin before i open it, just in case they used tongs to take it out of the oven, but in general it seems very safe. Seriously - this is a huge win for me, and likely for others. Thank you, Starbucks!
  6. I know they're brand new, but has anyone with Celiac tried the gluten-free Breakfast Sandwiches with Canadian Bacon that Starbucks just introduced? I asked at my local Sbux this morning and while they are packaged on arrival, they seem to be heated up on a new sheet of paper but in a shared oven (microwave?) The barista suggested maybe taking it up to my office and microwaving it there, but couldn't confirm that their 'oven' is a microwave vs. something else. The Starbucks press release says there's no risk of cross-contamination but I know better than to risk it without checking in with you smart folks. A good, readily accessible breakfast sandwich would be life-changing for me ;-)
  7. There's a gluten free drug list you can google; I've used it many times. I take Mylan brand generic Levothyroxine, which was on that list -- that said, I periodically re-check that it's still on there (haven't lately) And while I can't swear I haven't seen any reaction (based on my normal symptoms), my blood tests come back fine.
  8. I've done a search but can't find much recent -- the older posts that I've found here on Carmex and Burts Bees seem to say that these are safe, but when I go to Carmex's website, there's nothing (I've e-mailed them, but don't have a response yet) and Burts Bees says shared lines, etc. Does anyone have recommendations for something I can use that is currently known to be gluten fee (drugstore brand, please)? My lips are sooo dry!
  9. I go to my inlaws every year for the holiday. They love to cook and they're very conscientious at this point about my issues, but I generally bring up my own breakfast cereal and gluten free bread (and some wine!). When I'm up there, I head to the grocery store and get some packaged cold cuts so I can make myself a sandwich when I need to, some yogurt and gluten free pretzels to munch on when everyone else is snacking. When they make eggs, I wash out the skillet beforehand and ask that they use a fresh bar of butter to grease the pan. I agree on the foil or parchment. But basically, I don't try to replicate their meals - it's too much work and makes them self-conscious. I just opt out of what they're having and fix myself a sandwich. It's 5 days of inconvenience, but it's ok.
  10. I've started using one called Epicured (getepicured.com). it was designed to be a low FODMAPS food service, but it's also 100% gluten-free. The food is generally very good, though it can be pricey. I don't know if they're nationwide yet (they're only launched in July, I think). Those are prepared meals. For meal prep delivery, Green Chef has a gluten-free plan, though it's a shared facility. Food is good. We also use Blue Apron - while there are some things i can't eat, I can often make substitutions, and they're very specific in their ingredient labeling (I've called them to discuss). Customer service is excellent and most meals are delicious.
  11. Breakfast on the go is always trickiest for me - I go with a whole fruit - banana, apple - or a yogurt, or a small bag of nuts. Occasionally, I have a couple of hardboiled eggs at my local pret a manger. Much prefer breakfast at home, where I can make myself an egg and cheese sandwich with avocado on gluten free toast. Or cereal ;-)
  12. I know what you're going through - it's that grieving process and it's tough. I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life. I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving. The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal. For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening. Eventually you'll be able to get back to your version of 'normal'. Oh, I also have hypothyroid/hashimoto's. No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein. You don't have to go crazy on the cooking. Just eat a lot of whole foods. There are a lot of complicated recipes out there, but now may not be the time. Rice noodles in veggie bouillon - easy and cheap. gluten-free pasta with olive oil, parmesan and garlic - easy. I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you? That could be contaminated. Go with packaged. Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section). They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce. They're my go to on days I don't want to cook. Good luck!
  13. In our house, I have a separate cutting board, toaster oven and grill/panini maker. I also rinse out pots and pans before using them because my teenager isn't the best at handwashing things out after he makes ramen. We have stainless pots though - I might be more concerned if we had non-stick as they can get scratched up and gluten can hide in the scratches. I have separate jam jars and butter, and squeeze mayo, but we share other things and everyone knows to scoop things (like hummus) into a bowl before dipping into them. More and more of our snacks are gluten free, because the kids actually prefer gluten-free pretzels to regular ones. Oh, and I no longer allow regular, delivery pizza into the house because no one is careful about the crumbs. We don't drink beer, either, but if we did I'd probably require separate glasses for that. You get used to it.
  14. I have gotten glutened from kissing - my husband after he had eaten pizza and I'm sure some crust dust was still on his lips. That said, I doubt if he's just had tea that you would have a risk. Maybe see if you can get him to drink some water, too, just because he's likely to drink a higher volume of that. You could 'accidentally' spill a glass of water at his face to rinse the lips off ;-)
  15. Recent reports that many probiotics labeled gluten free may not actually be. I don't recall names but you can probably google it - it was in the news over the last month. Really frightening how many people were likely harmed by this. And as for the brats on the rollers, you can't know what else has been there, how they clean - even if there's no beer brats on there now, how do you know they weren't recently? The only place I can imagine buying dogs off the rollers is a place I know that only uses gluten-free hot dogs.