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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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  1. Jan, thank you so much for your input. I was able to eat about half a jar of organic babyfood squash about 10 hours ago, nothing but squash & water in the ingredients, and with no pain! I also feel better today than I have in a week or more. The info about cauliflower and broccoli was surprising to me..i love those foods but it seems like they would cause a lot of gas? Maybe it's different when they are really boiled down? I don't think I've ever eaten those any way but just barely steamed. Anyway, I am willing to give it a try, but I have a question...do you recommend the broccoli stalks, the "trees", or both? I think I will avoid bananas at this point because they have given me trouble off and on my whole life, except when cooked in banana pudding, but I have no clue how I would manage something like that with no starches or thickeners. As for avocado, any advice on picking one out? I have only bought one avocado ever, and I think it was a bad one, it just grossed me out to the point that I never even tried one again (expensive, too). Again, though, I am willing to try! Ali, thanks for the welcome I plan on asking Tuesday when I see the GI if he will test for H. Pylori and SIBO, but I am feeling a little hesitant to bring up the subject of Candida, as I don't want to be put on some prescription junk for that. Or is prescription junk the only way to get rid of it? I do think you may be onto something about my gut being compacted. I won't go into detail but um, odd things have been appearing. Another question...I was skimming somewhere, and I am pretty positive I read that the Welch's grape juice on the shelves today is not the same as when the book was written. Is this true? I have stopped drinking the watered down juice and switched to plain water instead.. interestingly, the D has subsided since I stopped. I'm not sure if this is a good thing or a bad thing. I plan on trying to get to the local health food store in the next town today, for some organic cider, I can't find that in the grocery store at all...unless Simply Apple counts? I don't think it does. I am also going to try and find some plain coconut milk and attempt the homemade yogurt with that. I do not think I can do goat's milk. I bought some about a year and a half/two years ago when I was having trouble with dairy, and oh my gosh, the smell...it smelled like the goat had bathed in the milk. I couldn't get past that awful odor! Thank you both again for your help, I do greatly appreciate it Jenn
  2. Hi, wow this is a really long thread. I apologize if the questions I have have already been answered, but I am extremely exhausted and at this point cannot sift through so many pages. I have had trouble eating for months. I posted several days ago about it and was directed to this forum. On the 8th, I went to the E.R. as I was unable at that point to even drink water without being in excruciating pain. I explained my history and symptoms to the E.R. doctor, and unfortunately, nothing was able to be done in there other than refer me to a specialist. Fortunately though, this doctor's mother in law has celiac disease and he understood my frustration with doctors who won't listen. Today, I finally got an appointment with a GI who will see me without insurance, and will allow me to make payments as I can. The problem is, the appointment is not until Tuesday, and then I'm not even sure there will be any solution to what I'm experiencing now. The E.R. doctor did prescribe me Bentyl to help with the severe stomach pain, and though I had very little faith in it, it has helped...a couple of hours after taking the first pill I started passing what appeared to be rotting, undigested food (very sorry for the TMI) and the pain has subsided. I am able to drink watered down grape juice and homemade strained chicken broth as described by the SCD. I have been doing that for 3 days now. I am still unable to tolerate anything near a solid food, though. Last night, I ate maybe a tablespoon of pureed carrots boiled in the broth, and was in extreme pain for hours. I have looked over the legal/illegal list, and the foods allowed in the stages (what is available online, anyway, I have ordered the book but do not have it yet) and I don't know what to do. Nothing in the intro stage can I tolerate other than what I'm already doing. My energy levels are extremely low, except for maybe 90 minutes or so after drinking broth. It does make me feel better. Surely there is something else I can try? My body is asking for something more, but I have nothing more to give it that I know of. I am terrified of food right now. I have to go back to work over the weekend - no possible way I can pay my bills if I don't work at least a few hours. I don't know if I can do it on just broth and watery juice though. Does anyone have any suggestions? Some other liquid that would most likely be easily tolerated, and maybe provide a bit more energy, or add to what I am getting from the broth? I sincerely appreciate any suggestions/advice. Jenn P.S. Thank you to AliB, I tried to reply to the wonderful PM you sent me, but the system would not allow me to send it.
  3. Please, Help...

    Thank you very much to everyone who has responded, I truly appreciate you. Unfortunately I do not qualify for Medicaid; in my state, to qualify as an adult, your income must be somewhere around $100/month. Took them less than a week to shoot me down on that one. I am going to do my best to try and scrape up enough to see a doctor, or maybe to the ER and insist they do something rather than turn me away again. I will also check into the SCD forum and try some things there. Foxfire: I am in my mid-30's. I suspect premature menopause, but I was laughed at when requesting a blood test to see. To AliB: I tried to respond to the message you sent, but got an error that I was not allowed to send (something along those lines). I would like to thank you also, you were very helpful. Thanks again to all and I will post updates when I am able so that maybe I can help someone else who may be having similar issues. ~ Jenn
  4. Hi all, It's been a long time since I was last here. You all were so very helpful then, and I'm hoping someone can help me now. I've been gluten-free for nearly 3 years now, I think. I've backslid a few times, and paid for it dearly. Won't go there again! Lately though, it seems like *everything* I eat except watermelon and berries and frozen veggies is making me sick(nauseated, headaches, acid reflux). I am having what I believe is "dumping syndrome" very frequently...to the point where I almost can't eat at all on work days, not before or during work anyway, I have to wait until after I get home. I've lost 4 jean sizes in the last month/5 weeks. I've had headaches nearly every day for about 7 weeks. My stomach and intestines HURT. Sort of a constant ache, until I take vitamins (positively gluten-free) or eat something other than the watermelon and berries, then it is very painful. Especially B vitamins, I can feel that Niacin hit a spot in my stomach that burns like the fires of hell, and I want to pass out it is so bad. So I've been neglecting the vitamins for way too long now...a good 6/7 months. I know I can't live off of only fruit. Milk is definitely out, anything dairy is, even yogurt I can't take ibuprofen or naproxen sodium anymore, or I bloat and hurt something awful. I can handle acetaminophen, but it doesn't really help the headaches and body aches. I have run out of options as far as doctors go. No health insurance, and I don't really trust that they will do anything more than throw another useless prescription pill at me anyway. I am lost as to what to do next. I am depressed again, that is the worst part, because going gluten-free relieved nearly a decade of clinical depression. My thinking has become cloudy again like it was before I was gluten-free. I have checked and double-checked all cosmetics, shampoo, detergents, etc. Nothing with any trace of gluten. If anyone has any suggestions on what I could try on my own...foods? Alternative medicines? Anything really, I will be so grateful. ~ Jenn
  5. The donuts came out really really good! I had my oil a little too hot so they weren't perfect, but they still had that really nice krispy kreme type texture. We made regular, chocolate dipped, powdered sugar, and lemon curd filled...talk about a sugar high! It wasn't the better batter flour mixture I used tho, it was the mixture Naomi posted on the recipe, except I subbed coconut flour again for potato flour, which I cannot seem to find anywhere around here. I am definitely ordering some of the better batter flour mix, though. Seems like she has a real talent for getting stuff to taste the way it used to!
  6. I have tried this recipe from Naomi's blog (BTW, thank you mamaw, I first found her site thru one of your posts!) and although I have not made the donuts yet, I did try two of the variations of the recipe - the potato bread and the flat bread. I didn't have potato FLOUR, so I subbed coconut flour and everything came out fantastically. I will be making the donuts over the weekend though, so I will post back and let you know how it turns out!
  7. You can make your own marinade out of pretty much anything that you think would taste good... my favorite "recipe" is to just dump a big bottle of tobasco sauce over my cut strips of meat, marinate for a day or so, then dehydrate. YUM. I have to hide it or the whole family gobbles it up in no time!
  8. That's really weird! But I'm curious as to which pinky finger we should be looking at?? I voted based on my right hand, because I am right-handed. It is shorter than the last joint by a good quarter of an inch....but on my left hand, my pinky finger is even with the last joint!
  9. I am so sorry you are feeling so bad right now. Information overload, feeling overwhelmed, grief over your dad's passing, plus being so new to this -- all that is probably contributing to your distress. I wish I knew exactly what to tell you to make it all better. I've been gluten-free for a little over a year now and this past summer has been full of so much family drama and chaos, I feel like I've got stress-induced celiac type GI symptoms returning. I'm a little bit in self-destruct mode right now and fighting the urge in a major way to just give in to gluten cravings which I know are bad, bad, bad, but deep down I know 'this too shall pass'. I'm not very good with words or insightful advice, but I just wanted to let you know that I empathize completely with your frustration and my heart goes out to you. I do think it's entirely possible that part of what you're going through right now could be 'gluten withdrawal' symptoms. Hopefully those will pass sooner than later. In the beginning of my starting the diet, I was so frustrated that I decided it would be more beneficial than harmful to temporarily let myself give into a vice, so to speak. For me it was Snickers bars. Anytime I felt down or deprived and was just craving junky carby food, I would grab a snickers. I bet I went through about ten bags! I also ate lots of chicken. I could eat chicken morning, noon, night, and anywhere in-between, haha. After a couple of weeks of that though, I didn't have that deprived feeling and started not to crave the junky foods. Right now I simply cannot think of any ideas on telling you what to eat -- being at a relatively low point right now, ALL I have been craving is junk, junk, junk (but again, I know this is temporary!). I am sure there are plenty of people here who could give you some ideas as most everyone on this website has wonderful suggestions and are so supportive. Just for the record, I don't think any of your comments are "dumb-ass" comments at all. Plus, I think a colony of celiacs living together would be awesome, as long as we've got really good plumbing! It would be so nice to live amongst ( and actually be able to socialize and date!) people who actually get it! Sorry for the rambling. I hope that maybe you can get some small comfort knowing we all go through rough times, especially in the beginning.
  10. I had it done 13 years ago. If there was only one thing in my life I could go back and change, it would be choosing not to have that done. For years afterward I had pain so bad (I'm guessing it was during ovulation, because it wasn't during my time of the month, but about 10-12 days before) that I would be on the floor crying, nauseated, about to pass out. I also never had a problem with my weight until having my tubes tied, I have ever since. I am also convinced that it messed around with my hormonal balance somehow. My skin is oiler and more prone to breakouts since having that done than it was in my teen years, my hair on my head is thinner, and my body hair is thicker. It is so extreme that I have ended up taking birth control pills to minimize the problems! A doctor will insist that having your tubes tied will have no such effect, but if you google and read other people's experiences, it should leave no doubt that sometimes, it certainly can.
  11. I react to all Lay's Stax, plain or flavored -- but I don't think it's CC. Symptoms are similar to but slightly different from any other time I have gotten glutened. I dunno what it is, I just stay away now. The Lay's in the bag are fine tho, for me anyway.
  12. Hi! It's possible the colander could still be causing a problem. I was very stubborn at first, not believing some things could hold onto gluten forever, and had occasional problems until I finally gave in and replaced everything as suggested. Another possibility is you might have a virus. There is a super nasty one going around, all over the country it seems... my kids and I had it for almost a week. There were several days of lots of dizziness/light-headedness and weakness and I didn't even realize it was a virus, until all of us got the same symptoms and then the icky bathroom part of it kicked in.
  13. Well, they came out pretty good. I think my dates were maybe not fresh enough, or this would have turned out better. They are extremely easy to make - I didn't really measure anything, just sort of dumped stuff together. I added some raisins, toasted coconut, toasted amaranth, cinnamon, cloves, and some unsweetened Bakers chocolate, chopped up. The taste is really good, especially the second day, but they are a lot chewier than the larabars I have tried. I think I'm going to play around with this recipe some more and see if I can get results closer to the real thing.
  14. This is really great info, thank you all so very much! I can see now that I'm probably going to go broke and gain fifteen pounds....the biggest health food store we have around here is about the size of my living room, haha. Whole foods sounds like gluten-free paradise compared to that! I'm already drooling at the thought of gluten-free chicken nuggets and fish sticks...mmmmmmm....
  15. I know this is an old topic, but I was looking for just this sort of thing! Sooo, after not finding exactly what I wanted here, I googled, and found a website with a recipe that looks very promising. I plan on making these this weekend...I'll post results if anyone is interested. Homemade lara type bars