• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mucousy Stools A Symptom?
0

5 posts in this topic

My daughter who is now 2 1/2 was diagnosed with ulcerative colitis in January after a colonoscopy. Her main symptoms were loose stools (2 x day) with lots of mucous and, infrequently, traces of blood. She's been on the meds for her colitis for two months now, though I don't see any change in her stools. The ped GI tested her stool and found no blood as well as no WBC's, which is a measure of inflammation. He ordered one more test (alpha 1-antitrypsin) to check out the inflammation in the colon as well.

In February, her celiac panel came back positive for IgA's and IgG's, though the other two were negative. He said he wants to recheck that in two more months to see if the numbers have increased. He said we need to give it some time for her to build up antibodies to get an accurate result (since two year olds haven't had much time to do that).

I know her symptoms are mild right now, but I'm having trouble waiting. I just want to fix it! I understand going gluten free would be tough, but I want to do whatever is best for her. Here's my main questions...She's very pale with dark circles under her eyes - is that also pretty common in kids with celiac disease? Also, is mucousy stools a common symptom? It's so hard to say since she was diagnosed with ulcerative colitis as well. Any info would be appreciated! Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Have you and your doctor conscidered gene testing? Both the dark circles and the mucousy stool could be caused by celiac disease. Also, ulcerative colitis and celiac disease can be caused by the same genes. It would be worth looking into. It doesn't sound like he is ruling out celiac disease, but it sure is hard to sit back and wait for more testing. Basically, in order for your daughter to have positive antibodies (EMA and TTG is what they want to see before diagnosis) then her intestines have to be damaged enough for the antibodies being produced to "leak" out into the bloodstream. Know this is what is happening kept me from waiting. I got my children tested through Enterolab and then put them on the diet. This is good for their health (they are all three improving), but they do not have an official diagnosis, which is sometimes hard. You have to consider what is best for you and yours. I would try for the gene test first, and then maybe it won't be necessary to wait for more blood tests.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

I'm curious what you mean by "mucosy" stools, because I too have both celiac disease and Colitis, and lately I've noticed my stools are more "fatty" I guess I would say, than usual. I noticed this more since trying the new medication, Asacol, for the colitis. I also have paleness and dark under-eye circles that have not lessened at all since being gluten-free for 9 months. Now I'm wondering if it was the colitis causing this after all. What type of symptoms is your daughter suffering from, and what have they suggested medication-wise? I'm still learning and getting adjusted to the Colitis part of my diagnosis and am eager to talk to others who have people in their lives with both celiac disease and Colitis. It's so hard to tell which one is causing me the problems I'm still having! I'm also wondering if it's possible that my celiac disease diagnosis was incorrect and the disease I've had all along was Colitis, but maybe not since my small intestine did improve on this diet.

0

Share this post


Link to post
Share on other sites

My daughter's only symptoms are mushy, mucousy stools, usually 2 x day. Rarely, she'll complain of tummy pain right before she poops. She's taking azulfidine, which she's been on for two months. I have no idea what's causing them...I still question the UC diagnosis. Who knows! I hope you're doing well. Keep in touch!

0

Share this post


Link to post
Share on other sites

Hello :)

I know we have PM'd, but just wanted to tell say my 2 yr old's symptoms sound exactly like yours. She had lots of mucus in her stools, and also complained about her tummy hurting before a bowel movement sometimes. She is also very pale and has dark circles under her eyes. She is a blond hair blue eyed gal anyway, so it might be more noticable with her fair complexion. She has not been really formally diagnosed (I won't do the biopsy) but her two anti-gliadin antibodies were high like your dd's. She didn't have the other antibody tests done. Her stools are so much more normal since going gluten free/casein free. Also wanted to mention that my friend who is a pathologist looked up the #'s for me, and with both tests being positive, there is a 97% chance of my dd having celiac disease. (what the other 3% is, I can't seem to find the answers for). That was enough for me to go gluten free. Anyway, I know I've told you my story a million times. Hang in there, and PM me if you want.

Mel

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,798
    • Total Posts
      932,527
  • Member Statistics

    • Total Members
      64,287
    • Most Online
      3,093

    Newest Member
    Butt
    Joined
  • Popular Now

  • Topics

  • Posts

    • Many celiacs can eat 10- 20 mg of gluten per day (10-20 ppm in one kilogram of food) without adverse effects.  That is roughly equivalent to 1/16-1/8 teaspoon flour.  More than a trace, but still a small amount.  Some of us cannot handle that amount.
    • Everything with the gluten-free certification must be below 20ppm in a lab test. THAT is much much less then a crumb. Toasters are cheap just get a new ones. If you eat whole foods only your chances are much much less of getting CCed. We normally suggest no gluten-free processed foods (dough, mixes, chips, crackers. breads etc) for the first few months only eating whole foods to boost your healing also remove dairy and oats as they can be hard to process with the initial damage (Diary requires the enzyme lactase which is produced by the tips of the villi in the intestines which are the most damaged).   To make it much easier clean our your microwave really goods, put down some paper towels in the bottom when you use it and get some nordicware microwave cook ware, a new mixing bowl. measure cup, spatula, and some basic eating and cooking utensils and you can start fixing stuff that way starting off without worry. I love steamed veggies, omelettes, etc done this way so tender and easy to digest.  I might also suggest using freezer/butcher paper for a clean prep surface starting off also makes clean up a breeze since you just trash it when done.  You can get the rest of you appliances, pots, pans and everything else changed over later. And this makes it simple to get started....PS crockpot liners are a life saver and making huge pots of stew, or roast in them from raw ingredients is super simple and you can eat on it for days.
    • Hi again Victoria  - I've just read your other comment about your insides feeling like they might slip out!  Poor you!  But yes - I can identify with that.  I actually get that exact feeling when I get a UTI - are you sure you haven't got a UTI?  x
    • Third trimester pain is a good way of describing it!  I know someone with another gastrointestinal complaint - diverticulitis - which causes this sensation too - so it could purely be down to our gut. What I would say is what side is you pain on? Is it pretty diffuse or is it on the left or right side?  For me, it was the left side, rather as if when I was pregnant a baby was standing on my hip/groin area.  As it was on the left a sigmoidscopy was indicated to make doubly sure nothing else was going on, after an internal pelvic scan u/s ruled out other problems. (I note you have had a hysterectomy but have you had any of the above scans recently? - might be worth doing to give you peace of mind). If you want to find out if it is your sacroiliac joint causing you problems, a physio or chiropractor will be able to put their finger on it (literally).  My left sacroiliac joint is very tender now but before I was shown where the joint actually was, I wouldn't have known  otherwise as the pain refers in a great part to my groin.   I nearly shot through the roof when my chiropractor touched the sacroiliac area.   The cure for that is rest and the right type of exercise, not carrying heavy loads, wearing comfortable supportive shoes etc. Another thing that pelvic pain can be caused by is pelvic congestion.   I'm not sure if this would affect someone who has had a hysterectomy. One radiographer told me I had a lot of veins (like internal varicose veins) which might be causing me pain, although when the gynaecologist looked at me she said they were normal.   Personally, I think in my case it is a mix of sacroiliac issues, bloating and possibly pelvic congestion!  A bit of everything in the mix! One thing I cannot do any more is wear tight waistbands or other tight clothes.  For whatever reason this makes things so much worse.  If you are wearing tight waistbands, definitely give that a miss. Sorry - this is a bit of a ramble, but it might throw some light on your situation.
    • So this is all new to me. Had an endoscopy done. Showed inflammation, some biopsies were taken etc. researching going gluten free and I'm completely baffled. What I've read says even a trace of gluten can be "poisonous"( sorry for the dramatics) to a person with celiac, yet gluten free doesn't mean 0 gluten. How is that supposed to provide any peace?  Someone said to get rid of even appliances that had gluten in them due to contamination. How is it that crumbs in a toaster are worse than gluten in supposedly gluten free food? The diet itself doesn't scare me. I've actually found comfort in all the gluten free options. Baking mixes, doughs, pasta, pizza crusts, etc. I was very pleased that I could maintain eating what I like with relatively minor adjustments. The concern being that even doing this, there's still a possibility of consuming gluten just makes me feel like I'm never going to get ahead with this. Any advice?
  • Upcoming Events