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Child Of Celiac


julianne

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julianne Newbie

I'm the wife of a celiac diagnosed 8 years ago. He's doing great on the gluten free diet. I have 3 children, 12, 10 & 5. I had my 2 oldest tested for the antibodies (through blood test) and both were negative. No tests since then. My 10 year old now shows symptoms of psoriasis. It started on his scalp in August. Doctors first thought ringworm (yuck!) had the culture performed which takes weeks to grow. Then started the 8 week course of antibiotics. Throughout this time I also applied Elicon (leftover from my other son's mild exczema). That mild steroid was the only thing that would make these spots almost seem to heal. But after a few days of not using the Elicon, the spots would return to looking as they had before. Went back to the doc 6 weeks into treatment because my son now has more spots on his body. Doc now thinks psoriasis since it responded to the Elicon and he finally used the black light which showed no presence of ringworm (They glow under ultraviolet light)(Why didn't the first doc do this?!) :angry: .

To me they don't look like the pictures I've seen of DH because his don't look fluid filled at all. Can DH be all over the body including scalp and penis? Or does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?


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...does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?

The relationship between celiac and psoriasis is that they are both auto-immune diseases. Meaning that the body is essentially attacking itself. Whenever you have one auto-immune disease you are at a higher risk of developing others. That is about the only connection that I know of though.

I have psoriasis. So far it is mild, but over the years it has been spreading. I have not found anything to treat it that will work long term. If I use the cream religiously then it gets a little better, but if I forget for a day or two, then it is back with a vengeance! I am sorry that your 10 year old is having to deal with this. I have a 10 year old boy also and I think how awful it would be for him...

Now as for having the kids tested again, YES. They should be screened for the disease about every few years, sooner if they are having symptoms. Since they are biologically related to someone (in this case a parent) they have an increased risk of developing the disease. I read one study that said first degree relatives of a Celiac have a 1 in 10 chance of developing the disease. But realistically they have a higher chance of carrying the gene and could either never get sick or they could get sick at any point in their lives. You could have them gene tested to see if they carry the gene, then you would at least know if they are carriers. Although even this is not a guarantee, since they don't know that they have isolated all the genes responsible for celiac disease, but you would know which ones they got from you husband. And if they have two copies, then you would know that you were a carrier as well. There are only a few labs that do the gene testing. We did ours through Enterolab(for $150 per person), since our insurance wasn't wanting to pay for Prometheus labs (at $750 a person). Enterolab also tests for more genes that they have isolated that cause gluten intolerance, but are not considered yet to be "Celiac" genes. We have two who have Celiac genes and three that have the gluten intolerance genes in our family of 5. Only myself and our three kids are gluten free. My husband is not sick enough yet to admit that he needs the diet.

God bless,

Mariann

  • 2 weeks later...
FreyaUSA Contributor

I am not certain exactly what psoriasis looks like, but my eldest has skin reactions to gluten (as well as many other more typical reactions.) He tested borderline (or so the doctor said) with just the IgG antibodies (I'm STILL confused about this. Either he tested just below the cutoff or just at the cutoff, but the doctor said not to worry about it.) My sister had positive results in going gluten-free (her skin cleared up for the first time in 30+ years) so my son wanted to try it. His skin almost completely cleared up. Now, however, just a trace of gluten sends his body into almost every reaction available (skin, gastro, depression and migraines... :( ) including itchy dry patches in several spots on his body (he also gets little red bumps that aren't typical dh, but we certainly know there is a cause and effect here!) Could it be that your son is just developing a dh reaction? It takes a while for the spots to clear on my son, but two weeks after going gluten-free, we'd seen a remarkable difference. As an added bonus, the acne he'd started having is almost completely gone now, too, just a random pimple now and then is all.

As an aside, ringworm is just a fungus with a disgusting name. Absolutely nothing to stress about. ;)

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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