Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Child Of Celiac


julianne

Recommended Posts

julianne Newbie

I'm the wife of a celiac diagnosed 8 years ago. He's doing great on the gluten free diet. I have 3 children, 12, 10 & 5. I had my 2 oldest tested for the antibodies (through blood test) and both were negative. No tests since then. My 10 year old now shows symptoms of psoriasis. It started on his scalp in August. Doctors first thought ringworm (yuck!) had the culture performed which takes weeks to grow. Then started the 8 week course of antibiotics. Throughout this time I also applied Elicon (leftover from my other son's mild exczema). That mild steroid was the only thing that would make these spots almost seem to heal. But after a few days of not using the Elicon, the spots would return to looking as they had before. Went back to the doc 6 weeks into treatment because my son now has more spots on his body. Doc now thinks psoriasis since it responded to the Elicon and he finally used the black light which showed no presence of ringworm (They glow under ultraviolet light)(Why didn't the first doc do this?!) :angry: .

To me they don't look like the pictures I've seen of DH because his don't look fluid filled at all. Can DH be all over the body including scalp and penis? Or does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast
...does anyone know about the relationship between celiac disease and psoriasis? Should I have blood tests performed again on all children even if they were initially negative?

The relationship between celiac and psoriasis is that they are both auto-immune diseases. Meaning that the body is essentially attacking itself. Whenever you have one auto-immune disease you are at a higher risk of developing others. That is about the only connection that I know of though.

I have psoriasis. So far it is mild, but over the years it has been spreading. I have not found anything to treat it that will work long term. If I use the cream religiously then it gets a little better, but if I forget for a day or two, then it is back with a vengeance! I am sorry that your 10 year old is having to deal with this. I have a 10 year old boy also and I think how awful it would be for him...

Now as for having the kids tested again, YES. They should be screened for the disease about every few years, sooner if they are having symptoms. Since they are biologically related to someone (in this case a parent) they have an increased risk of developing the disease. I read one study that said first degree relatives of a Celiac have a 1 in 10 chance of developing the disease. But realistically they have a higher chance of carrying the gene and could either never get sick or they could get sick at any point in their lives. You could have them gene tested to see if they carry the gene, then you would at least know if they are carriers. Although even this is not a guarantee, since they don't know that they have isolated all the genes responsible for celiac disease, but you would know which ones they got from you husband. And if they have two copies, then you would know that you were a carrier as well. There are only a few labs that do the gene testing. We did ours through Enterolab(for $150 per person), since our insurance wasn't wanting to pay for Prometheus labs (at $750 a person). Enterolab also tests for more genes that they have isolated that cause gluten intolerance, but are not considered yet to be "Celiac" genes. We have two who have Celiac genes and three that have the gluten intolerance genes in our family of 5. Only myself and our three kids are gluten free. My husband is not sick enough yet to admit that he needs the diet.

God bless,

Mariann

  • 2 weeks later...
FreyaUSA Contributor

I am not certain exactly what psoriasis looks like, but my eldest has skin reactions to gluten (as well as many other more typical reactions.) He tested borderline (or so the doctor said) with just the IgG antibodies (I'm STILL confused about this. Either he tested just below the cutoff or just at the cutoff, but the doctor said not to worry about it.) My sister had positive results in going gluten-free (her skin cleared up for the first time in 30+ years) so my son wanted to try it. His skin almost completely cleared up. Now, however, just a trace of gluten sends his body into almost every reaction available (skin, gastro, depression and migraines... :( ) including itchy dry patches in several spots on his body (he also gets little red bumps that aren't typical dh, but we certainly know there is a cause and effect here!) Could it be that your son is just developing a dh reaction? It takes a while for the spots to clear on my son, but two weeks after going gluten-free, we'd seen a remarkable difference. As an added bonus, the acne he'd started having is almost completely gone now, too, just a random pimple now and then is all.

As an aside, ringworm is just a fungus with a disgusting name. Absolutely nothing to stress about. ;)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.